![]() | ![]() Free Advertisement |
|
#1
| ||||
| ||||
|
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." Last edited by tinasmom; 05-18-2008 at 06:35 PM. |
|
#2
| ||||
| ||||
| Did you have fun on the stroll? |
|
#3
| ||||
| ||||
| Yes, it was a great day. I'm trying to post the video from you tube that I made.
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." |
|
#4
| ||||
| ||||
| can't get the video here
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." |
|
#5
| ||||
| ||||
|
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." |
|
#6
| ||||
| ||||
|
|
#7
| ||||
| ||||
| Last year I was on our local cable channel talking about the stroll and Epilepsy. I also was in the newspaper regarding the stroll and my daughter's death. I am trying very hard here to bring up the awareness. I also thought that by posting this on you tube, people will see the faces of those that have this disorder.
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." |
|
#8
| ||||
| ||||
| I agree with you more people need to be aware of epilepsy. How old was your daughter when she died? I'm not trying to be nosey. Sorry to hear your daughter past away. I'm sure she was close to you. |
|
#9
| ||||
| ||||
| Tina was 24. I don't mind sharing this information, I have it all posted in my profile. It's because of her death that I am so involved now.
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." |
|
#10
| ||||
| ||||
| Sorry to hear she died at such a young age. I'm glad you're involved in wanting to help people with epilepsy. I'm glad to see people like you, I wish more people would be like you. More people wanting to help instead of taking. I have had two surgeries cause of mine. I have been on medication since I was little. Again sorry to hear you lost your daughter. |
|
#11
| ||||
| ||||
| Glad it turned out to be a good day for you Laura. Hawke, is there a E foundation near you? Maybe you could get involved.
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
|
#12
| ||||
| ||||
| Thanks for sharing the video Tinas Mum. I'm glad that it was a good day for you. Last edited by CQ:); 05-18-2008 at 10:25 PM. |
|
#13
| ||||
| ||||
|
|
#14
| ||||
| ||||
| Tinasmom~ I was so moved and impressed by your Youtube video that I decided to embed it into my blog. I hope you don't mind but it was just so inspirational. If you want me to remove or change anything please let me know. Great Job!
__________________ Our greatest glory is not in never falling but in rising every time we fall.~Confucius |
|
#15
| ||||
| ||||
| That's fine. I feel that the more exposure E gets, the better. I was inspired by someone on You Tube and made a video of my daughter also.
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." |
|
#16
| ||||
| ||||
| I am one of those people who just don't do the Youtube thing that much. But I was impressed by your video so I think I'll look for other videos that raise awareness of Epilepsy. I just want to avoid the seizure videos as I'm sure they would be troubling to my ten year old daughter.
__________________ Our greatest glory is not in never falling but in rising every time we fall.~Confucius |
|
#17
| ||||
| ||||
| This is the first time I posted on Youtube and I also created a My Space. I have watched some of the videos of seizures and they usually make me cry. I just want to jump through my monitor and hold them until it is over. I truly believe that God gave me this mission to help people with E, and it is love that drives me with God's help and direction.
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." |
|
#18
| ||||
| ||||
| It is good you're wanting to help people Laura. We need more people like you that's willing to help. May God bless you. |
|
#19
| ||||
| ||||
| I've been watching a few tonight and have been moved to tears several times. I feel that same "calling". Kind of like, "Oh, THIS is what I'm supposed to do." Upon finding out that my daughter had E. I felt very alone but because we've been so vocal about her condition we've had several people come to us and say, "My daughter..." or "My son..." I'm thinking of starting a support group here in our little "hick" town as a place for parents to come and not just talk about our feelings, but to share our experiences, compare notes...all the good stuff.
__________________ Our greatest glory is not in never falling but in rising every time we fall.~Confucius |
|
#20
| |||
| |||
|
| Thread Tools | |
| |
| | ||||
| Thread | Thread Starter | Forum | Replies | Last Post |
| Bad seizure yesterday, should I be left alone at all | stringbean | The Kitchen | 8 | 05-11-2008 12:11 PM |
| Getting ready for stroll | tinasmom | The Kitchen | 3 | 04-27-2008 11:37 AM |
| Yesterday was HORRIBLE!! | mommyof3 | The Kitchen | 11 | 11-06-2007 04:05 PM |