I'm taking, among other things, phenytoin 325mg daily. I haven't mentioned anything else because I think the phenytoin is doing most of the work and I don't want to confuse matters. The range for phenytoin blood levels is 40-80.
Anyway, recently E has been getting quite a lot worse. I've had quite a few seizures lasting 3 minutes and more (quite a lot for me) most of my seizures are tonic clonic except for when I have some smaller ones next morning or something. So yeah basically, its got pretty bad.
I want to put the phenytoin up just by 25mg but the neurologist won't let me. I had one blood test that put me at 70 something so he says its too risky to put it up.
The thing is, I also had at least four other blood tests at my request that put me it the 50s and 60s. I've talked to his nurse and to my GP but they all just refer back to the neuros letter and he gos only on the one blood that was high.
I've put the dose up myself because I'm sick of the seizures. Only time will tell if it makes a difference.
But should I call the nurse? or my GP? or cut the dose back? You got any advice basically?
Anyway, recently E has been getting quite a lot worse. I've had quite a few seizures lasting 3 minutes and more (quite a lot for me) most of my seizures are tonic clonic except for when I have some smaller ones next morning or something. So yeah basically, its got pretty bad.
I want to put the phenytoin up just by 25mg but the neurologist won't let me. I had one blood test that put me at 70 something so he says its too risky to put it up.
The thing is, I also had at least four other blood tests at my request that put me it the 50s and 60s. I've talked to his nurse and to my GP but they all just refer back to the neuros letter and he gos only on the one blood that was high.
I've put the dose up myself because I'm sick of the seizures. Only time will tell if it makes a difference.
But should I call the nurse? or my GP? or cut the dose back? You got any advice basically?