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  #1  
Old 03-28-2010, 01:37 PM
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YouTube Video - "what not to do - epilepsy"


Back on March 24, 2010 someone uploaded a 1:07 (1-minute 7 seconds) long video onto YouTube, titled "what not to do - epilepsy". While watching the video it appeared, to me, that the actresses were insulting people who have seizures, rather than following with the title of the video. Then I checked to see if the person uploaded any other videos, and found nothing. So I signed into YouTube, and said in my comment. "Just so you know, seizures do not discriminate on who has them. Your friends, loved ones, and even you or your own children may experience seizures in the future. So do you want to continue the harassment, or rather be prepared to provide first aid to someone you see having a seizure?" The uploader’s response was, "it’s called WHAT NOT TO DO. it was for a presentation. relax. we're nursing students and were teaching ppl WHAT NOT TO DO and what they should do. so settle urself." With that, I posted another reply, which ended being flagged as spam. And then I posted a second reply, which also ended being flagged as spam. My first comment was, "NO, none of you 4 girls are nursing students. I noticed 4 things being done that should not be done, along with 1 step being ignored, for providing proper first aid to the person who's imitating the seizure." And in the second one I said, “Trying to flag my comment as spam. Sorry, but like I said, there are 4 things being done that should not be done, and 1 step overlooked, for providing correct first aid to the person who's imitating the seizure. And I bet none of you could guess what those things I caught.”

The link to the video is at

While typing up this message, I thought about creating another comment to post on YouTube about this video. This is what I said in my comment, "If your video is "for a presentation" and you’re "nursing students...teaching people”, then unless someone knows "what not to do", they'll have no idea about "what not to do" when they see someone having a seizure. So please, to prove you have respect for people with epilepsy, whether if it's your comments or uploading another video, inform people about "what not to do".

Now here's what I noticed while watching that video. About 23 seconds into the video when one of the four girls is imitating a seizure, there is a coffee table being ignored by not being moved away from the person who's imitating the seizure. Then about 25 seconds into the video, is when one assistant positions herself on top of the girl’s legs to hold them down; with another assistant turning the girl onto her back. Those are two things on the list of WHAT NOT TO DO. From 30 to 39 seconds into the video two assistants are trying to put what they call the "blue thing" into the girl's mouth. About 47 seconds into the video, the girl imitating the seizure turns onto her right side herself, one assistant immediately repositions the girl on her back, and another assistant repeats the process of holding the girl's legs down. As the girl is coming out of the seizure about 53 seconds into the video, she turns onto her right side again, and the assistants say and reposition the girl onto her back once again.

Without any added information pointing towards what should not be ignored and what not to do, people who watch the video will remain clueless unless they already know about providing proper first aid when someone is having a seizure.

Please share your thoughts and opinions about that video and what I've said here in this posting.
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Old 03-28-2010, 02:04 PM
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Agreed. It's pretty useless. It could have been effective if the video included a second version showing the same event with the correct response. As well as a set of lists:

When someone is having a seizure, DO NOT:

Put something in their mouth
Try to hold them down
etc...

DO:

Time the seizure (longer than 5 minutes means call 911)
Make sure the person is safely away from sharp objects/surfaces
etc...
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Old 03-31-2010, 09:52 AM
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Whoever has read over this topic, I checked to see what the status was about the video on YouTube, and here's what came up when I went to the website...

This video has been removed by the user.

So I, and one other person, were successful at getting sarahthepineapple03 to remove her video off of YouTube. I have a feeling she really didn't know "what not to do" anyway.
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Old 03-31-2010, 11:01 AM
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The user seems to be removed too.
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Old 03-31-2010, 11:48 AM
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Huh. Maybe someone else removed them - like You Tube.
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Old 03-31-2010, 12:15 PM
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well whoever got brains to remove it, thanks.

And thanks Batman for helping that out too.
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FALL SEVEN TIMES, STAND UP EIGHT- JAPANESE PROVERB
THEY SAY YOU CAN'T DIVIDE ANYTHING BY ZERO. IF YOU DIVIDE SOMETHING BY ZERO, YOU GET INFINITY. AND THE ONLY THING THAT IS INFINITE IS LOVE.
NEVER LOOK DOWN ON SOMEONE UNLESS YOU ARE HELPING THEM UP.
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Old 03-31-2010, 12:21 PM
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Ditto. Thanks, Batman. You struck a blow for truth and justice in the world this week.
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  #8  
Old 03-31-2010, 01:25 PM
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You need a domain you can call your own....
The batcave!
your an epilepsy internet crime fighter
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FALL SEVEN TIMES, STAND UP EIGHT- JAPANESE PROVERB
THEY SAY YOU CAN'T DIVIDE ANYTHING BY ZERO. IF YOU DIVIDE SOMETHING BY ZERO, YOU GET INFINITY. AND THE ONLY THING THAT IS INFINITE IS LOVE.
NEVER LOOK DOWN ON SOMEONE UNLESS YOU ARE HELPING THEM UP.
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Old 03-31-2010, 06:48 PM
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What I'd like to have is authorization with YouTube to be allowed to delete the videos concerning epilepsy that I've been flagging.
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Old 04-01-2010, 08:48 AM
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Write them and ask them. Since some postings could be interpreted as actually harmful to society, maybe they'd let you do it.
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Old 04-01-2010, 09:50 AM
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Great job Batman. Thanks for getting that off of the internet!
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