Coping With Epilepsy Medikidz Comic Book Explains Epilepsy
Sponsored Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Kitchen



Reply
 
LinkBack Thread Tools
  #1  
Old 05-19-2011, 09:09 PM
momof3boys's Avatar
Venerable Voice of CWE
 
Join Date: Nov 2010
Location: Nebraska
Posts: 2,285
Thanks: 422
Thanked 469 Times in 390 Posts

Numbness when relaxed?


Has anyone experienced numbness or tingling feelings when they are relaxed?

Im seeing a pattern of having this numbness or tingling sensations when Im relaxed. It happens mostly in the evenings, when Ive settled down from doing my busy things with the kids, the housework, etc.

My hands and feet start to get numbness and my hands feel tingly.... its a weird feeling.. kind of feeling weak at times too. If I had to put into words what it feels like... I would say an "Off, weak, tingling, feeling".....

Kind of like Im just not all here....


I will be seeing my dr next week, but I just thought Id see if anyone here has been through this or has had this happened before? Im on 2500mgs of Keppra. Ive been on Keppra before, since the age of 18, and Im now 30. I was taking 3000mgs a day with Carbatrol then. Had no problems. Now with no carbatrol, and lowered my dose of Keppra, Im just wondering if these could feelings Ive been having, could be possible break through seizures? Seizures wanting to come about, but not going to a full seizure? When I do the research on my symptoms, its coming up as focal simple partial seizures with the numbness.... sometimes my head turns to the right too...



ANOTHER QUESTION.....


Anyone that just takes Keppra, have you ever noticed a change in appetite? Not eating as much as you did before taking Keppra?

Just curious. Thanks!
__________________
Kristin

Left Temporal Lobe Epilepsy
Keppra XR (3000mgs)
Carbatrol (400mgs)

Last edited by momof3boys; 05-19-2011 at 09:36 PM.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #2  
Old 05-19-2011, 10:11 PM
Getting Comfortable
 
Join Date: May 2011
Location: Ft Walton, FL
Posts: 10
Thanks: 1
Thanked 2 Times in 2 Posts
I can answer the second question, huge change in appetite. Dropped drastically at first then just became completely unstable. Never just normal, either no appetite or eating a LOT. I always worried about it making me diabetic.

I never payed attention to the first one. I get occasional numbness but likely unrelated to epilepsy.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to Paul For This Useful Post:
momof3boys (05-19-2011)
  #3  
Old 05-19-2011, 10:34 PM
momof3boys's Avatar
Venerable Voice of CWE
 
Join Date: Nov 2010
Location: Nebraska
Posts: 2,285
Thanks: 422
Thanked 469 Times in 390 Posts
Being only on the Keppra is new for me. Since the age of 18 Ive been on Keppra and Carbatrol. When my dr took me off my carbatrol Cold Turkey for the video EEG, he never put me back on it. Just within the first five days of not being on any medication at all, I went down 6lbs! From then on, within the last couple of months, Ive lost 20lbs so far. Now Im seeing on the Keppra side effects that numbness in the hands and feet are listed, along with weight loss and loss of appeitite. None which to be listed as severe. But I will bring it all up to my dr when I see him on Wednesday. At least Im hoping I get to see him and not the PA!
__________________
Kristin

Left Temporal Lobe Epilepsy
Keppra XR (3000mgs)
Carbatrol (400mgs)
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #4  
Old 05-20-2011, 12:12 AM
Getting Comfortable
 
Join Date: May 2011
Posts: 16
Thanks: 1
Thanked 0 Times in 0 Posts
I have been on Keppra for 5 months I think and that is the only meds i have every taken. But I have had a change in appitite. Like Paul said, one day I am not hungry and my boyfriend has to make me eat or i forget and the next I feel like I am always hungry.
As far as the tingling, I have had that in my hands and feet for a long time. Mine has nothing to do with my seizures, mine is from neural tension, which just means that my nerves are "tight" there are stretches I do that help it and I dont get that feeling as long as I do the stretches.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #5  
Old 05-20-2011, 10:56 AM
Weaving the Community Fabric
 
Join Date: Apr 2011
Posts: 157
Thanks: 4
Thanked 10 Times in 10 Posts
I feel tingeling sensation in my left palm everytime i let it lay or if i move it.

Before i toke keppra it din't bother me now when i take keppra i think it can make me have an aura and get a jerk like electrical voltage.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #6  
Old 05-20-2011, 12:42 PM
Getting Comfortable
 
Join Date: May 2011
Location: Ft Walton, FL
Posts: 10
Thanks: 1
Thanked 2 Times in 2 Posts
I get that jerking thing all of the time. I have associated it with my way to pull myself out of a petitmal. Typically when it happens is when I just had a petitmal but occasonally it will happen randomly and I suppose I was going to have one or had a very small one and didn't notice it.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #7  
Old 05-20-2011, 02:08 PM
momof3boys's Avatar
Venerable Voice of CWE
 
Join Date: Nov 2010
Location: Nebraska
Posts: 2,285
Thanks: 422
Thanked 469 Times in 390 Posts
I was on Keppra and Carbatrol for over 10 years, and didnt experience the numbness or tingling at all. But when my dr took the carbatrol away, and since Ive only been on Keppra, Ive been seeing it happening more often.

The first time I ever noticed the numbness was when I was having the seizures in the hospital. When my dr took me off all my medications and it wasnt til 40 hours after my last dose that I started having seizures, it was then that I was having different seizures than the complex partials I was use to having before. I was aware of what was going on during the seizure and I could hear the nurses talking to me, but if the seizure got too intense, I couldnt talk back or respond to them til the seizure was over.

The numbness started then, and since being put on different medications and now back to only being on Keppra, Its been happening on a daily bases. Im busy during the day with kids, housework, etc. The times I noticed it alot are in the evenings when I want to put my feet up and watch a tv show. When my body is relaxed and not moving around. Then when Im asleep, or wanting to fall sleep, I get the motor feeling through out my body, which has the numbness with it. Its a weird feeling.

My only concern is that If these are simple partial seizures Im experiencing, and the Keppra 2500mgs is not enough to hold them back, I just hope my dr can see this and do something about it. But I got a feeling he is going to tell me these are not seizures, and think they are something else.

Ive been doing some googling on numbness in hands and feet, motor feeling through out body, seizures, and its all coming up as simple partial seizures. Focal seizures, left temporal lobe, etc. Which is what I have, is temporal lobe epilepsy.

Im just praying my dr can see where Im coming from!
__________________
Kristin

Left Temporal Lobe Epilepsy
Keppra XR (3000mgs)
Carbatrol (400mgs)
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
Can Vimpat cause numbness? momof3boys The Kitchen 21 10-29-2012 02:23 PM
I have a question about numbness... momof3boys The Kitchen 4 03-20-2011 10:09 AM
numbness huskymom The Kitchen 2 09-09-2010 07:41 PM
leg cramps/numbness?? aboizd1 The Kitchen 6 08-18-2009 05:21 AM
Numbness and Epilepsy! blackstamp The Kitchen 8 10-20-2008 11:21 PM


All times are GMT -5. The time now is 09:32 PM.


Powered by vBulletin® - Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.