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#1
02-05-2011, 10:08 PM
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started weaning 3 days before go down to keppra 500 am and pm morning of admission no keppra and only half a topamax (25mg) i usually take 500 am and 1000 pm of keppra and 50 topamax bid. i will be going to school being on monday, probably after having a whole bunch of nocturnals. and then on tuesday, im being admitted and they are taking me off meds. this shall be interesting.lol last time i went in for a video EEG i stayed on meds. this time will be different. im exhausted right now so my writing is a little weird
__________________ My brother said to me; "it's not fair, epilepsy and then lupus all in the same year, what else is coming? and why is it happening to you?" I said, "Everyone has crappy stuff to deal with in their life. The fact that it is all happening to me now, means that I won't have to deal with it later. I'm getting it over with."     |
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#2
02-05-2011, 11:16 PM
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| I hope things turn out good for your video EEG! I have mine scheduled for March 7th. I have no clue if they will be taking me off my meds. They really didnt tell me much, besides giving me a pamplet on what I can bring, and where to go. |
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#3
02-05-2011, 11:30 PM
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| I'm glad your weaning is going well, so far. The half life of Keppra is 6-8 hours, so it should be out of your system relatively quick - like within a couple of days. When you get to the hospital for your eeg they'll put you into a nice, padded bed with rails up at all times. So you'll be okay. AND you'll get to eat hospital custard, which we all know is the best thing in the universe. (I am not joking here - it really is good!) Let us know how you are doing as the days go on, okay? |
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#4
02-06-2011, 12:18 AM
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| Good luck with the weening. It took about 3-4 months to get my wife weened off the Tegretol. I was scared s***less, because she's been on it her whole life and the 10years I knew her. Everything went along as normal.  |
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#5
02-06-2011, 12:36 PM
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| thanks guys, i chewed part of my tongue last night so i already don't like the weaning but we will see
__________________ My brother said to me; "it's not fair, epilepsy and then lupus all in the same year, what else is coming? and why is it happening to you?" I said, "Everyone has crappy stuff to deal with in their life. The fact that it is all happening to me now, means that I won't have to deal with it later. I'm getting it over with." |
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#6
02-06-2011, 02:46 PM
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| Keep us updated! I hope things turn out great for you! |
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#7
02-06-2011, 03:06 PM
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| thanks
__________________ My brother said to me; "it's not fair, epilepsy and then lupus all in the same year, what else is coming? and why is it happening to you?" I said, "Everyone has crappy stuff to deal with in their life. The fact that it is all happening to me now, means that I won't have to deal with it later. I'm getting it over with." |
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#8
02-06-2011, 07:57 PM
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| small change in plans. after a LOT of seizures, my parents aren't letting me go to school tomorrow so we are just stopping by to pick up work. it doesn't matter that much but a little weaning goes a long way
__________________ My brother said to me; "it's not fair, epilepsy and then lupus all in the same year, what else is coming? and why is it happening to you?" I said, "Everyone has crappy stuff to deal with in their life. The fact that it is all happening to me now, means that I won't have to deal with it later. I'm getting it over with." |
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#9
02-06-2011, 08:21 PM
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| Have you had alot of seizures since youve weaned yourself off the meds? |
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#10
02-06-2011, 08:47 PM
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| not tonic clonic...yet but i have had sooo many patials and myoclonics as well as absences. im exhausted. but i also skipped doses accidentally during this past week which could be making this alot harder
__________________ My brother said to me; "it's not fair, epilepsy and then lupus all in the same year, what else is coming? and why is it happening to you?" I said, "Everyone has crappy stuff to deal with in their life. The fact that it is all happening to me now, means that I won't have to deal with it later. I'm getting it over with." |
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#11
02-06-2011, 08:50 PM
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| I know it's frustrating not to go to school, but you really do belong at home. You are safer there while weaning off your meds. Think of it as a nice vacation.... with books.... and with homework. Gosh, are you feeling okay? That's actually a lot of seizures to deal with. |
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#12
02-06-2011, 09:12 PM
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| Originally Posted by gr33nr0se  :
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#13
02-07-2011, 03:37 AM
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Good luck darlin', cuz I hate having to go off meds. It sucks a hill o'beans. And a chewed up tongue is worse, in my book at least. I'll be thinking about you!!!
__________________ "Twenty years from now you will be more disappointed by the things that you did not do than by the things that you did do. So throw off the bowlines. Sail away from the safe harbor. Catch the trade winds in your sail. Explore. Dream. Discover." Mark Twain |
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#14
02-07-2011, 08:11 AM
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| thanks guys. sleeping helps. i think i must've slept 14 or more hours last night lol.
__________________ My brother said to me; "it's not fair, epilepsy and then lupus all in the same year, what else is coming? and why is it happening to you?" I said, "Everyone has crappy stuff to deal with in their life. The fact that it is all happening to me now, means that I won't have to deal with it later. I'm getting it over with." |
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