KarenB
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Haven't been checking in for awhile, but just wanted to give an update that Jonathan (now age 11) has been seizure free for over 2 years now. :banana:
He had that horrible time in 2012, where he was having around 7 tonic-clonic and tonic seizures a day, and I didn't think we'd ever get out of the valley of the shadow.
His seizures are now completely :woot: controlled with the Ketogenic Diet and a very small dose (50 mg/day, which is considered non-therapeutic) of Zonegran. He was weaned off the Diazepam and Keppra 2 years ago.
We hope to be completely med free by the end of this year.
He had that horrible time in 2012, where he was having around 7 tonic-clonic and tonic seizures a day, and I didn't think we'd ever get out of the valley of the shadow.
His seizures are now completely :woot: controlled with the Ketogenic Diet and a very small dose (50 mg/day, which is considered non-therapeutic) of Zonegran. He was weaned off the Diazepam and Keppra 2 years ago.
We hope to be completely med free by the end of this year.