Coping With Epilepsy The Enhancement Institute
10% off neurofeedback training for CWE members - Houston, TX
Neurofeedback Partner - Free Advertisement
 

Go Back   Epilepsy Forum > Peer Support > The Kitchen


Reply
 
LinkBack Thread Tools
  #1  
Old 09-28-2011, 06:53 AM
survivor's Avatar
Weaving the Community Fabric
 
Join Date: Jun 2011
Location: India
Posts: 318
Thanks: 104
Thanked 88 Times in 76 Posts

Question Responsive neurostimulation


I just read about RNS (responsive neurostimulation) and DBS (deep brain stimulation). Want to know more! How much effective these techniques are? Any body opted for these? Can we rank VNS, RNS and DBS?
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #2  
Old 09-30-2011, 12:38 AM
s10sleeper's Avatar
Weaving the Community Fabric
 
Join Date: Apr 2006
Location: Hays, Kansas
Posts: 186
Thanks: 35
Thanked 19 Times in 18 Posts
I have the Neuropace RNS, I was part of the pivotal trial. I had to go in yesterday for a replacement in fact, as the battery was dying. I do believe it has helped mine some, which is actually good as I have yet to ever find a medicine that has worked for more than a year. The implant has cut down a large abount of my epileptiform waves.

The people from neuropace have been great about everything, as I was one of their 191 guinea pigs. I do have to say that it is very tough, but I think most people have had even more luck than me. I am actually waiting on my records from the epilepsy center to see how much of an improvement I have had. I had it initially put in in February of 2009.

http://www.neuropace.com/trials/overview.html

Unfortunately it is currently closed to enrollment and we are now going through the long term trials to see what the effects are over time. I do believe that it will be a big breakthrough for a number of people as many of us are nonsurgical candidates.

It is a little painful for the week after, but if you can endure it it may just be worth it.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
The Following User Says Thank You to s10sleeper For This Useful Post:
survivor (09-30-2011)
Reply

Tags
dbs, rns

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
This Cannot Be Good (Tasering non-responsive peeps) Rae1889 The Kitchen 13 06-14-2011 08:09 AM
Responsive Neurostimulator (RNS) system Bernard The Kitchen 5 08-04-2005 08:31 PM


All times are GMT -5. The time now is 08:05 PM.


Powered by vBulletin® - Copyright ©2000 - 2012, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 © Measuring Up. ALL rights reserved.