Seizures and Amneisia

[JFloyd]

Ok I'm really new the forums and discussing seizures so please bear with me some of my terminology is a little off. My wife just got out of the hospital this morning she had been in there for 4 and half days but I’m going to go back a few days before this happened she had her tubes tied 2 weeks ago, we have a3 month old little boy, one of the places they went in to do the surgery had developed a staph infections so this prompted us to go the hospital. Now the first night we were in the ER they looked at the wound and drew some blood she had 2 seizures right after that so they kept us for a few hours and sent us home, the following morning (Thursday) she was a little groggy but she was in her right mind and knew people, from 7am to 10:30am she had 7 seizures, we called the ambulance and she had 1 on the way to the hospital, then another at the hospital, the next day(Friday) she had 5, then Saturday she had 3, Sunday none, and so far today none, but starting Friday morning till today she has no memory of who anyone is not even her own child, and she has developed a sever stutter. The doctors keep saying it’s the pseudoseizures and keep suggesting we see a psychiatrist can anyone help with some opinions or anyone had any of these problems or similar issues.

[ekuadam]

Sorry to here about your situation. Hope you can get help. The only amnesia like symptoms I have are right after the seizure when I don't really know who people are (it usually takes me around 20 minutes to come to). Although my memory seems to have gotten a little worse since I have had my last two seizures.

[JFloyd]

Thank you, thats the way she normaly is after a seizure it takes her about an hour or half hour she starts to notice people and coming around, she has had instances where she took a few hours or so to come around completly.

[RobinN]

pseudoseizures - ya right!

You have a cause and effect reaction going on here. Laser focus on what is going on in the WHOLE body and even if you have to use some meds in the meantime to keep her seizures controlled, do so. BUT.... keep notes < very important!

Remember seizures are only a symptom. If you are willing to do the difficult work... sometimes finding the cause can bring you positive results.

BTW - my daughter had three months of amnesia so I have some experience with this.... and it was NOT psychogenic

[MonkeyBoy]

Robin - Spot on! I love your comment about seizures being the symptom of something else.... that is what we realized very early and started looking for the reasons and the triggers. Removing them and treating with natural means brought great relief in a timely manner. Great advice!!!

[ekuadam]

After one of my most recent seizures my wife was at the hospital with me (this was while we were in Afghanistan as we are civilian military employees) and I was still disoriented. She was talking to me and I told her that I was going to leave her for the british doctor treating me because apparently I said that "she was more far along in her career than my wife". Other than that moment of being a smart@@@ to my wife I usually just have no answer to anyone's question except saying "no clue". Luckily my wife was understanding when I said the statement about the doctor, as if I would have said that at any other time she would not have taken it as lightly

[RobinN]

Quite a story ekuadam - my daughter has never shown signs of odd behavior except when she was medicated. Tell your wife it is a nasty side effect of the disorder. Unfortunately now, you have to make up a lot, since it takes 1000 +'s to make up for 1-
:o]

Thank you for your service even as a civilian employee. My son is USMC active right now, so I am sensitive to what you all give.

JFloyd - nutrition improvement has been a huge reason my daughter has raised her seizure threshold over time. This has included supplementing.

[Nakamova]

JFloyd --

A decrease or fluctuation in hormones following the tubal ligation could have triggered your wife's seizures. (High estrogen and/or low progesterone can be a seizure trigger). I recommend you ask her doctors about hormonal triggers and catamenial epilepsy, as well as possible treatment with natural progesterone.

And don't be shy about getting a second or third opinion. It sounds very unlikely that your wife's seizures are pseudoseizures (also called psychogenic seizures).

[JFloyd]

Thank you all for your thoughts and help im trying keep as many notes and thing of things that have changed or have been altered in any way so we can pass the info on to her regular neuroligist when we get to see him.

[valeriedl]

My very first seizure was so bad that I had to be put into a coma for a few days in order to stop it. When they brought me out of the coma I did't remember almost anything that happened from about 10 years before the seizure. I had no clue who the guy was that I was dating at the time. Actually I still don't remember him and it's been 9years now that I've had epilepsy.

When I was first having seizures I would forget anything that happened hours to days before hand. Even now it might take me awhile to figure out who people are, including my husband who I've been with for 8 years, or where I am after a seizure.