night time seizures/ tonic-cclonics upon waking
Im just wondering if anyone suffers with night time seizures and tonic-clonics upon waking.. And if you have found a trigger
My boyfriend has noted that when i have a night time seizure Im always either laying on my tummy or laying in my right side ... So i wondered if it Cud be a trigger ? ...
Also i find if its quite humid Im more likely to have one ...
Most mine happen in the early hours between 2am and 7am and sumtimes have a tonic-clonic upon waking
I just Dont know what to do and ive got myself to scared to sleep ...
I see the neurologist on 4th July to get eeg results .... Just wanted your views ???
Whats your trigger ??
Keppra 1000mg - 8am + 1000mg - 8pm
clobazam 5mg - 8am + 10mg - 8pm
genralised tonic-clonic seizures
~If you don't like something change it; if you can't change it, change the way you think about it.~
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julie wishes (06-29-2012)
I woke to a seizure this morning. Mine are only simples though. But it is unnerving non the less. I completely understand feeling fearful of the bed. I have lots of seizure activity at night. I keep wondering if I need a sleep study... but I don't know if that's the right test. Sounds like it though. Have you had one? Seems like you've been having a lot of activity lately. is this normal for you? Im sure you have it all charted and ready for the doctor. Good luck with that appointment.
As far as triggers I read it is just more likely to have them as you fall asleep or when waking up? Someone pointed that out for me. So I looked it up. I wonder if you tried breathe right strips... LOL... if it would help. Just would help you stay well oxygenated in case you don't breathe as good on your side or back... very random thought.
You all inspire me... thank you for sharing Juls
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