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#1
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stopping medsI'm taking 500mg in the morning and 250mg at night any ideas to help me stop the meds you can send a private message or post here thanks angel |
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#2
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| That's something you should really discuss with your doctor. No one here knows your medical history like s/he does. In general, meds should be titrated down slowly - reducing the dosage slowly every few weeks until you reach zero.
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. Would you like to help support this forum? We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners. |
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#3
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i called my neurologist and left a message this morning around 8am .... ive talked to family members parents and others they all agree its best for me at this time. to quit the meds... my kidneys are more important.... |
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#4
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not to worried about that one ..... ive been in bed for about 4 or 5 days anyways.... not going to matter much... angel |
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#5
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| Angel when weaning off meds I dropped 1/2 tab every 3-4 weeks. Too fast you can have a withdrawel seizure. Riva
__________________ Riva's Memorial |
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#6
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i told her ill just reduce the dose of keppra 250mg at a time that im not going to take them anymore shes going to be calling me back ..... my parents and husband are going to be helping me if i need it.....i feel a little anxiety from not taking the klnopin nerves thats it.... like i said im on the couch ..... why is it so scary to tell your neurologist yu dont want to take meds that make me sick ? lol i feel like a damn little kid.... love angel |
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#7
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| Because they don't understand , when I lived in Montreal , the drs made fun of me for taking vitamins the NYC nuero perscribed. They said I was wasting my money. They were pharmacolgists. From my expperience with the top nueros in MTL , NYC they live in their pharmacological world and understand little else. The MTl drs stole my life from me and it was some fight to get it back. SO when it comes to epleptolgists,pharmacolgists , I have little regard for them. They have little regard for their patients and their needs. Riva
__________________ Riva's Memorial |
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#8
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Im 38 years old not a little kid and ive had enough |
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#9
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| I guess that depends upon your raport with him. When I left NYC I didn't renew my BCBS and I haven't seen a Nuero or epiletolgist since . You do whats good for you , YOUR AN ADULT. You can go for a second opionion or just do what you want . Or discuss it with your Dr????? And see how he reacts? Its your life ,your body ,your choice!!!!!! But find a substitute!!!!!!! Riva
__________________ Riva's Memorial |
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#10
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| Doctors are reluctant to wean patients off of meds unless there is another option in place to control seizures. Their first priority is ensuring that you get seizures controlled. I'm glad that you are communicating with your doc. I hope you can work out a plan that fits your needs.
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. Would you like to help support this forum? We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners. |
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#11
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| Angel, Please be very careful how you do this. You can end up in worse shape by stopping everything, even those meds of small doses, cold turkey. It's quite possible to go into status, or have major organ failure! If you insist on coming off meds, have your doctor assist you with a plan. NO COLD TURKEY!!! Please promise me this. I will be worried sick about you if you do!
__________________ Last edited by Birdbomb; 10-16-2007 at 07:44 PM. Reason: stupid keyboard! |
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#12
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#13
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#14
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| ANGEL: #1 - I've posted this in various forums and I'm going to post this again: NEVER QUIT OR TITRATE OFF OF ANY MEDICATION WITHOUT SUPERVISION OF YOUR DOCTOR. #2 - This is not a Medical Forum, we are not Medical Doctors here and cannot provide medical advisories; but we can provide medical information, news, and such the like when it becomes available via the resources. #3 - We are not Pharmacists nor do we deal with Pharmacology, although we are aware of the dangers that can result from such individuals who toys with medications whether it be anti-epileptic drug or recreational drugs or OTC or prescription drugs of other medical reason. We can only advise you to consult your Neurologist / Epileptologist ASAP. #4 - If you are experiencing such severe problematic and troublesome issues, then you need to either go to the HOSPITAL if your Neurologist / Epileptologist is not being responsive in a timely fashion. There is no reason to endanger your life. This is all the advisories we can give you. #5 - We cannot advise people to titrate medications or toy with their own medications nor can we advise people to experiment with such. Such practice is dangerous, not only to one's health but considering this being a public forum, people will get the wrong idea and think "it's okay to do it" when it is NOT okay to do it. You can kill yourself or critically endanger your own life. #6 - If you are NOT HAPPY with your current Doctor you are under no obligation to continue to see him or her. Go and search for another one who is more open and more available that you are more comfortable with. You should not feel like you "are in a closed box". I do not apologize to come across in a very harsh manner, but my deceased father was a Pharmacist and I do have some Pharmacology knowledge and I do know of such individuals who have "played around" with medications and I know what had happened to them - and I'll tell you right now where they are ... 6 feet under the ground! Last edited by brain; 10-17-2007 at 12:11 AM. Reason: added specifics |
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#15
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__________________ |
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#16
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| I have made my decision to lock this thread. No further discussions will be made and no new threads will arise from this. This thread is NOW CLOSED. |
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