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Old 07-07-2008, 10:34 AM
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Sleep Schedule


Usually, I'm in bed by 10 - 10:30. Sometimes, I hit the pillow at 1 or two am.
Either way, I get nine hours sleep. Does this irregular pattern affect my threshold for having an epidsode?
Laurie
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Old 07-07-2008, 12:32 PM
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I was told for migraines... which are now classified in the seizure family, that you should keep a very similar schedule. Even if you have the luxury of sleeping in on the weekend it was suggested that you keep the schedule daily.

Now then, I never adhered to it, as I was always a night person, and my migraines were definitely connected to my hormones. Magnesium was what relieved my monthly headaches. I can trigger one by drinking wine, so I stay away from that treat.
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Old 07-07-2008, 01:13 PM
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Thans Robin


Originally Posted by RobinN View Post:
I was told for migraines... which are now classified in the seizure family, that you should keep a very similar schedule. Even if you have the luxury of sleeping in on the weekend it was suggested that you keep the schedule daily.

Now then, I never adhered to it, as I was always a night person, and my migraines were definitely connected to my hormones. Magnesium was what relieved my monthly headaches. I can trigger one by drinking wine, so I stay away from that treat.
Usually, keep a regular schedule but last night was up to 2am and when I woke up, groggy, the question crossed my mind.
Actually, sometime before my seizure, I gave up my passion for wine.Tried one taste, way after my first seizure, and my system said "Yuck!" How could something I used to love suddenly taste so repulsive?!!!
Always Laurie
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Old 07-07-2008, 01:55 PM
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Originally Posted by Laurie View Post:
Actually, sometime before my seizure, ...
Always Laurie
I don't remember your full background Laurie... have you only had one seizure or was this meant to have an "s" ?

I am sure that your distaste is similar to loving a food and being sick after having that particular food, and then having no desire to smell that food again.
So I would think....
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Old 07-07-2008, 03:56 PM
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As to my seizures


Originally Posted by RobinN View Post:
I don't remember your full background Laurie... have you only had one seizure or was this meant to have an "s" ?

I am sure that your distaste is similar to loving a food and being sick after having that particular food, and then having no desire to smell that food again.
So I would think....
Within the past two years, I've had two GMs where I sustained injuries (rush to the ER). I've been diagnosed having Temporal Lobe Epilepsy. My left hippocampal volume is 50% less than that of the right. temporal lobe epilepsy is a "mystery" more so than all other epileptic disorders. My neurologist said that throughout my life I could have been seizuring on a differnt levels. With temporal lobe epilepsy you can experience "out of body" sensations and extreeme "personality changes" and more of the odd... All of the former mentioned, I've been acqainted with (throughout my life) and have been diagnosed with having two psychological disorders. It's very likely that these "disorders" are attributed to temporal lobe epilepsy. I may have been dealing with a "brain" abnormality, not with "mind" bending diagnosis. I'm still trying to get to the bottom of this. A disturbing dilema.

About, too much... and becoming sick. I was too much of a fan of Pino Grigio! Terrible hangovers and despite them continued to drink. The taste still pleasant. After a year of sobriety, I took just a "taste" of the same wine and my system powerfully regected it. The same thing happened when I abstained from sweets. I had two bites of cake and then...off to the bathroom. So, I guess, the same applies. The body is a sensitive thing!
Always Laurie
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Old 07-07-2008, 04:12 PM
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problems with disruptions to sleep patterns
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Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback.

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We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners.
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Old 07-07-2008, 04:24 PM
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Off Topic:

I am just going to throw this out there, and you can decide whether or not I am a member of the peanut gallery or not...

Being that the body has the ability to adapt to many abnormalities, and can heal from many situations given the right environment... would you ever consider that your psychological disorders might possibly balanced through nutritional means? Including perhaps, larger doses than the RDA recommendations of vitamins and minerals?

There is a lot of new research out that through nutritional support many of these disorders can be put behind you.
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Last edited by RobinN; 07-07-2008 at 04:27 PM.
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Old 07-08-2008, 05:57 AM
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I'll speak to my neurologist about that


Originally Posted by RobinN View Post:
Off Topic:

I am just going to throw this out there, and you can decide whether or not I am a member of the peanut gallery or not...

Being that the body has the ability to adapt to many abnormalities, and can heal from many situations given the right environment... would you ever consider that your psychological disorders might possibly balanced through nutritional means? Including perhaps, larger doses than the RDA recommendations of vitamins and minerals?

There is a lot of new research out that through nutritional support many of these disorders can be put behind you.
For now I take C,E,A,Beta- Carotine, Zinc, Folate. I go over RDA amount with A. Between all my meds and vitamines after breakfast. I'm quite the sight! I keep a healthy diet and drink lots of water. But looking into alternatives is always a good thing.
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Old 07-08-2008, 11:30 AM
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I am throwing that idea out there, as perhaps this is your answer. Most doctors have little knowledge in the biochemistry needs, and are only focused on symptomatic relief.

You might do some research on Omega 3's, Taurine, and Magnesium. They are high on the list for brain support.
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Old 07-08-2008, 06:05 PM
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Originally Posted by RobinN View Post:
I am throwing that idea out there, as perhaps this is your answer. Most doctors have little knowledge in the biochemistry needs, and are only focused on symptomatic relief.

You might do some research on Omega 3's, Taurine, and Magnesium. They are high on the list for brain support.
Don't forget the B series vitamins as well.
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Old 07-08-2008, 06:06 PM
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Originally Posted by Wally View Post:
Don't forget the B series vitamins as well.
Hey! Look who "joined the party"!!!!!
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Old 07-08-2008, 07:48 PM
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Something else to consider......


Selenium.

For those of us that have the thyroid issue.......and selenium helps with that. In my case it's also more beneficial because of my gluten and lactose intolerances....
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Old 07-08-2008, 08:00 PM
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I was thinking if I only had $$ for a few bottles of vitamins which ones would I say would be the three top ones I would pick (you should see my vitamin cabinet), that I why I chose what I did.

I do think B is important, we use a B Complex and I also added Selenium to the mix.

I am trying to decide whether or not to reorder Adrenal Cortex or not. It was suggested that Rebecca's adrenal glands might be stressed and that tends to be a precurser to the thyroid. Especially since her hormones are out of balance.

Both Rebecca and I get nauseous when taking our vitamins on an empty stomach. It is a terrible feeling.
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Old 07-08-2008, 08:18 PM
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Yup,


I get the same feeling, Robin. I have to take most of my meds in the morning. To the tune of about 30 pills......

I'll probably PM you later......
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Old 07-09-2008, 05:45 PM
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Welcome Wally!


Originally Posted by Wally View Post:
Hey! Look who "joined the party"!!!!!
I take B-12 vitamin along with quite a few other that are good for my Epstein Bar condition. Zinc is also very good. Always Laurie
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Old 07-09-2008, 07:27 PM
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Quote :
Viruses may enter the body by a variety of paths. An invading virus should be subdued and immobilized by the immune system, lying dormant and harmless in the body. In the gut, certain agents of the immune system in the mucosal lining usually conquer any viruses. However, if the intestinal mucosa is damaged or is deficient this can leave an opening for a virus to be reactivated, get out of control and become industrious in the gut, and even spread to other parts of the body. The same doorway results from having a weakened immune system. This may force the immune system to constantly work at a higher level. It becomes overburdened on a daily basis, yet cannot completely destroy or subdue the virus.

A number of research studies have established various viruses are present in some children with developmental delays such as autism, and often accompany persistent digestive and health problems. Documented viruses include the stealth virus, herpes virus, measles, chicken pox, Epstein-Barr, and viral encephalitis. There is evidence that viruses can cause dysfunction in the brain and damage the protective coating, called myelin, around the nerves. This leaves the nerves exposed and susceptible to damage. Viruses are suspected as agents in many autoimmune diseases as well.

A basic therapy against such viruses needs to focus on the immune system: improving its ability to function, strengthening it, and enabling it to work at a more typical rate and manner in addition to eliminating the pathogens, if possible.

Enzymes, particularly the proteases, turn out to be an excellent therapy to use against a virus by working on several levels. Many viruses are surrounded by a protective protein film, something a protease enzyme can digest away. Eliminating this coating leaves the viruses unprotected and vulnerable to antivirals and destruction. There is also research showing how enzymes support the immune system helping it to more effectively work on problems in the body, including viruses.
Quote :
Improvement was generally seen in multiple areas of health and behavior at the same time. Even if there were some unwanted negative behaviors initially, there were positive improvements occurring at the same time. This is very consistent when introducing beneficial enzymes for some people during the initial weeks of adjustment. Improvements varied depending on the individual problems of each participant. The most notable and commonly reported improvements included:

12. Adults reported substantial improvement in well-being

However, it was very evident that the trials resulted in real, noticeable improvements which were helping the participants in their everyday lives. And this was positively impacting the immediate family and people in the lives of the participants - a significant increase in quality of life.
Quote :
A virus attaches onto a cell. Then, the virus inserts its DNA or RNA into the cell using the cell’s own resources to replicate many copies of itself inside the cell. This replication can happen in a short time, or over a long period of time. The virus may even hibernate or hide-out quietly in a cell for a prolonged time (latent over many, many years). At some point, the cell bursts open, killing the cell, and releasing the many copies of the virus which are then free to go out and infect other cells. The cycle continues.
http://www.enzymestuff.com/rtVirusStudyReport.htm
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