what do you feel like?
My daughter (15 and recently diagnosed with temporal lobe epilepsy) has missed a dose of her Keppra on two occasions in the last 1 1/2 months. She did not have a seizure either time, but both times she described feeling "bad" and "off."
The first time we didn't realize she had missed her meds until after the fact, but she was complaining all day that she didn't feel well, and had a couple of "dizzy" spells. At one point at the end of the day she lay down on the rug on her bedroom and said "I just feel weird."
Yesterday she forgot to take her meds in the morning before school. We figured it out early in the day but I couldn't get it to her until mid-afternoon. She told me she felt weird all day, and by the time I picked her up she had a raging headache and looked really pale. After taking her missed pill (and an Advil) she felt totally back to normal about 3 hours later.
Can anyone relate? And is there a neurological explanation for the feeling of being "weird" and "off"? It doesn't appear to be an actual seizure (her cognition and awareness are fine) - but so many people seem to report feeling crummy before a seizure hits that it makes me really curious about what is going on. Is something building up in her brain - a kind of pre-ictal "proto-seizure"?
I know that a lot of this is still not fully understood, but was wondering if anyone had clues about this. It's the kind of thing I would love to sit down with her neuro and discuss over coffee, but I don't foresee that happening any time soon!
My daughter (15 and recently diagnosed with temporal lobe epilepsy) has missed a dose of her Keppra on two occasions in the last 1 1/2 months. She did not have a seizure either time, but both times she described feeling "bad" and "off."
The first time we didn't realize she had missed her meds until after the fact, but she was complaining all day that she didn't feel well, and had a couple of "dizzy" spells. At one point at the end of the day she lay down on the rug on her bedroom and said "I just feel weird."
Yesterday she forgot to take her meds in the morning before school. We figured it out early in the day but I couldn't get it to her until mid-afternoon. She told me she felt weird all day, and by the time I picked her up she had a raging headache and looked really pale. After taking her missed pill (and an Advil) she felt totally back to normal about 3 hours later.
Can anyone relate? And is there a neurological explanation for the feeling of being "weird" and "off"? It doesn't appear to be an actual seizure (her cognition and awareness are fine) - but so many people seem to report feeling crummy before a seizure hits that it makes me really curious about what is going on. Is something building up in her brain - a kind of pre-ictal "proto-seizure"?
I know that a lot of this is still not fully understood, but was wondering if anyone had clues about this. It's the kind of thing I would love to sit down with her neuro and discuss over coffee, but I don't foresee that happening any time soon!