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Old 07-26-2007, 02:54 PM
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Location: Birmingham, AL
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Neuro not encouraging


I had a visit with my neurologist today to discuss the side effects of zonegran that have become too much to tolerate. He said, "Let's get off the zonegran". He wants to to put me on Depakote (I said I no because I did not want to get fat and bald) so he suggested Klonopin. When I told him I wanted off the meds altogether, he just informed me of the risks. I told him it was a risk to take medication too. I am so sick of the side effects!

Long story short, he's going to run an EEG next week and said I could start lowering my dose by 25mg. per week. Ultimately, I know it will be my decision and I will have to live with the consequences. My husband has offered to do all the driving for a while. I have 3 boys and I teach music and drama to children so I should be able to continue taking care of my family and keep my job. I plan on pursuing neurofeedback on the advice of Bernard as well.

I don't know if I will come off the meds totally or not. I need to pray about it a lot and trust God for guidance. I am scared after being on meds for 25 years. Please keep me in your thoughts and prayers as I make this difficult decison.
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Juvenile Myoclonic Epilepsy since 1982
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Old 07-26-2007, 03:51 PM
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Location: Friendswood, TX
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Be aware that most insurance companies don't cover neurofeedback for epilepsy. You might have better luck filing a claim for treating ADD/ADHD (if you have that problem).

At any rate, I hope you are able to give it a serious chance. It took a full 5-6 months before Stacy really started realizing the benefits of the training - and we almost quit 3-4 months into it.
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Old 07-26-2007, 05:52 PM
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Location: Portland Oregon
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Patience is everything with alternative meds wether its homeopathy,neurofeedback, herbs, acupuncture. So pace yourself.

Wishing you the best of luck

Riva
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