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  #1  
Old 10-17-2007, 11:46 AM
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sorry


. I'm kinda in denial .... my eegs except for one that im aware of has been normal today they have assured me tho that if i quit my meds it would be dangrous as they told me i am having seizure activity..having depression and other health problems stress has made me a little off ..... Im trying to keep it together but crack sometimes.... I want to apologizes to the admins and the board for freaking out... its just been one of those weeks...

I dont know whats wrong with me im just really trying to hard to figure all this crap out.....

I am sorry
love angel
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Old 10-17-2007, 12:13 PM
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That's OK. It can be tough at times (for everyone) to keep things in perspective. It sounds like you have a lot going on.
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New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

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Old 10-17-2007, 02:03 PM
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Angel its ok we want to help each other and keep each other safe and healthy.

We try to support each other ,but we are also aware its the net and its harder than in
person .

But believe me we all want each other to be healthy and seizure free ,but nothing comes over nite .

Wishing you the seizure free ,depression free , healthy ,happy life!!!!!!

((((hugs)))))
Riva
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Old 10-17-2007, 02:22 PM
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Angel:

Just hang in there, and stay in tune with your
Neurologist. Never be afraid to say I need help!
If you are experiencing depression, frustration,
or side-effects and aren't receiving anything
from your neurologist ~ You can ALWAYS phone
your PRIMARY CARE DOCTOR! After all he/she
is the "Head Honcho" of your well being; while
the other Doctors are just specialty Doctors.

Have you ever spoken with your Primary Doctor?
Discussed anything with them? If not, you
should. We are concerned about you, because
we care!

Are you aware that the Primary Doctor has the
power too to control your meds and change if
necessary, even the Doctor you are currently
seeing if he/she feels that they aren't treating
you properly.

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Old 10-17-2007, 03:09 PM
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Originally Posted by brain View Post:
Angel:

Just hang in there, and stay in tune with your
Neurologist. Never be afraid to say I need help!
If you are experiencing depression, frustration,
or side-effects and aren't receiving anything
from your neurologist ~ You can ALWAYS phone
your PRIMARY CARE DOCTOR! After all he/she
is the "Head Honcho" of your well being; while
the other Doctors are just specialty Doctors.

Have you ever spoken with your Primary Doctor?
Discussed anything with them? If not, you
should. We are concerned about you, because
we care!
I don't have a primary care doctor just my neurologist and my uroligest I called urology today they are going to see me tomorrow at 11:00am and i talked with person neurology about why I'm stressing... they informed me not to quit the meds .... im worried abut my kidneys right now more than my epilepsy..... i just have to adjust to taking meds and stop freaking out about it all... i want to be healthy drive get a job .... sometimes i go over board because i feel like everything comes crashing down all at once....

my neuros office is going to be helping me with cost of meds and trying to help to find some other options as i have no ins and we are running out of money... so i panic i guess and start trying to find excuses as to why i shouldnt take my meds... which is wrong ..... im not going to go to my neurologist today we all kinda worked things out on the phone they helped me to calm down..... just stress weve all gone through at one time or another I GUESS im just more verbal about somethings... dont know when to be quiet...

love angel

Last edited by angel; 10-17-2007 at 04:15 PM. Reason: took out city and names
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Old 10-17-2007, 04:01 PM
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Originally Posted by angel View Post:
I don't have a primary care doctor just my neurologist and my uroligest I called bend uroligy today they are going to see me tomorrow at 11:00am and i talked with dee at bend neurology about why I'm stressing... they informed me not to quit the meds .... im worried abut my kidneys right now more than my epilepsy..... i just have to adjust to taking meds and stop freaking out about it all... i want to be healthy drive get a job .... sometimes i go over board because i feel like everything comes crashing down all at once....

love angel
Indeed it can be stressful, and take a toll on
everyone. Where you want to pull your hair
out and you get to the point where you don't
even make sense. And like you said, You feel
like the world is all crashing down on you.

We all want to be healthy. We all want to be
normal. And oftentimes we sit there and say
"WHY ME? WHY COULDN'T IT BE SOMEONE
ELSE?"

People react to stress differently, for me, I
used to just sweep it all under the carpet
and pretended it didn't exist. I was in denial.
I didn't want to admit I had "it". I'd rather
tell people I was deaf than to say I had that
"e" word, or I'd just say I have a neurological
problem.

The hardest thing to battle with is - Letting
IT control YOU or YOU controlling IT?

We sometimes feel like we're fighting or beating
air and loosing. Or even beating a dead horse:




There is absolutely nothing wrong in posting a
post to say "I WANT TO VENT!". Trust me,
I've shed tears out of frustration. I've punched
my own pillow because I hate Epilepsy so much
and it's a stress reliever and you don't hurt your-
self .... TRY IT ... grab 4 or 5 soft pillows that
you sleep on and pound on them as hard as you
can on your bed and release it all off. It's ok to
cry. When my little son told my neurologist what I
would do sometimes, he smiled and said what I
did was fine, and he understood but I was a little
embarrassed that my little boy blurted that out
to him, but I was surprised that when he told me
that he's told his patients to do the same thing
to relieve the stress off; because it was safe and
it worked. But I would only be in there for about
10 minutes or less though.

I would feel better afterwards and moved forward
and get my other housework and things done.

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