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  #1  
Old 09-01-2009, 12:01 PM
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Not another Missed Moment


Colton, NY- It's hard for me to do this...to say goodbye to you. I am 37 years old and I have epilepsy. I have tried to hide or deny that I had epilepsy for many years because of the stigma associated with this condition. I am suffering from many Simple partial seizures and Complex partial seizures a day. I have been transported to the hospital a couple of times in last month because of Secondarily generalized seizures that have resulted in serious medical situations that could have resulted in Sudden Unexplained Death in Epilepsy. Continue at:

http://swartzamish.blogspot.com/2009...ed-moment.html
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Old 09-01-2009, 05:15 PM
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Best of luck to you with your surgery! Please check back in to let us know how it goes.

Best,
Nakamova
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Old 09-01-2009, 06:59 PM
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Oh, ADK


GOOD LUCK!!! We will be thinking of you!!! PLEASE let us know how things turn out..........
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Old 09-02-2009, 12:26 AM
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All the best, ADK.
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Old 09-02-2009, 02:04 AM
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"If you are going through hell, keep going."
(Sir Winston Churchill, 1874-1965)

Work like you don't need money,
Love like you've never been hurt,
And dance like no one's watching.
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Old 09-02-2009, 07:48 AM
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ADK, is that you posting on the swartzamish blog, or were you just sharing what you found?
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New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

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Old 09-02-2009, 08:21 AM
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Bernard,

That is me. I started that blog almost 2 years ago and I worked pro bono for the attorney's that represent the 13 Swartzentruber Amish that have been arrested.

I made a documentary about the situation.

I stumbled into that whole Amish mess by accident you could say.
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Old 09-02-2009, 10:56 AM
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OK. It wasn't clear from the OP.

I wish you all the best with your pending surgery!
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New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

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Old 09-21-2009, 11:45 AM
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Looks like the blog no longer exists?
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New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

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Old 09-21-2009, 01:38 PM
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Mr. B:

The blog is gone...but I sold the documentary and all copyrighted material to the editor of the national column 'The Amish Cook.'

My important things are all being taken care of in the event that E takes a hold of my life...like it has.
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