what was your first tell tale sign something wasnt quite right ....

[jayde-101]

that lead to you going to the doctors ? and what was it that made them diagnose you as having epilepsy

im just curious

[nicholasscott21]

screaming out 10-50 minutes as dosing before reaching sleep, then auras, then convulsions
My fits are nocturnal

[epileric]

For me it was when I was between 3 & 5 years old, we were at the dinner table & I was telling a story then in mid-sentence stopped & stared off into space for about 30-45 seconds then came back to earth & picked up exactly where I left off in my sentence.

Of course it was my parents who knew something was wrong, I may not have even known it happened.

[Nakamova]

No warning signs, just a massive tonic-clonic out of the blue. Epilepsy diagnosis was confirmed by subsequent EEG.

[jayde-101]

hmm ive got the neurologist on the 22nd dec

[momof3boys]

I was dx'd with epilepsy at 18 months old. But my mom said I was having complex partial seizures prior, and her not knowing what they were at the time, didnt know they were actual seizures til I had a grand mal seizure at 18 months old. Thats when they said I had epilepsy and was put on medication.

[Screamy]

I fell off a bridge doing the care bear countdown and clocked my head off a rock, couple days later, laying on the top bunk in my room, starting having a grand mal and my Ma thought I was having a heart attack and called 911. YaY!

[Lunameower]

When I was 22 I woke up in an ambulance because I guess I had parked in the middle of a parking lot and someone just saw me sleeping there in my car, the last thing I remember before this was having an aura while waiting at the light to turn into the parking lot. I was diagnosed with diabetes ad even though a neurologist confirmed that the auras I'd been having since I was about fourteen were probably seizures, my doctor insisted that it was just diabetes related. Anyway about six months later my mom heard screaming from my room and found me having a full-blown grand mal which then my doctor put me on seizure meds.

[Dutch mom]

Myoclonic jerks in his sleep when my son was just a 1,5 years old toddler. He was jerking on one side, left arm up next to his head, head and eyes turned up to the left too. We recognized it to be possibly epilepsy because we have had a (Bouvier) dog with epilepsy, her grand mal seizures started out in a simmilar way. So we went to see a neurolgist. It took a whole year, several EEG's, home videotaping his seizures and a second opinion before he was diagnosed with epilepsy. About a 6 month later he was diagnosed with Lennox Gastaut syndrome. He had developped many other types off seizures by then.

[seizingbeauty]

My 1rst seizure was while I was in labor with my daughter. I was consious and shaking uncontrollably. They didn't realize it was a seizure right away, was shaking for over an hour before someone clued in to what was happening. My second seizure was a grand mal 3mths later. After many md's and repeated tests I finally found a doc who didn't say "Its just stress".

[elizzza811]

what was your first tell tale sign something wasnt quite right ....

Waking up with memory problems and being confused first thing was a big red flag. 'Dizzy spells' accompanied by a metallic taste in my mouth. Waking up not knowing what day it was (as in, is it Wednesday or Saturday?), not knowing what month it was on occasion (March or August?), not being able to remember one single thing I'd done the day before whenever I'd attempt to 'test' my memory during these 'spells', forgetting to pay my rent and not realizing this until a month later when the next month's was due and I happened to glance in my checkbook, running red lights on occasion and almost rear-ending drivers ahead of me (as if I'd 'spaced out') on days in which it felt as if my head wasn't 'draining' properly, going out with 4 or so errands to run and making the decision to return home after completing only one or two of them (felt as if too much was 'coming at me' at once - traffic lights, trucks, other cars, street signs, etc...), forgetting how to add, subtract, multiply, and divide, not being able to recall familiar phone numbers and even my own house number at times, wetting the bed (happened once), waking up suddenly and throwing up all over myself with only a second or two of 'warning' (nausea) and then taking a shower, only to find myself sitting in the kitchen a half hour later with wet tangled hair, damp clothing, and wearing the same puked-on clothes I'd removed before stepping into the shower, with no recall whatsoever of how I ended up in the kitchen.

and what was it that made them diagnose you as having epilepsy

Running my car off the road. All of these symptoms meant nothing until I crashed my car - only then did doctors take me seriously and start searching for answers.