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Myoclonic jerks vs partial seizures and other ramblings
This is all so confusing and i'm not used to this after so many years of well controlled epilepsy. Also does tiredness effect these jerks that happen because today I was out at the shops after school (i'm a teacher) and I was bloody exhausted from all the walking (now that I can't drive i'm going to have to walk more often) and that is when I had a twitch/jerk of my head.
I know this is not related but I also have hand/arm tremors due to side effects of the Epilim. I've always had that and some days are worse than others but lately it seems that there have been a lot more 'bad days' with that. I assume that is likely because i've been on the Lamictal as well and the tremors are a side effect of that too.
Sometimes I think I don't just have Epilepsy but also dementia and parkinsons as well j/k
I feel really frustrated with this and i'm so glad to have found this forum. It is so nice to be able to discuss these things with people who actually understand. As a child my Epilepsy didn't really bother me but it bothers me more now. I think it's because I know how much more it can effect my job and my life - nobody is going to kick you out of school as a student because you have Epilepsy and you can't get a drivers licence when you are 10 so you are no different than any other kid. Also if you are whacked out tired and can't focus on your homework Mum writes a note but unfortunately a note from Mum doesn't work anymore and you have to deal with deadlines (even though I do have a very understanding supervisor, you don't want to push your luck). Also if you are home alone with the kids or in the car (with the kids or alone) and have a seizure you know that what happens is going to effect not only you but them as well. I know my big sister would cry when I had seizures as a kid but I don't think it really hit just how intense it was for her to see me like that. I always though - ah yeah, big deal - whatever. Life is much more complicated as an adult - why did I need to grow up.
Have you talked to your docs about your increasing seizure activity?
New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.
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Trinity - I have noticed occasionally a jerk. Nothing regular, no more than once. I have attributed it to a release of stress. I guess I have been more conscious of them since I have been reading others symptoms.
I know for a fact that I would benefit from a stress reducing exercise program. More walking, yoga, relaxation tecniques, better breathing, drinking water.
Do you have any of these in place? To always contribute it to a "fear" of something more to come would send me right into Alice's fall.
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