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Old 07-14-2009, 12:37 PM
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My wife is doing well, 4 months seizure free!


I just wanted to share that my wife is now doing very well and her seizures have been controlled for 4 months now. She's taking Depakote, getting better sleep, and watching her diet and alcohol intake much better.

Over the past 2 years I've spent the better part of each day worrying about my wife. Before I even knew she had E, I was worried because she would nod off during the day, sometimes act out of it, and had all the classic signs of uncontrolled seizures. The problem was that at the time, I had no idea of this. I was pretty naive about seizure activity and E in general. Since we've realized what was actually the problem I have done as much reading and research as I can. When it comes to E, knowledge truly is paramount.

Now that I better understand my wife's health, I can help her so much more. Since her partial on the 500mg of Depakote she was upped to 1000mg (500am/500pm). At first she had a really hard time on it. I even posted a few times here because it was so hard to tell if it was the meds or seizure activity. Luckily it turns out most of it was the meds, and she's now adjusted to them very well. In fact, I've seen a major change in her over the last 2 weeks time. The side effects went away quickly and the change was dramatic. No more nodding off, memory issues, or problems with cognitive function.

She also switched from Zoloft to Lexapro for her anxiety. That's made an incredible change as well. In the past two weeks I've never seen her smile as much as she has. The anxiety and panic attacks are lessened and she's even learning to work through them without her rescue meds (Xanax).

As for now, my wife is a happy and healthy person. I myself am doing well too. All of this had me on the verge of a nervous breakdown. In the end though, all the worrying and running around is worth it to have my wife back. We're counting down the days until 6 months when she can drive again. So far, things are going well and we're both thankful for that.
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Old 07-14-2009, 12:57 PM
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Oh, this


is such WONDERFUL news to hear! I am soooo VERY happy for both of you!!! Yeah for you!!!
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Old 07-14-2009, 01:42 PM
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Awesome!
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New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

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Old 07-14-2009, 02:22 PM
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Wonderful for both of you!!!!!
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Old 07-14-2009, 02:23 PM
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Terrific! It's great to hear good news, and that BOTH of you are doing well. Sounds like you make a great team.

Best,
Nakamova
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Old 07-14-2009, 04:09 PM
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Thanks all. We really do make a good team. We're exact opposites so I think we compliment each other well. If there is something my wife isn't good at, I'm usually on top of it, and vice versa.

It's been a hard time for both of us, but things are starting to look up. It's going to be hard for her to get a job, especially in Michigan so that's the next hill for us to climb. I have a good job and steady money, but it's so hard with a single income. Especially with the doctor bills and medicines.

I wanted to personally thank all of you for your support and advice as well. For a while it felt like things were going to drastically change forever in my life. Now I realize that was more my mental state doing the talking than factual evidence. I now am certain that we both can have a fullfilling and happy life together despite what obstacles might come up. You all have been a great help in getting us both better. A big thanks and lots of love from both of us to all of you.

I plan on sticking around and continuing reading and educating myself. I wish all of you only the best and you're all in my thoughts and prayers.
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Old 07-14-2009, 04:45 PM
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What a wonderful story. Thank you for sharing it with us.
Give your wife our regards. So glad to hear she is doing well.
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Old 07-14-2009, 05:03 PM
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I will Robin. Thank you for the kind words.

You're an amazing asset to this forum and I hope you continue on your path. The knowledge you've learned in invaluable to so many here. Getting such a warm response from you really means very much to me, because I know you put so much of yourself out there for the good of the community and your daughter. I hope some day I can read of her being seizure free too!
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Old 07-14-2009, 05:04 PM
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You just made my day. Thank you.

As far as Rebecca is concerned, I see the possibility now. She is doing so well. Now we just have got to make her believe it.
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Old 07-14-2009, 07:04 PM
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Originally Posted by darcness View Post:
You're an amazing asset to this forum and ...
Shhhh... I can't afford to be handing out raises around here.






















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New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

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Old 07-14-2009, 07:12 PM
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Hey if anyone one deserves it, Robin does.

She will get there Robin. And you'll be able to share an even more wonderful story than mine. Your hope and determination is an inspiration to us all. You'll get there sooner or later. Just don't give up, ever. (I know you won't)
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Old 07-14-2009, 08:12 PM
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I am so happy to hear that both of you are doing well these days. I don't know if you remember it, but I responded to one of your first posts when you were so upset about your wife's seizures. I tried to let you know how my husband reacted to mine at first. I hope that was helpful.

What you are doing in helping do the best she can and encouraging her while you both learn to cope with her seizures is so very good for you to do. I commend you for making both the commitment and the effort. It will pay off handsomely in the long run.
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Old 07-14-2009, 08:26 PM
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I remember Molly, trust me, it helped.

As for commending me, it's really not needed. When you love some one as much as I love her it's all done by choice because it's all I can do. I couldn't imagine losing her so I will always do anything I can to support her when it comes to her health.
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Old 07-15-2009, 07:48 AM
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What a sweet guy you are and your wife is so lucky to have someone like you that is so supportive. I am wishing you and her all the best and many more happy days for you and your wife. Glad to hear that the forum helped you. This forum has helped me too.
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Old 07-15-2009, 09:58 AM
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Congratulations! That is so great to hear.
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