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#1
05-03-2009, 07:05 AM
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Looking for information on LKS
__________________  Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone."      |
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#2
05-03-2009, 07:46 AM
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| I do know a few parents who have a child with LKS, members of our Dutch parent support group, but they're all Dutch. I'm not sure about their English language.
__________________ Mom to an 12-year old boy with Lennox Gastaut Syndrome; on the ketogenic diet since June 2004 and AED free Being happy doesn't mean everything is perfect, it means you have decided to look beyond imperfection. |
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#3
05-03-2009, 10:46 AM
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| I've copied some links about LKS from the files on our Dutch forum http://discovermagazine.com/2007/nov/boy-interrupted http://jcn.sagepub.com/cgi/content/a...etype=HWCIT&ct http://www.youtube.com/watch?gl=NL&h...eature=related http://www.ninds.nih.gov/disorders/l...ersyndrome.htm http://www.epilepsy.org.uk/info/landau.html
__________________ Mom to an 12-year old boy with Lennox Gastaut Syndrome; on the ketogenic diet since June 2004 and AED free Being happy doesn't mean everything is perfect, it means you have decided to look beyond imperfection. |
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#4
05-03-2009, 05:20 PM
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| Thank you, I will send these to my friend.
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." |
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