shad appt w/neuro today and my sz's R reducing

[Belinda5000]

My appt with my neurologist went well haven't had any seizure's this month.
I only had 5 last none in July and 4 in June.
I see him again in January.It seems that since he's increased my Clonazepam by 1/2MG it's done the trick by helping my seizures decrease.
I won't get my hopes up about my seizures staying decreased .

Belinda

[RobinN]

I won't get my hopes up about my seizures staying decreased .

Belinda

If you believe that... then it is most likely going to come true.

[haird18]

As they start changinging me to brand name I notive a differece of szs' I am having as many any more.
David

[Belinda5000]

Robin,
everytime I've gottne my hopes upabout my seizures decreasing or stating decreased.
Something happens to dash my hopes.
thats why I don't get my hopes up after more 40 years of it happening I've learned my lesson.

Belinda

[brain]

I've been on both brand and generics and
had seizure free periods for an extended
period of time; until my body developed a
resistance / tolerance to the medications I
was put on and then it all collapsed.

For a long time my team of Neurologists
couldn't understand why; but today my
Doctors do ~ it's because of my chemistry
and hematology and genetic.

Now I see it has got to be the most frustrating
part in the Neurology Department to work with
me with medications. While a few I have no side
effects or problems - but the issue remain is
"how long will this last?" One question that hovered
over my mind that I never did understand is why
they kept taking me off of something that was
working and putting me on something else that
would work for a short span or wouldn't work
and would almost always end up being right
smack back with Dilantin / Phenytoin with or
without Klonopin (Clonazepam). I always did take
whatever they laid out before me, and some of
them ... well, let's keep them buried (!) for I'll
never go to that cocktail mix again - ever!


PS: CONGRATS On your Seizures being reduced!