what's the worst self-sustained injury youve suffered from a grandmal seizure?

[gigi]

Retrograde amnesia, lost 15 years of memory. (Status)

Chronic shoulder dislocations. Had 2 surgeries on left and 1 on right. Need artificial shoulder joints on both sides now.

Jake

===========================

Jake=epilepsy warrior!

I went status once in 03', and my memory stinks, and my personality is different now. My son has referred to me as eccentric. Okay by me! Why be normal?

[j.j.]

No injuries, but just the other night having a bath whilst in on my own(I know naughty) started to have a seizure,just lucky it didn't carry on to full one or could have been very serious. Scary thing is I don't loose consciousness but can't always move if a seizure starts and I was laid down, so aware of what might happen and thinking I must get out of the bath but not being able to. mmm interesting. Janet

[qtowngirl]

I second that gigi... Jake=epilepsy warrior!
Wow, inspiring when having a 'down' day and feeling scared about everything ahead. That is ALOT for one to go through... certainly a lot more than I have.

Not much in the way of injuries for me either, just swollen black tongues that wouldn't let me talk properly for a week, goose eggs on the head from hitting the floor, and bruises that you just went 'oh, okay' to because you don't remember hitting that body part on something. did get lucky though having a tonic clonic and driving into oncoming traffic and into a ditch on the other side - came out with only bumps and bruises.

And yeah Janet I can't move well if I'm having a partial either (too terrified/paralyzed), but I love my hot baths - I think all we can do is not bath when home alone? I say to hell with that though, tired of the control this always has over me.

[edepew151]

I had a tonic/clonic alone in my bedroom in the basement and when I fell, I landed with my neck on the edge of my futon. Luckily my mom found me, but I hadn't been breathing and she had to do CPR. I was in the hospital for 3 days and I had short-term memory loss for a week (that was SUPER annoying). I don't have any scars or anything, but now my bedroom has been moved next to my parents and I'm NEVER allowed to be on a different story of the house as everyone else.

[Jfpinell]

You sure that was CPR? Or just mouth to mouth breathing? I hope it wasn't CPR unless you had a heart attack!

[edepew151]

It was both. I wasn't very much alive. It was really bad.

[Jake]

Jake=epilepsy warrior!

Not hardly compared to some posts I have read over the years. Of course I can't remember them at the moment.

I went status once in 03', and my memory stinks, and my personality is different now. My son has referred to me as eccentric. Okay by me! Why be normal?

Between Status and the anti-epileptic drug's they do wreak havoc with one's memory don't they?

I love my hot baths - I think all we can do is not bath when home alone? I say to hell with that though, tired of the control this always has over me.
having a bath whilst in on my own(I know naughty) started to have a seizure

Yes, VERY NAUGHTY J.J. You gals that are bathing need to put a stop to that, PLEASE. SAFETY FIRST!! PLEASE get someone to be with you. You gals are much more important than a bath. Surly you can wait for someone to be with you. Drowning as I understand it is the #1 cause of accidental deaths and that includes the bath tub.

when I fell, I landed with my neck on the edge of my futon. Luckily my mom found me, but I hadn't been breathing and she had to do CPR. I was in the hospital for 3 days.

Sounds like your lucky to be with us. Shows how dangerous it can be to be alone.

Of all the injuries though I think the tongue and cheek biting are really the worst because they happen so often to so many. I've had approximately 13,000 tonic clonic's, thankfully my parents were taught to properly use a plastic seizure stick. When I did bite it my doctor gave my Lidocaine spray which also helped a lot.

Jake

[Jfpinell]

Oh it ain't just the ladies....I'll admit I've done it too. But darn it, when it's -20 out in the winter, I LIKE to sit in a nice warm tub. I can't always call someone at that time. (I've ended up getting help from 1 of those home care agencies in my area because of that, as well as other reasons such as balance lately and some back and shoulder problems. But I HATE having someone sit around or helping me in/out of the tub.

[petero]

Of all the injuries though I think the tongue and cheek biting are really the worst because they happen so often to so many. I've had approximately 13,000 tonic clonic's, thankfully my parents were taught to properly use a plastic seizure stick. When I did bite it my doctor gave my Lidocaine spray which also helped a lot.

Jake[/QUOTE]


wow Jake - 13,000 tonic clonic holy crap
I hope you're at least over 30 years old, and maybe twice that - otherwise we're talking like at least once a day - that must be unreal

[petero]

I second that gigi... Jake=epilepsy warrior!

hear hear!

[BigWill]

13,000 Tonic Clonics?? HOLY SH!T BATMAN!! Kinda funny because I have "only" had 13 and I absolutley couldnt fathom having 13,000!! I want to shake your hand or something lol

And I couldnt agree with you more on the tongue and cheek biting. Hurts so bad and it nags around for 3 or 4 days.

[petero]

>>And I couldnt agree with you more on the tongue and cheek biting. Hurts so bad and it nags around for 3 or 4 days.<<

it's weird, it seems I've never really done the tongue/cheek biting

[BigWill]

Man consider yourself lucky! Nothin worse than not bein able to talk right or eat right for a week.

[gabbyg2000]

I've broken my nose from falling concrete. I also seem to have a lot in the shower so I'll get many cuts and brusies from those. But mostly I just have severe black and blue brusies
gabbyg2000

[Jake]

wow Jake - 13,000 tonic clonic holy crap
I hope you're at least over 30 years old, and maybe twice that - otherwise we're talking like at least once a day - that must be unreal

Almost twice that I'm 58 actually.

I also seem to have a lot in the shower so I'll get many cuts and brusies from those. gabbyg2000

It's dangerous having them in the shower too.Too bad we can't choose when & were to have them. People have drowned in showers too. Much safer than bath tubs though. I remember hearing about a button or some device you held to cut off the water in case of a seizure and it would prevent being burned from hot water as well. Can't think of the
manufacturer now but will search for it later.

[gabbyg2000]

Almost twice that I'm 58 actually.



It's dangerous having them in the shower too.Too bad we can't choose when & were to have them. People have drowned in showers too. Much safer than bath tubs though. I remember hearing about a button or some device you held to cut off the water in case of a seizure and it would prevent being burned from hot water as well. Can't think of the
manufacturer now but will search for it later.

thanksthat would be really helpful because as you said i could drown which is not good!! that invention sounds like a good idea
gabby2000

[petero]

Almost twice that I'm 58 actually.

don't sweat the age
I was just sweating the MATH
you must have a couple T-Cs a day??
I've had maybe 4 "confirmed" ones ... two actually observed, and two obvious ones, w/ injury - other than that I have no idea

[petero]

[QUOTE=petox1970;130377]

Almost twice that I'm 58 actually.


don't sweat the age
I was just sweating the MATH
you must have a couple T-Cs a day??
I've had maybe 4 "confirmed" ones ... two actually observed, and two obvious ones, w/ injury - other than that I have no idea

well that's not quite accurate - ...but I do know that I'm confused by it all

here's to chugging along