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Old 03-07-2007, 06:23 AM
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what kind of sz!


hi all not been on here in a long time so hi to all

ok here goes this started summber 2006 it hapinds a lot when i wake up and start to feeling not right and feel a bit ill that something going to hapind cannot really expline

ok what i no or sort of i woke up feel mins later i start to shake and i now this is happing

sometime i go deaf i dont think when people talk to me i asnser back so it like my hold body cannot do anything all that goes on is shaking


i been reading on the net as far so far i have been told at the hostpal i am having

i have read the syons for Simple partial and it souds like that what is happing at time



caz xx
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Old 03-07-2007, 08:10 AM
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Hi caz, it's nice to see you here again.

Were the doctor's able to do any tests and make any determinations on your seizures?
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Old 03-07-2007, 11:50 AM
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Re: what kind of sz!


Originally Posted by cool1984 :
hi all not been on here in a long time so hi to all

ok here goes this started summber 2006 it hapinds a lot when i wake up and start to feeling not right and feel a bit ill that something going to hapind cannot really expline

ok what i no or sort of i woke up feel mins later i start to shake and i now this is happing

sometime i go deaf i dont think when people talk to me i asnser back so it like my hold body cannot do anything all that goes on is shaking


i been reading on the net as far so far i have been told at the hostpal i am having

i have read the syons for Simple partial and it souds like that what is happing at time

caz xx

Hi Caz!

Sounds to me that you are scared, and you are
trying to talk to them and you can't hear them
because you're having seizures (shaking),
and you don't know what to do.

Caz, what did the Doctor tell you what is going on?

I know this can be a scary thing going on.

(((((( hugs )))))))

Sharon
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Old 03-08-2007, 04:50 AM
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hi Sharon
thanks for your nice message!

well i start having seizure in novmber 2005 and i did not told in till octber 2006 but we new all that time that there where seizure i was having!

my first seizure i had was one day at college i was in halls and i did not feel well and i started in bed that day and about dinner time i woke up and start to shake could not stop this from happing "did not undedstared what had happind" and from that day on wards my arms hends legs would jark when i was in college and sometime it would make me really tiyed and i would end fall asleep lol"

so on going i was having them in my sleep few time a few i would say 4-6 could of been more in may las year i start going deaf at time getting hot and sart having seizure where i new wha was happing to me and there where really shaing

caz xx
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Old 03-08-2007, 11:21 AM
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Caz ...

I am just wondering, are you deaf now? Or just deaf
when you have seizures/shakings?

I have 2 types of problems, nerve damage and epilepsy,
my hearing was damaged by nerve damage at first, which
caused me to be slightly hard of hearing (I could hear but
just not at certain tones or pitches), then car accident in
1988 made me deaf overnight. So I am profoundly deaf
since then with 110-120 dB range... so I'm D-E-A-F!

I am wondering what College did you go or were you
going to? Gallaudet University?
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Old 03-08-2007, 11:25 AM
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hi i only go deaf at times when i have seizure

caz
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Old 03-08-2007, 11:56 AM
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Originally Posted by cool1984 :
hi i only go deaf at times when i have seizure

caz




That's no fun ....

Sounds like you have Reflex Seizures:
This is only a partial listing and not a full
listing - deafness / blindness is also part
of the Reflex Seizures (I experience temporary
blindness at times myself in the past)
http://www.ilae-epilepsy.org/Visitor..._seizures.html
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Old 03-09-2007, 03:33 AM
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can you expline this

That's no fun ....

Sounds like you have Reflex Seizures:
This is only a partial listing and not a full
listing - deafness / blindness is also part
of the Reflex Seizures (I experience temporary
blindness at times myself in the past)


caz xx
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Old 03-09-2007, 03:12 PM
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Originally Posted by cool1984 :
can you expline this

That's no fun ....

Sounds like you have Reflex Seizures:
This is only a partial listing and not a full
listing - deafness / blindness is also part
of the Reflex Seizures (I experience temporary
blindness at times myself in the past)


caz xx
OK On that webpage at the link above,
is only a partial listing - it's an educational webpage
that only provides "abstracts".

Reflex Seizures - which impairs: vision, taste,
hearing, touch, etc.

That's only a partial listing - not a complete listing.

Hope this makes it more clearer?




I have Startle Epilepsy for example - that is a Reflex
Seizure and it shows up on EEG - and it's related to
touch. But this is very rare I ever get this when I am on
anti-epileptic drug medication no matter what the dosage is, however,
when I am NOT on anti-epileptic drug, I seem very prone to get this.
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Old 03-10-2007, 04:58 AM
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yeah that clear
i do no when i am not on my e meds i have more seizure and if i mix them up they make me feel a bit ill

what meds are you on?

caz xx
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Old 03-10-2007, 10:12 AM
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Originally Posted by cool1984 :
yeah that clear
i do no when i am not on my e meds i have more seizure and if i mix them up they make me feel a bit ill

what meds are you on?

caz xx



Currently On:
Zonegran 500 mgs daily
(200 AM / 300 PM)
Klonopin 1.5 mgs daily
(.5 TID / 3x's a day)
Been seizure-free going on 3 months now

----------------------------------------

Meds I can take with no side effects:

Mysoline & Dilantin
Dilantin is currently the "spare tire in the trunk" because
it has caused atrophy of my teeth (ruined my teeth) after
long term usage - more than 15+ years

*** Dilantin is the back-up reserve in event if all
other anti-epileptic drug fails, because it works so well, even mono
while at 80% success (better than nothing) this is
something to 'fall back to' - I am trying to get off
of this ***

-----------------------------------------

Allergic to:
Phenobarbital, Tegretol/Trileptal
Bad Reaction:
Keppra

-----------------------------------------

anti-epileptic drug's that I can't take long term or side
effects will start to develop:

Depakote/Depakene, Felbatol, Lyrica
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Old 03-10-2007, 10:30 AM
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The best Cocktail ever was when Dr. Ted Franco had
was: (early 90s')

Dilantin 200 mgs TID
Mysoline 250 mgs BID
Depakote 125 BID
Phenobarbital 30 mgs TID
with Klonopin at night with 2 mgs

I was seizure free for almost 5 glorious years
and strangely, it was also the same time my ex-husband
also changed HMO that wouldn't cover my Neurologist,
but he closed his office when his father died, and he
quit being a Doctor.

They just never could get me back on this meds again
and I developed allergic reaction to Phenobarbital,
and everything just went haywire and they just ended
up leaving me with Dilantin alone.

COUNT IT - that's 5 Anticonvulsants - 5 anti-epileptic drug's!
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Old 03-10-2007, 11:32 AM
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hi at the momet i am on 1 med 2 in a morning 2 at night
i'm on lamictal 25mg 4x

i do feel i have had seizure last month or so becouse mean feeling not my slef what dont now what to do here any adive

caz xx
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Old 03-10-2007, 08:23 PM
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Originally Posted by cool1984 :
hi at the momet i am on 1 med 2 in a morning 2 at night
i'm on lamictal 25mg 4x

i do feel i have had seizure last month or so becouse mean feeling not my slef what dont now what to do here any adive

caz xx


Then talk to your Doctor and tell him/her how you are or
have been feeling, write a journal or a log or a diary -
even a notebook would do.

I am just on 2 meds and they're both working great
for me right now.

Will keep you in my thoughts and prayers Caz!
Hope you feel better soon!

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Old 03-15-2007, 04:05 PM
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hi i been to the doctors i'm what ur a mistry lol i not been around to much today i am off to bed i dont feel well

caz i expline more torrow
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Old 03-16-2007, 10:01 AM
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Hope you're feeling better soon Caz!
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Old 03-17-2007, 05:06 AM
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what should i do?

caz
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When will life be nice and sweet to us with out epilepsy, i think not for a long time i will be allwyas on meds i been told that by my nureo
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