Seizure last night bad/good thing?

[Loopy Lou]

After being to my docs yesterday, i'd been telling him that i was feeling pretty good and had managed to not fall over for nearly an entire week. Quite a lot of wobbles though.

Anyhoo, was soon eating my words last night. My own fault really - missed my meds the night before, and i'd had a couple of glasses of wine, and was up late watching movies with my brother.

One minute i'm watching Terry Pratchett, the next my mum's there asking if i'm ok and trying to get me to sit up.

Soooo.... that's the second time i've petrified my little brother like that.

I suppose at least now my mum has actually seen what my tonic clonic seizures look like, and she showed my brother what to do if i have a seizure like that again. At least she'll be able to explain to the neurologist next time i have an appointment.

Feeling sort of disjointed today and got a nice few bruises and an extra little hole in my cheek as well as a sore right shoulder/elbow/hand, but other than that i think i got off lightly.

Pfffttt... not even entirely sure this post makes any sense.

Just realised though that all of my tonic clonic seizures, whether they started when i'm awake or asleep, have been in the early hours of the morning, like at about 2-5ish.

Hmm.... Oh, and apparently i scratch/rub my head a lot when i'm coming out of it. My brother said that last time i had one in the nightclub, and i was doing it last night.

Well, it sucks and i feel crappy, but at least i'm getting a little more information now.

[Endless]

Having someone witness it to explain it is really helpful. But, I never think a seizure is a good thing!

I'm glad you are okay. Remember your meds, okay?

[Loopy Lou]

Nope, definately not feeling like a good thing. At least my mum did witness it though, though i'm not sure how much cos my brother said he ran upstairs to wake her up.

Gah. Just want to sleep but have to go to work. With any luck the people i support will just want to have a quiet night in.

I thought things were going so well too, before last night. Actually you've just reminded me that i need to put my meds in my work bag so i don't forget them, so thanks :P

[Cint]

Oh Loop Lou,

Sorry to hear of your bad night. But at least you mum and brother got a good awakening to what your body goes through every once in awhile, so that is good that they got to see it again.

Put those meds in your work bag so you won't forget again.

Hope you have a better day!

[douglas]

Just realised though that all of my tonic clonic seizures, whether they started when i'm awake or asleep, have been in the early hours of the morning, like at about 2-5ish.

sorry to hear of your seizure.

so what time do you take your meds? maybe the tonic clonic seizures are at 2-5am because the meds are wearing off? just a thought.

p.s. when you feel better, grab a pen and paper and interview the family members as to exactly what they saw and what happened. its will be useful to the neurologist.

[Loopy Lou]

I take my meds at 10am and 8pm.

I'll have a talk to my mum tomorrow when she gets back from work. We don't really talk about it much if i'm honest.

Been trying (again) to keep a seizure diary so i'll have to ask her what it looked like/how long it lasted and stuff. Heading to bed now. I've been exhausted and achy all day, but my brother is up visiting and i promised him i'd spend time with him after work.

Day off work tomorrow and David's heading home in the morning, so won't be doing much i think!

[valeriedl]

Get a pocket calender or a little note book and keep track of your sez. Write down when you have them (date and time), how long they lasted, what you did when it was going on and anything else that you think would be important that would relate to it so that you can tell your neurologist at your next visit.

I usually have my cell phone on me at all times and I can set an alarm to go off for each time that I should take my meds. This way incase I loose track of time it will always remind me to take them.

[Loopy Lou]

I usually have my cell phone on me at all times and I can set an alarm to go off for each time that I should take my meds. This way incase I loose track of time it will always remind me to take them.

The sad thing is that i actually do that and still forget occasionally lol. My phone's like my personal organizer :P Don't know what i'd do without it. Mostly it works, just the odd occasion where i might be busy and switch alarm off and then forget again til later.

[Endless]

My dog reminds me to take my meds. And now seizure tracker (www.seizuretracker.com) can be accessed using the browser on your cellphone. Though I usually have my netbook with me and there's almost always free wireless everyplace. For some reason seizuretracker organizes my thoughts when I'm not able to. Between my dog and my netbook, I'm good.

[Loopy Lou]

I have the full internet on my phone, but if they've done a simpler, mobile version, then it will save time on waiting for it to load!

At least i've finally noticed a decrease in partials i suppose.

[Billyboyboo]

Like others say, take your meds... I'm afraid not to take mine sometimes and take them early (my bad), I just don't want to seizure.

Billy.

[little fruitcake]

Sorry for your rough patch, Lou. Hope your feeling better. Cake

[valeriedl]

You have to remember to take your meds and to take them on time. Figure out something that will work for you, as I said use your cell phone or something else that will work.

Forgetting to take your meds isn't the same as forgetting to take out the garbage. Your meds HAVE to be taken and HAVE to be taken on time.

[Zoofemme]

Sorry to hear you had a sez Lou after things were going well. Hope your feeling better today {{{HUGZ}}}

[Loopy Lou]

You have to remember to take your meds and to take them on time. Figure out something that will work for you, as I said use your cell phone or something else that will work.

Forgetting to take your meds isn't the same as forgetting to take out the garbage. Your meds HAVE to be taken and HAVE to be taken on time.

I'm getting there. Thanks for your concern. Most of the time i manage just fine. It's when i work shifts or when i'm busy at work that is the problem. I've started taking mine at the same time (well, just after, cos otherwise i get confused) i dole out the medication for the people i support. Funny how i always remember theirs.

Thanks for all your replies guys. Makes me feel loved lol. Can't wait until all the dosages are finished with being changed. Meds have been changed every week for the last 4 weeks. Only 2 more weeks to go and i might be on more of an even keel.

[Nakamova]

I say this over and over -- in my experience, dosage changes should be really slow, much slower than the docs recommend. Unless there are extenuating circumstances, it can't hurt to go slowly, and tiny dose changes over a long-term help the body to adjust better during the process, minimizing seizure control issues and side effects. Rant.

Anyway, I hope things do even out for you soon, and that you feel better.

[Loopy Lou]

I'm coming off the lamictal completely, so i've been going up in keppra and down in lamictal every week. Currently i'm on 2250 keppra and 50mg lamictal a day, and then from monday its 2500 keppra a day. Hopefully that'll be the end of it.

[neilB]

Hi Loopy Lou,

I'm on 2500mg of Keppra and 400 Tegratol. Let me know how you feel on the Keppra! Good luck.

Neil

[Loopy Lou]

Thanks

The doc said he wanted to put it up further, or to ask my neurologist to add another one, but i said i'd much rather wait and let my body adjust, cos this could work fine for me. I have noticed a drop in partials. I used to get them a good few times a day, but only like 5-6 times a week lately.