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  #1  
Old 02-01-2008, 12:57 AM
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Join Date: Dec 2007
Location: Henderson, Nv
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Sasha update


HI all. Since Sasha'a last seizure, her neurologist is putting her on Topamax and we have an appointment for video EEG march 5-10 in San Diego. We are slowly weaning her off the Keppra. So far it's been a week of Topamax, and she's a bit aggressive and we've noticed that she can't remember things like the words to songs, names of characters or is mispronouncing words. I'm attributing it to the addition of new meds and once her body adjusts, she will hopefully be back to her self. Please keep your fingers crossed for us....
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Old 02-01-2008, 01:14 AM
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Super Moderator - Malfunction Junction
 
Join Date: Feb 2007
Location: Tampa Bay Region, Florida
Posts: 2,740
Hello again!

Yes - she's going through what they call
a "honeymoon phase" when the body begins
to become adjusted to the new anti-epileptic drug and
as the medication becomes titrated. And
indeed it can be very trying for everyone.
And we will keep our fingers crossed that
it will all work out!
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Old 02-01-2008, 01:24 AM
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Hey you live just down the road from me!
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"If you are going through hell, keep going."
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Work like you don't need money,
Love like you've never been hurt,
And dance like no one's watching.
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  #4  
Old 02-01-2008, 05:23 AM
Weaving the Community Fabric
 
Join Date: Nov 2007
Location: WV
Posts: 141
Yes, I know how new med adjustments can be.
I wish you the best!
Tammy
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Old 02-01-2008, 01:11 PM
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Join Date: Mar 2005
Location: Friendswood, TX
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Wishing all the best for Sasha.
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Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback

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Old 02-01-2008, 01:23 PM
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Join Date: Sep 2007
Location: Austin, TX
Posts: 1,170

Cool


It should settle back down for Sasha like Brainy says...but it might take a bit.

Hopin it gets better quickly for Sasha and you all!
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Music\auditory Stimulus and the Epileptic Brain...List of music/epilepsy related links...CWE Members can also visit Speber's Auditorium where they can vote on how different music affects them in simple polls.
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