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#1
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Magnesium -- which form?Got the go ahead from our neurologist to start magnesium. We can add 500mg and increase as she can tolerate. There are so many forms which is best? ![]() Thanks |
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#2
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| I think RobinN has had the most success with ionic magnesium (the liquid form). |
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#3
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| I'll be honest...I get my vitamins at a local discount grocery store...so my magnesium is the tablet form..250 mg. per tablet..and it only costs me $1.50 a bottle.
__________________ "Watch your words, for they become actions. Watch your actions, for they become habits. Watch your habits, for they become character. Watch your character, for it will become your destiny." Epilepsy 101 |
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Blondie47 (04-28-2010) | ||
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#4
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| Yes many are tablet or capsule form. I have also take the ionic variety, and believe it is the best form to take, though not easily found. Some brands can have a nasty taste. It can also be cooked into foods. It is a mineral and does not dissolve. Quote :
http://ods.od.nih.gov/factsheets/magnesium.asp The brand I am using now - Jigsaw Magnesium - recommended by Dr. Blaylock (neurosurgeon) also has Vitamin B-6, Folic Acid, and Malic Acid. It is also a sustained release tablet, and it has been effective for me for over a year. I do not have any connection with this company, and have tried many brands. It does have to be bought online, however the company does run sale offers quite often. They also have a facebook page: Jigsaw on Facebook
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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#5
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| Hi, Blondie, Be sure to research any vitamin you take these days. Cosmetics, too. Lots of vitamins now contain nanoparticles, which have been linked to genetic mutation and cancer. The reason that nano-particles damage our cells is that they are governed by different laws of physics (quantum mechanics) than regular sized particles (classical physics). As a result they behave differently in the body than regular sized particles - not always for the better, and sometimes can cause irreversable damage to our cells and genetic material. Nano particles also can cross the membranes of cells & molecules where regular-sized particles cannot (and should not - there's a good reason in nature they can't). In early research nanos have been shown to cause genetic mutation and cancer with some substances. More research is needed to expand this to other substances. There is a shocking lack of research so far into safety. What there is so far is showing nanos are very harmful to humans and the environment. Many company websites list whether they use nanos. On any cosmetic or vitamin website, use their search function to look for "nano." If nothing pops up you can also email their customer service department. You'll be astounded how many do not answer your email. That's because they usually don't know the answer. The company doesn't have enough control over their suppliers to be able to assure us that nanos aren't in the product. Scarey. The only company I've gotten a quick and straight email answer from so far is Twinlabs. (Their products do not contain nanoparticles.) No answer yet from Pilgram's Pride. (I USED to get vitamins from them, but for this reason, not any more.) If you want to learn more are in the mood for some heavy reading, go here: The potential risks of nanoparticles. The study was done in Europe, where IMHO they are light years ahead of the U.S. on natural supplement uses, research, and safety. Happy reading. Endless P.S. I used to just love that new clear suntan lotion. I no longer use that, either. It's made from nanos. The research shows it doesn't absorb through the skin, but can be inhaled where it damages the lungs and is aborbed into the rest of the body. Darn. |
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Blondie47 (04-28-2010) | ||
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#6
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| Thanks so much for the information. Nothing is what it seems I guess. ![]() We r still taking things day by day. My dd is asleep on the couch -- yes and missing school --because of the Klonopin. She needs it to stop the seizures, but barely functions after she takes it. I keep saying the Trileptal has stopped working but that does not go over. The deal for the week is to increase trileptal -- see if it works to control. If not, the neurologist wants to add Topamax to her schedule. This drug's side effects are unacceptable to my husband and I -- and made that known to the neurologist-- but he still wants to try it. It is a very frustrating and difficult time right now. I am in the middle of reading A Symphony in the Brain and eagerly look forward to our neurofeedback appointment in May. Thanks for letting me vent a bit! |
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#7
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| Blondie I hope she's able to get control quickly with neurofeedback. Those drugs have such terrible side-effects, and IMO, not one drug is better than another drug. My neurofeedback practicioner hasn't called me back. I'll allow one call to go unreturned, before I go to the second practicioner on my list. We went to the neurologist Monday for a routine appt. and he suggested introducing tenex for my son's attention issues. Since being on the depakote, he can't tolerate the typical stimulant medication or strattera. I told him I didn't want to put anything else in his body before I researched it. I sent him an e-mail later that night saying NO WAY. I'm hopeful the neurofeedback will improve his attention issues too. |
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#8
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| Hi, Blonde, You are increasing her Trileptal this week? I"m ramping up on the stuff myself. Just when the side effects seem to get better, it's time to up the dose again. But the good news is I think it has made my seizures less frequent. A week isn't a big enough sample of time to say for sure. I've gone a week or two before without a seizure when not on meds. (I usually have 2-3 a day). So I"m keeping my fingers crossed. Is your daughter experiencing side effects? I've had a rash (dermatologist says it's not stevens-johnson, thank goodness), exhausted, weepy, blurry vision, fuzzy/foggy brain, etc. I'm hoping your daughter is having an easier time of it. |
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#9
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About Trileptal Endless TG the rash is not SJ. Trileptal was the first anti-epileptic drug our 2nd neurologist put my DD on after long term monitoring in April 09. We've had a good run with it, but unfortunately my DD's epilepsy is resisting it now. It really was great with the occipital lobe seizures, and frontal lobe too. She is currently on 1500mg. It does make her tired but not wiped out. She did get the blurred/double vision and exhaustion at 1800mg. We reduced it at that point. Keep charting your observations in your journal. It will be such a blessing to have the history when you need to analyze Trileptal's effectiveness on your epilepsy. Take care |
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#10
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Am I reading this correctly? Your neurologist is willing to prescribe three meds for your sweet daughter to take? He has been treating her for how long? IMO that is completely ABSURD!!! Monotherapy is what is recommended and all meds individually should be tried first(if that is the direction you want to take). Adding a second med should only be tried if monotherapy does not work, but that should not be suggested IN MY OPINION unless the seizures are life threatening. Multiple meds cause toxicity... which can also cause seizures. *** I apologize if I have over stepped my bounds. I just read your profile and realize you are dealing with a lot of additional health issues. I just believe that chemicals are so strong, that the body seizures easily from toxicity. My daughter's seizures increased dramatically when on meds.
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce Last edited by RobinN; 04-29-2010 at 01:01 AM. |
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#11
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| RobinN Thanks -- your opinion is appreciated! I really admire the work that you have done in healing your DD. I hope that we can achieve that someday. Right now we need to stop the daily seizures so that our DD can function. Go to school, see friends, live life! I am researching like crazy to educate myself on all possible methods of greater seizure control. I have added BComplex, Vit E, Magnesium to her daily schedule. In May we begin neurofeedback. We are also considering a low glycemic diet. I just spoke with our neurologist, hours ago and went over our current situation and future plans. He is open to the complimentary therapies and explained the rational behind adding Topamax and temporarily keeping the Klonopin. He will not allow our DD to suffer with daily seizures or untolerable side effects. My husband and I so get his point -- which is Topamax is one of the strongest drugs to control partial seizures and we need to give it a try. So we will be brave... and keep pushing ever forward every day! This has been just as hard as chemo in so many ways. But please know that she is considered <CURED> and in a state of PERMANENT remission from leukemia. We ended chemo in 2000. Take Care |
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#12
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| Try magnesium citrate from Biocare , thats got good bio availability in them, costs about £12.00 for 90 caps , you can find them in most good health food stores |
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#13
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| The subject of which variety of magnesium to take is one that has confused me when I read the description of each type. I just found this article by Dr Blaylock, neurosurgeon: Quote :
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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Nakamova (08-18-2010) | ||
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#14
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| Does anyone know anything about chelated magnesium? *sigh* I get so confused when I visit the health food store -- and I'm the one without memory problems.
__________________ An expert is a man who tells you a simple thing in a confused way in such a fashion as to make you think the confusion is your own fault. ~William Castle |
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#15
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| Quote :
You should read this too: http://www.drugs.com/mtm/chelated-magnesium.html
__________________ "It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason |
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#16
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I also found this... I tend to trust articles more when they discuss the good & bad of something. http://www.ehow.com/list_5787451_sid...magnesium.html http://www.medhelp.org/drugs/Chelate...sium/show/2915
__________________ "It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason |
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occb (08-19-2010) | ||
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#17
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| I gave the chelated form to Rebecca prior to trying Jigsaw Magnesium. I have found the latter to be very useful without negative side effects. I just need to remember to take my night time dose. Though I remain migraine free on just the morning dose, which is exciting for me.
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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#18
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| Blondie, I have the same problem as you I'm still having doubts about if I'm giving her the right form... Some suggest magnesium oxide, some suggest gluconate, and now I see the liquid form is better. |
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#19
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| MagCalm is supposed to be a good product. It is a powder you disolve with hot water to make a tea. You can get it unflavored or naturally flavored with stevia and raspberry or lemon. |
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