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#1
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Neuropsych reportWe received the report today and it says that Nicole is showing a type of "hot oppositionality" that is usually due to over-stimulation and a tendancy to overload and shut down. When she shuts down, she becomes rigid and nonresponsive. It states that there may be justification for considering a special education program. It does state that she certainly would meet requirements for "other health impairment." Due to the seizures. It also states that as part of the IEP evaluation, we get an occupational therapy evaluation. The purpose is to start a teaching program using the "how is your engine running" approach. Her oppositional behavior is driven by over-stimulation. With this program she can learn to improve her awareness of her accelerating agitation, label it appropriately, identify how her "engine" is running and learn techniques to settle herself down. He also will be doing a full evaluation this summer. We do have a meeting at school on the 6th. We have already informed them that we want an IEP for her based on the neuropsych's report. I sure hope that this meeting goes well. So far, they have been working with us with a few small bumps in the road. Now I will be reading my wrightslaw books and making notes before the meeting. I will also be giving them an article regarding education and Epilepsy that I found on the National Epilepsy site. |
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#2
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| Interesting. I didn't know programs like that existed. Thanks for posting and best wishes for Nicole!
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback Would you like to help support this forum? |
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#3
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simply put; and has been for decades! Hence why the excessive Neuropsych tests at the School sometimes 2-3 times a year, and why I would be up and down like a roller coaster. That's exactly why they had me all preplanned 2 years before I graduated and all set up and stated I wouldn't be eligible to gain lawful employment for that reason. The best way to put it is "Short Circuit" or "Operation Overload" or "Malfunction Junction". I can't handle it all going all at once; my system will shut down ... Think about the Old Computer Windows Operating System's BLUE SCREEN OF DEATH .... (#&#*&%#%!@!!!!!!) That's the BEST illustration I can best present it to you as how the brain would go in such manner ... The Blue Screen of Death ... The only way to get out of it all is "REBOOT" (sleep, meds, etc). I don't know if there's a difference between your daughter and I, but when I go into "Malfunction Junction" - aka Shut Down - becoming non-responsive, not compliant, in state of confusion, incoherent, or even into psychosis - it trips into seizure mode. This goes in conjunction with the seizure mode, and trying to get me OUT of it is difficult, the only thing anyone can do is just wait it out and let me "REBOOT". Which can take anywhere from few minutes to hours. This is what I mean and imply when I state "I am not in sync or I'm only partially in sync" - I'm not running in full mode. By the time I was in Senior High School the School Board System had a neurologist- psychiatrist who worked WITH me to look for ways around it to make up for these shortcomings and pitfalls, in other words "OVERRIDE". Some of his plan / ideas worked. But many of them of what he had did not. He tried everything he could drum up with (bless his heart), and even trying some alternatives of his own - and a couple did work. However, that was years ago - I'm sure today they've progressed and learned more that your daughter will have a much better chance than what I did and underwent. YES - There is such thing as BRAIN FREEZE and it's not just from drinking ICEE or cold products too quickly. I still struggle with this; it's even recorded on my video EEG's and they've had to deal with me in neurologist Floor and ER whereas; now the Paramedics, ER, and the Medical Personnel - they KEEP ME AWAKE after I've had a seizure all because of the complications of the issue of my brain shutting down and becoming non-responsive.
__________________ Sharon Advocate & Member of Head Storms - Resource Center "Vujà dé - the feeling you've never been in here before!" |
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#4
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| Our schools don't have a neuropsych that I know of. Fortunately, this does not trigger any seizures and thankfully we have not seen any seizures since August. I'm glad that we now know what we are dealing with and can work on helping her. |
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#5
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| I wonder if the School System discontinued this via Budget cuts? Because it was part of the IEP Program - and if Therapy was needed; it was provided. I still have my old carbon copies from my old school days. It's really a shame because it was quite benefiting to all of the students who had neurologist issues! I DO know if was part of the Federal & State Grants; so it wouldn't be surprising at some point years later it was given the chopping block, like a lot of other things.
__________________ Sharon Advocate & Member of Head Storms - Resource Center "Vujà dé - the feeling you've never been in here before!" |
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