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#1
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Is it usual to wake someone from seizure when it just started? |
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#2
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| Hi something - welcome to our friendly group. I don't think that is common. Perhaps with a Psychogenic seizure you might be able to snap them out of one, but even with that type, it is the brain in control. I have read where somepeople talk gently with the person having the seizure, and afterwards the person says they have been able to hear the comforting words, but not be able to respond to them. I guess it is possible to shortchange a seizure event. I do not put anything past this disorder. It is nutty and obnoxious, and has a complete mind of its own. Do you want to share your story?
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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#3
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| Hi something, welcome to the forum. ![]() Usual? No, not in my experience or my understanding. Doesn't mean it can't happen though.
__________________ New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads. Would you like to help support this forum? |
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#4
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#5
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| Thanks for the warm welcome My sister has been diagnosed with left temporal lobe epilepsy from the EEG findings. It's not psychogenoc since all her symptoms concord with the EEG findings and has symptoms unusual for psychogenic. Like urinating during the seizure, the metalic taste, the déjà vu's jamais vus etc. She is very sensible to noise and light. During the first EEG (I don't have the results for the other two, which were used for the diagnosis), she has left temporal lobe slowing with the flashing lights. From what the neurologist said on the thid one (sleep depreved) there was the slowing then the spikes. So I assumed that of the frequency is increasing the amplitude which causes the discharge. I tested this on the basis that if I can increase the frequency and prevent more slowing just at the beginning it will prevent the spikes. It seems to work half of the time, pinching and position changing seems to work best. So my hypothesis is that in some form of epilepsy the spikes are a defense mechanism by the brain to fight against an anomalious slowing. This is concordant with the experiments on neurofeedback, when they attempt to increase the frequency and decrease the amplitude. So perhaps by increasing the frequency the same amount of energy can be released with less amplitude.
Last edited by something; 05-01-2008 at 11:24 AM. |
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#6
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| It makes sense. I am in a little shock those days, as I am sure I have epilepsy too, I never really paid attention to my déja vus, jamais vus, my never ending continous (as if progressive) memory decline, the metalic taste and weird smell which comes and goes and when I have it, it sound as if I already smelled it. I am constently hit without reason (light makes it worst though) having the buzz in my head depersonalization and losing sights for a moment. All her symptoms..., I just knew recently with my sisters diagnostic that it's not normal. |
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#7
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__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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#8
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| ryan said he woke or tryed to wake me up from a seizure, but when i come around a lot of the time, i would not remmbed and i end up shuting what are you doing. or talkingin my sleep. and not now i'm doing it. take care caz
__________________ When will life be nice and sweet to us with out epilepsy, i think not for a long time i will be allwyas on meds i been told that by my nureo |
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#9
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I've been told that I've had people talk to me, shake me, twist my arm, thrust needles in me - including between my nails, pinch me, slap me, pour water on me, put ice on me, I cannot remember what all - but many times I did not come out of it or if I did they would "see it in my eyes" which would be uneven, shifting, out of position, glassy, and as well as my skin would be pale, and every- thing else associated with it. And not to even mention sticking "smelling salts" up in my nose (ammonia capsules). Why? They (Medical Personnel) were trying to wake me up and get me out of the seizure mode. My (ex) husband used to yell at the Medics and Hospital Personnel for doing this to me, and they just did not believe I was having any seizure(s), or if I was coming out of it and in postictal stage, my speech would be slurred, just would not be in sync at all, but sometimes when the seizure starts my speech would go slurred or I wouldn't make sense; or if worse, if it was back-to-back seizures or SE. It was really frustrating for my (ex) husband to tell them (Medical) to KNOCK IT OFF. I had been diagnosed with Epilepsy but he didn't understand what THEIR problem was. I don't have any memory of this, however, after when I come to and coming out of it. For example, I never could figure out why the heck my toenail and fingernail was hurting like "hell" and why it felt like 'fire' and why they had shoddy little band-aid on me, and mind you, that H-U-R-T!!! Even though I was half in and half out my (ex) husband would tell me what all they did, and YOU WONDERED why I walked out of the Hospital many times and didn't stay there? HOW WOULD YOU LIKE IT IF ALL THESE THINGS WERE DONE TO YOU? I've had bruises on my arms and legs that were from THEM, and I've had redness on the side of my face, to which sort of embarrassed my (ex) husband because it made HIM look like HE slapped me, but he didn't, THEY DID. As for needles stuck on my body and worse in my nails, never knowing it until I came out of postictal - and in 50/50 in sync, never mind to the fact, it HURT, especially those in the nails, the black and blue would be there for as long as a few days to a week, depending on how thick of a needle they used. They told my (ex) husband that it was "Standard Procedure", I hated this, it seemed that they were hurting me more than the seizure(s) were itself; while true I have gotten injured by the seizures, but THEY made it worse! I never wanted to go to the Hospital, but of course, I was unconscious, didn't have much of any say-so. So there you have it, but that's all in the past. They do not do this anymore that I know of to my knowledge. |
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