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| View Poll Results: ATONIC (aka Drop Attack) SEIZURES / ATONIC EPILEPSY | |||
| Affects me occassionally | | 12 | 52.17% |
| Affects me frequently | | 2 | 8.70% |
| My Atonic (Drop Attacks) are uncontrolled / poorly controlled | | 5 | 21.74% |
| My Atonic (Drop Attacks) are controlled | | 5 | 21.74% |
| Atonic (Drop Attacks) restricts me from doing things I would like to do | | 4 | 17.39% |
| I am on too many / too little medication(s) | | 4 | 17.39% |
| I am undergoing alternative methods | | 2 | 8.70% |
| I feel that Atonic (Drop Attacks) have ruined my life | | 3 | 13.04% |
| I feel that Atonic (Drop Attacks) isolates me | | 2 | 8.70% |
| I've been declared intractable / refractory | | 6 | 26.09% |
| Multiple Choice Poll. Voters: 23. You may not vote on this poll | |||
| | LinkBack (1) | Thread Tools |
#1
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ATONIC (aka Drop Attack) Seizures / ATONIC EPILEPSYHere are some partial quotes: ATONIC SEIZURES - Epilepsy Foundation Quote :
ATONIC SEIZURES by Epilepsy.com Quote :
Feel free to bring about any discussion as you wish, and you may click on the links above to learn more in details. |
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#2
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| The Poll is PRIVATE and you can vote as many options as it applies to you. |
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#3
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| I have Atonic Epilepsy, but they are so isolated, only getting them once in a "blue moon" insomuch that my Neurologists don't even heed to it anymore but when I was younger, I used to get them a lot. |
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#4
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| I still get them ocassionally. I hate when they do happen. I use to have to wear a helmet cause of them.
__________________ Have a good day. Hawke |
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#5
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| Only got them at the beginning. My progression was from atonic to absence to myoclonic to tonic clonic and back to myoclonic. The first few times i ignored them , thinking i must have tripped on something , because they always happened when i was playing football with my friends. Then one day i was stationary and just fell on my face and bust my lip. NOT a pretty sight. anyway, never got them after epilim.
__________________ Dr. Arvind Ramaswamy |
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#6
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How many sutures (stitches) have you had as a result from Atonics? I've had 4 places because of that, and plus a hairline fracture (don't ask), and several chipped front teeth. More "bops in the old noggin's", sprains, strains, bruises, and scrapes from these... *sigh* And most of mine were "on the move", and often I was playing sports when these attacks hit me, I don't think I've ever been "stationary" when the Atonic had struck, if I was, I don't remember .... (I do have sutures and other injuries from T/C's but those are different areas) Last edited by brain; 11-24-2008 at 12:07 PM. Reason: forgot quote |
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#7
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| Stitched my lip together(3) but otherwise no sutures. Plenty of deep cuts , but in the moronic world of teenage boys , these are merit badges - so no stitches. I have a NASTY cut on my leg that i didn't get stitched and wouldn't stop bleeding , and no one was at home to help. i took three band aids and put them tightly across the wound to appose the edges and wrapped a pressure bandage around it . A week later i have a wicked looking scar! Still think it looks cool
__________________ Dr. Arvind Ramaswamy |
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#8
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Stitched my lip together(3) but otherwise no sutures. Plenty of deep cuts , but in the moronic world of teenage boys , these are merit badges - so no stitches. I have a NASTY cut on my leg that i didn't get stitched and wouldn't stop bleeding , and no one was at home to help. i took three band aids and put them tightly across the wound to appose the edges and wrapped a pressure bandage around it . A week later i have a wicked looking scar! Still think it looks cool |
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#9
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| In the last year Lindsay has developed them. They are TERRIFYING to me. Lindsay's had E for 8 yrs and never got anything worse than a bruise here or there. In less than a year she's nearly broken her nose, fell down stairs requiring a CTscan and 6 staples in her head, and fell onto the hardwood floor on her face and broke her tooth requiring oral surgery. Linds won't wear a helmet so mom follows her around like a nut job. We are working on the drops. We are changing from Keppra (very slowly) to Depakote. Dep is supposed to be more helpful. We may try VNS. I need to look into it more. A neighbor, also an internist, had a son (he died 2yrs ago) who had lissencephaly. His seizures were very evil to him. Anyway he had a VNS. So I plan on talking to him. Also the neurologist gave me a name of a person in Buffalo that councils people about VNS. Since on Depakote (knock on wood and please let's not jinx), Linds hasn't had a drop. It's been 4-6wks now. Oh please no more......
__________________ Sixpack---mom to 6 kiddoes including Lindsay. Lindsay has unilateral schizencephaly, septo-optic dysplasia, optic atrophy, and seizures |
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#10
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__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. Would you like to help support this forum? We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners. |
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#12
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| Tags |
| atonic epilepsy, atonic seizure, drop attacks |
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| LinkBack to this Thread: http://www.coping-with-epilepsy.com/forums/f27/atonic-aka-drop-attack-seizures-atonic-epilepsy-5030/ | ||||
| Posted By | For | Type | Date | |
| Drop Seizures. Anyone have luck with any particular meds?? - The DIS Discussion Forums - DISboards.com | This thread | Refback | 04-22-2009 12:29 AM | |
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