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| View Poll Results: ATONIC (aka Drop Attack) SEIZURES / ATONIC EPILEPSY | |||
| Affects me occassionally | | 12 | 52.17% |
| Affects me frequently | | 2 | 8.70% |
| My Atonic (Drop Attacks) are uncontrolled / poorly controlled | | 5 | 21.74% |
| My Atonic (Drop Attacks) are controlled | | 5 | 21.74% |
| Atonic (Drop Attacks) restricts me from doing things I would like to do | | 4 | 17.39% |
| I am on too many / too little medication(s) | | 4 | 17.39% |
| I am undergoing alternative methods | | 2 | 8.70% |
| I feel that Atonic (Drop Attacks) have ruined my life | | 3 | 13.04% |
| I feel that Atonic (Drop Attacks) isolates me | | 2 | 8.70% |
| I've been declared intractable / refractory | | 6 | 26.09% |
| Multiple Choice Poll. Voters: 23. You may not vote on this poll | |||
| | LinkBack (1) | Thread Tools |
#1
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ATONIC (aka Drop Attack) Seizures / ATONIC EPILEPSYHere are some partial quotes: ATONIC SEIZURES - Epilepsy Foundation Quote :
ATONIC SEIZURES by Epilepsy.com Quote :
Feel free to bring about any discussion as you wish, and you may click on the links above to learn more in details. |
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#2
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| The Poll is PRIVATE and you can vote as many options as it applies to you. |
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#3
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| I have Atonic Epilepsy, but they are so isolated, only getting them once in a "blue moon" insomuch that my Neurologists don't even heed to it anymore but when I was younger, I used to get them a lot. |
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#4
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| I still get them ocassionally. I hate when they do happen. I use to have to wear a helmet cause of them.
__________________ Have a good day. Hawke |
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#5
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| Only got them at the beginning. My progression was from atonic to absence to myoclonic to tonic clonic and back to myoclonic. The first few times i ignored them , thinking i must have tripped on something , because they always happened when i was playing football with my friends. Then one day i was stationary and just fell on my face and bust my lip. NOT a pretty sight. anyway, never got them after epilim.
__________________ Dr. Arvind Ramaswamy |
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#6
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How many sutures (stitches) have you had as a result from Atonics? I've had 4 places because of that, and plus a hairline fracture (don't ask), and several chipped front teeth. More "bops in the old noggin's", sprains, strains, bruises, and scrapes from these... *sigh* And most of mine were "on the move", and often I was playing sports when these attacks hit me, I don't think I've ever been "stationary" when the Atonic had struck, if I was, I don't remember .... (I do have sutures and other injuries from T/C's but those are different areas) Last edited by brain; 11-24-2008 at 11:07 AM. Reason: forgot quote |
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#7
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| Stitched my lip together(3) but otherwise no sutures. Plenty of deep cuts , but in the moronic world of teenage boys , these are merit badges - so no stitches. I have a NASTY cut on my leg that i didn't get stitched and wouldn't stop bleeding , and no one was at home to help. i took three band aids and put them tightly across the wound to appose the edges and wrapped a pressure bandage around it . A week later i have a wicked looking scar! Still think it looks cool
__________________ Dr. Arvind Ramaswamy |
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#8
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Stitched my lip together(3) but otherwise no sutures. Plenty of deep cuts , but in the moronic world of teenage boys , these are merit badges - so no stitches. I have a NASTY cut on my leg that i didn't get stitched and wouldn't stop bleeding , and no one was at home to help. i took three band aids and put them tightly across the wound to appose the edges and wrapped a pressure bandage around it . A week later i have a wicked looking scar! Still think it looks cool |
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#9
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| In the last year Lindsay has developed them. They are TERRIFYING to me. Lindsay's had E for 8 yrs and never got anything worse than a bruise here or there. In less than a year she's nearly broken her nose, fell down stairs requiring a CTscan and 6 staples in her head, and fell onto the hardwood floor on her face and broke her tooth requiring oral surgery. Linds won't wear a helmet so mom follows her around like a nut job. We are working on the drops. We are changing from Keppra (very slowly) to Depakote. Dep is supposed to be more helpful. We may try VNS. I need to look into it more. A neighbor, also an internist, had a son (he died 2yrs ago) who had lissencephaly. His seizures were very evil to him. Anyway he had a VNS. So I plan on talking to him. Also the neurologist gave me a name of a person in Buffalo that councils people about VNS. Since on Depakote (knock on wood and please let's not jinx), Linds hasn't had a drop. It's been 4-6wks now. Oh please no more......
__________________ Sixpack---mom to 6 kiddoes including Lindsay. Lindsay has unilateral schizencephaly, septo-optic dysplasia, optic atrophy, and seizures |
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#10
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__________________ New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads. Would you like to help support this forum? |
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#12
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| Tags |
| atonic epilepsy, atonic seizure, drop attacks |
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| LinkBack to this Thread: http://www.coping-with-epilepsy.com/forums/f27/atonic-aka-drop-attack-seizures-atonic-epilepsy-5030/ | ||||
| Posted By | For | Type | Date | |
| Drop Seizures. Anyone have luck with any particular meds?? - The DIS Discussion Forums - DISboards.com | This thread | Refback | 04-21-2009 11:29 PM | |
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