Coping With Epilepsy Epilepsy Research Program
Free Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Kitchen



Reply
 
LinkBack Thread Tools
  #1  
Old 11-28-2007, 04:24 AM
Weaving the Community Fabric
 
Join Date: Nov 2007
Posts: 204
Thanks: 1
Thanked 18 Times in 18 Posts

Myoclonic jerks vs partial seizures and other ramblings


Well, i'm really confused because my history of epilepsy has involved mainly tonic clonic seizures, at least as far as I know. I think i've probably had other seizures in the past but not thought much of it. I know that recently I have had involuntary jerking and my neurologist mentioned that he thought it may have been a small seizure. I thought he meant a simple partial seizure, just based of my limited knowledge and I didn't think to clarify with him. Not that it matters really I guess what label is put on it but i'm wondering what the difference is between a simple partial seizure and myoclonic jerk. The jerks I have are single jerks/twitches of my hand, arm, leg or even my head. Recently they have been happening several times a week. I would say it happened 3 times just yesterday and twice today. I'm thinking I should probably keep a record of what is happening. From what I know simple partial seizures can effect movement and can cause involuntary movement and twitches so how does this differ? Does it have to do with consciousness, because i'm totally conscious and I am able to speak (I know a friends mother who has partial seizures says she is aware of what's happening but can't speak) and what not.
This is all so confusing and i'm not used to this after so many years of well controlled epilepsy. Also does tiredness effect these jerks that happen because today I was out at the shops after school (i'm a teacher) and I was bloody exhausted from all the walking (now that I can't drive i'm going to have to walk more often) and that is when I had a twitch/jerk of my head.

I know this is not related but I also have hand/arm tremors due to side effects of the Epilim. I've always had that and some days are worse than others but lately it seems that there have been a lot more 'bad days' with that. I assume that is likely because i've been on the Lamictal as well and the tremors are a side effect of that too.

Sometimes I think I don't just have Epilepsy but also dementia and parkinsons as well j/k

I feel really frustrated with this and i'm so glad to have found this forum. It is so nice to be able to discuss these things with people who actually understand. As a child my Epilepsy didn't really bother me but it bothers me more now. I think it's because I know how much more it can effect my job and my life - nobody is going to kick you out of school as a student because you have Epilepsy and you can't get a drivers licence when you are 10 so you are no different than any other kid. Also if you are whacked out tired and can't focus on your homework Mum writes a note but unfortunately a note from Mum doesn't work anymore and you have to deal with deadlines (even though I do have a very understanding supervisor, you don't want to push your luck). Also if you are home alone with the kids or in the car (with the kids or alone) and have a seizure you know that what happens is going to effect not only you but them as well. I know my big sister would cry when I had seizures as a kid but I don't think it really hit just how intense it was for her to see me like that. I always though - ah yeah, big deal - whatever. Life is much more complicated as an adult - why did I need to grow up.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #2  
Old 11-28-2007, 08:07 AM
Bernard's Avatar
Your Host
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 6,230
Thanks: 523
Thanked 1,653 Times in 599 Posts
Originally Posted by Trinity View Post:
Well, i'm really confused because my history of epilepsy has involved mainly tonic clonic seizures, at least as far as I know.
A common refrain I see on E forums is people discovering they had a history of non-tonic clonic seizures but didn't know what they were (or weren't conscious through them, so never had any awareness of them).

Originally Posted by Trinity View Post:
... but i'm wondering what the difference is between a simple partial seizure and myoclonic jerk.
I'm not sure how the distinction is made. Perhaps they have different signatures on EEGs. In general, I think (a sometimes dangerous proposition...) a single strong jerk would be classified under myoclonus and small, repetitive jerks would be indicative of simple partial seizures.

Originally Posted by Trinity View Post:
The jerks I have are single jerks/twitches of my hand, arm, leg or even my head. ...... i'm totally conscious and I am able to speak
Sounds like Myoclonic to me.

Originally Posted by Trinity View Post:
... Also does tiredness effect these jerks that happen ...
Tiredness has always lowered Stacy's seizure threshold.

Originally Posted by Trinity View Post:
I know my big sister would cry when I had seizures as a kid but I don't think it really hit just how intense it was for her to see me like that.
Witnessing a tonic clonic seizure can be intense - especially when it is happening to someone you love.

Have you talked to your docs about your increasing seizure activity?
__________________
New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

Would you like to help support this forum?
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #3  
Old 11-28-2007, 09:39 AM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,865
Thanks: 170
Thanked 708 Times in 539 Posts
Send a message via Yahoo to RobinN
Trinity - I have noticed occasionally a jerk. Nothing regular, no more than once. I have attributed it to a release of stress. I guess I have been more conscious of them since I have been reading others symptoms.

I know for a fact that I would benefit from a stress reducing exercise program. More walking, yoga, relaxation tecniques, better breathing, drinking water.

Do you have any of these in place? To always contribute it to a "fear" of something more to come would send me right into Alice's fall.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
Reply

« Bye-Bye VNS! | Vent »
Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
antihistamines and partial complex seizures forward2007 The Kitchen 52 03-07-2012 09:42 AM
Just diagnosed with partial seizures sara The Kitchen 16 05-22-2008 09:35 PM
Complex partial seizures, and auras Mercyme The Foyer 9 11-09-2007 12:32 PM
New to board- complex-partial seizures Mom2boysx3 The Foyer 3 04-15-2007 09:48 PM
Hi! medical refractory epilepsy and complex partial seizures Jerseymom5541 The Foyer 1 03-09-2006 05:36 PM


All times are GMT -5. The time now is 09:31 AM.


Powered by vBulletin® - Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.