Coping With Epilepsy Austin Biofeedback and EEG Neurofeedback Center
10% off neurofeedback training for CWE members - Austin, TX
Neurofeedback Partner - Free Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Kitchen


Reply
 
LinkBack Thread Tools
  #1  
Old 10-08-2007, 10:47 PM
New Here
 
Join Date: Oct 2007
Posts: 6
Thanks: 0
Thanked 0 Times in 0 Posts

Medications and theyre side effects


I am not familiar with many of the medications associated with Epilepsy and I'm interested if others suffer the same side effects that I do. I have been on 350 mg's of Dilantin daily for 3 years but... I recently had a grand mal because I hadnt been fully compliant with my medication and my therapetic blood range was very very low. My medication has been increased to 450 mg's and I have noticed that I am experiencing many of the side effects. They include...

- feeling overly tired
- increased hair growth (my back and shoulders included)
- eye twiching
- swelling of my gums
- memory problems

I have an appointment to see a neurologist in a few weeks and I am considering experimenting with another epilepsy medication. Most of these side effects I can deal with but I don't want to have to deal with them if there is another option.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #2  
Old 10-08-2007, 11:04 PM
POSITIVEPERSON's Avatar
 
Join Date: Jan 2006
Location: Portland Oregon
Posts: 379
Thanks: 0
Thanked 5 Times in 2 Posts
Hi: All the meds have side effects and adjustments. What you want is the med that will
have the least adjustments for you . That you need to discuss with your Dr. I don't know your Dr and if he will be willing to discuss alternative treatments????

Wishing you a seizure free life and a quality life
Riva
__________________
Riva's Memorial
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #3  
Old 10-09-2007, 12:54 AM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,643
Thanks: 86
Thanked 504 Times in 403 Posts
Send a message via Yahoo to RobinN
My daughter is on her fourth med, and they all had side effects that were not tolerated. We are slowly increasing this one. In fact I am trying to decide if I will go slower than the neurologist wants, due to the fact that there is something very important in Rebecca's life and I don't want her to be suffering from side effects. She has worked too hard, to have a med interrupt her chance.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #4  
Old 10-09-2007, 08:32 AM
Bernard's Avatar
Your Host
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 5,794
Thanks: 189
Thanked 705 Times in 309 Posts
My wife is currently taking Dilantin (alternating doses of 300 & 400mg/day). She has not complained of any of the symptoms you mentioned (at least specifically reated to the Dilantin - the memory problems are more related to seizure activity for her).

When her blood level goes toxic, she complains about non-stop tingling sensations in her fingers and toes. She may also be a bit more unbalanced/clumsy than usual.

450mg might be too much for you if you had good control when you were taking the 350mg diligently. A blood test will confirm if 450mg is too much.

Do you have a pill box or system in place to make sure you take every dose?
__________________
New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

Would you like to help support this forum?
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #5  
Old 10-11-2007, 09:34 AM
Getting Comfortable
 
Join Date: Sep 2007
Location: Houston, TX
Posts: 12
Thanks: 0
Thanked 0 Times in 0 Posts

Meds


I am new to these kind of meds. I can only give you feedback on two of them. The first one I took was Lamictal.
Everything was fine for 2 1/2 weeks then I got the dreaded rash. Next she put me on Topamax. That didn't work at all. By Sunday, I had people telling me they thought I was hypoglycemic. Monday, I had to be taken home from work. This is my first day back. I couldn't think - at all, speech was slurred, etc. Just be careful. Changing meds is tricky.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
Which AEDs give you the worst side effects? Bernard Back Fence 202 05-17-2012 12:14 PM
Can any body help? are these side effects of medications books The Library 10 05-10-2012 03:19 PM
Which AEDs give you the worst side effects (part 2)? Bernard Back Fence 42 03-29-2012 04:40 PM
Male side effects from dilantin RanMan The Library 11 04-26-2008 01:26 AM
Side Effects Wally The Kitchen 7 12-14-2007 09:19 AM


All times are GMT -5. The time now is 04:42 PM.


Powered by vBulletin® - Copyright ©2000 - 2012, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 © Measuring Up. ALL rights reserved.