Coping With Epilepsy Medikidz Comic Book Explains Epilepsy
Sponsored Advertisement
 

Go Back   Epilepsy Forum > Our House > Back Fence



View Poll Results: Has a cause been identified for your seizures? (Choose all that apply)
No. It's a big mystery. 68 38.20%
Maybe. We have some suspicions, but it's hard to know. 60 33.71%
Yes. There was an event, injury, or an illness/physical cause that caused my seizures. 39 21.91%
It's a confusing topic - I may have more than one cause, some we know, some we don't.. 26 14.61%
I don't care what the cause is, so don't ask me. 1 0.56%
I care what the cause is. I want to know. 42 23.60%
Multiple Choice Poll. Voters: 178. You may not vote on this poll

Reply
 
LinkBack Thread Tools
  #1  
Old 02-07-2011, 06:54 AM
Endless's Avatar
Super Moderator / Even Keel
 
Join Date: Feb 2010
Location: U.S.
Posts: 4,485
Thanks: 821
Thanked 1,224 Times in 949 Posts
Send a message via AIM to Endless

Question Has a cause been found for your seizures?


Hey, all. I was wondering how many of us know the cause for our seizures.

In my case, I have IIH (idiopathic intracranial hypertension), and we suspect the seizures could be from that. Hard to know. I also have multiple minor head injuries which might be contributing, too. Also hard to know. Also, we think my father had seizures, so it could be inherited. So, who knows?
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #2  
Old 02-07-2011, 07:07 AM
BuckeyeFan's Avatar
Super Moderator / Grandpa
 
Join Date: Feb 2008
Location: Ohio - Buckeye country
Posts: 1,909
Thanks: 13
Thanked 143 Times in 78 Posts
I have never received a diagnosis beyond idiopathic (unknown source). Though it would not make any difference in my life or treatment, I would be very interested in knowing why this developed.
__________________
Character is doing the right thing when no one is looking.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #3  
Old 02-07-2011, 07:10 AM
epileric's Avatar
Super Moderator / Spaminator
 
Join Date: Dec 2007
Location: Ontario, Canada
Posts: 4,386
Thanks: 306
Thanked 1,161 Times in 858 Posts
I was born with my seizures & they were idiopathic until I was 39 years old when they found a lesion on the hypothalamus of my brain.

By that time I couldn't really care what caused my seizures. It was interesting to know but made no difference in how they were treated or how they effected me.
__________________
"It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
The Following User Says Thank You to epileric For This Useful Post:
Aaleayha (03-01-2012)
  #4  
Old 02-07-2011, 08:26 AM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 13,106
Thanks: 537
Thanked 5,036 Times in 3,881 Posts
A concussion as a kid might have left me with a lower seizure threshold. But as to why I had a seizure 30 years later -- extreme fatigue, low blood sugar, and a ton o' aspartame in my system are my best guesses.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
The Following User Says Thank You to Nakamova For This Useful Post:
dkb547 (11-04-2012)
  #5  
Old 02-07-2011, 12:27 PM
Loopy Lou's Avatar
Venerable Voice of CWE
 
Join Date: Apr 2009
Location: Ballymena N.Ireland/Blackpool England
Posts: 2,042
Thanks: 286
Thanked 262 Times in 207 Posts
My MRI didn't show anything, but there's a strong genetic link on my dads side. An uncle on my mums side also has it, but I recently found out that my uncle wound up with epilepsy after being attacked.
__________________
Gach ir is sin nach glitter...
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #6  
Old 02-07-2011, 02:33 PM
momof3boys's Avatar
Venerable Voice of CWE
 
Join Date: Nov 2010
Location: Nebraska
Posts: 2,285
Thanks: 422
Thanked 473 Times in 393 Posts
Well based on what my mom has told me, along with what my pediatric neurologist has said, it's possible its due to when I was about to be born. My heart rate when down to a very low rate right before I was born. The drs at the time, didnt think it was all that concerning, they just gave my mom some oxygen, and rolled her over to her side. But it didnt really help alot. My mom said my heart rate was down pretty low. Based on that, and from what they have seen when i was an infant, and then being offically dx at 18 months with E, my pedicatric neurologist said it could have been caused when I went for so long with the low heart rate and a low oxygen level.

They are not 100% sure, but its one theory they said could possibly be the cause for me having E. We've came up with no other reasons why I would have E.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #7  
Old 02-07-2011, 03:33 PM
Weaving the Community Fabric
 
Join Date: Dec 2009
Location: Illinois
Posts: 365
Thanks: 30
Thanked 61 Times in 54 Posts
My son is on the autism spectrum...about 30% of people with autism also have seizures of some sort. He is 11 and started having seizures at about 10 years old (many of the kids with autism have them by age 10 or so)

I think too many carbs cause him to have more seizures. Potatoes of any kind cause seizures, too.

My mom's brother had E starting at age 2 so their may be a genetic component???
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
The Following 2 Users Say Thank You to hootie For This Useful Post:
saul3903 (03-27-2011), stilldancing_98 (05-29-2011)
  #8  
Old 02-07-2011, 05:37 PM
Literophile's Avatar
Weaving the Community Fabric
 
Join Date: Jun 2010
Location: California
Posts: 416
Thanks: 207
Thanked 60 Times in 50 Posts
Send a message via Skype™ to Literophile
It could have been an illness I had or a surgery I had or even a tumor on my pituitary gland (we're still not sure I have one, but there is a lot of evidence that I most likely do). These all popped up at around the same time. Weird, but true. (Surgery: Mid November 2009, Illness: Late November 2009, Tumor: ???, Seizures: Early December 2009)
__________________
To array a man's will against his sickness is the supreme art of medicine.

Henry Ward Beecher
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #9  
Old 02-08-2011, 06:09 AM
Frink's Avatar
Joined the Party
 
Join Date: Oct 2010
Location: Maine
Posts: 43
Thanks: 1
Thanked 15 Times in 10 Posts
TBI from a motorcycle accident at 13, seizures started 2 weeks later.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #10  
Old 02-20-2011, 03:29 AM
Chel's Avatar
Weaving the Community Fabric
 
Join Date: Sep 2010
Location: Australia
Posts: 407
Thanks: 99
Thanked 131 Times in 107 Posts
"Maybe. We have some suspicions, but it's hard to know."

Mine started when I went off The Pill because I was found to be a high stroke risk when I had a CT and MRI for suspected TIA/stroke. The scans found temporal lobe atrophy instead. Turns out I was peri-menopausal, and The Pill was propping up my oestrogen levels.

Without the oestrogen, there weren't enough pathways to fire messages between the reduced neurons (reduced because of the atrophy). Ergo, instant dementia and seizure activity (temporal lobe epilepsy). Through HRT, we almost have the dementia back under control, but I'm a bit unreliable in the cognitive department.

Temporal lobe atrophy possibly caused by coeliac disease or a high number of infections. I was also a forceps delivery, but am missing a key injury for my brain damage to have been caused by my birth. My neurologist said many temporal lobe epilepsy patients can be traced back to forceps delivery.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
The Following User Says Thank You to Chel For This Useful Post:
LuminaryLucy (04-07-2013)
  #11  
Old 02-21-2011, 12:38 AM
New Here
 
Join Date: Feb 2011
Location: idaho
Posts: 4
Thanks: 3
Thanked 0 Times in 0 Posts

Angry infection


Had a dirtbike accident that shattered my femur and pelvis, did NOT sustain a head injury according to the hospital , but I DID develope bone infection from the surgery, seizures starts immediatly after that.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #12  
Old 02-21-2011, 09:00 AM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,865
Thanks: 170
Thanked 708 Times in 539 Posts
Send a message via Yahoo to RobinN
Rebecca's are due to a blood sugar imbalance. This has caused a hormonal imbalance.
Knowing this has allowed us to create a plan which involves working with nutritional changes. This has made the most improvement in her health and seizure threshold.
It definitely was important for us to know what caused her seizures. She is living a life med free and seizure free at the moment.
__________________
Robin

Neurofeedback - Rebecca's Story

Robin's Challenge

Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #13  
Old 02-21-2011, 10:00 AM
New Here
 
Join Date: Feb 2011
Location: idaho
Posts: 4
Thanks: 3
Thanked 0 Times in 0 Posts

makes sence


that makes alot of sence. when they were discharging me they also told me to see a nutricialist (simple partial) that I was malnurished? my protein were all wacky and protein was extremely low. So maybe if I can level those out , they would slow down, being I dont have insurance to see a neurologist and got denied for medicaid because there is more than $207 coming into my home for my sons and I.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #14  
Old 03-02-2011, 12:28 PM
Chris515's Avatar
CWE Supporter
 
Join Date: Feb 2009
Location: Winnipeg, Manitoba, Canada
Posts: 530
Thanks: 90
Thanked 192 Times in 90 Posts
Originally Posted by Chel View Post:
I was also a forceps delivery, but am missing a key injury for my brain damage to have been caused by my birth. My neurologist said many temporal lobe epilepsy patients can be traced back to forceps delivery.
Yup I'm a forceps delivery too. Damage to the right temporal lobe. My thanks to the doctor who didn't tell my mother that she needed a c-section and used forceps instead.. My mother still blames herself for my epilepsy, it's not her fault though. They didn't give her the decision to make.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #15  
Old 03-02-2011, 02:41 PM
Endless's Avatar
Super Moderator / Even Keel
 
Join Date: Feb 2010
Location: U.S.
Posts: 4,485
Thanks: 821
Thanked 1,224 Times in 949 Posts
Send a message via AIM to Endless
Thanks, Chris. I didn't put those two together. I was a forcepts delivery also. If there was damage, though, wouldn't they have seen it on my MRI?
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #16  
Old 03-02-2011, 03:13 PM
Chris515's Avatar
CWE Supporter
 
Join Date: Feb 2009
Location: Winnipeg, Manitoba, Canada
Posts: 530
Thanks: 90
Thanked 192 Times in 90 Posts
It's hard to say I guess.. they did see some scarring on my MRI though. But that may not be the case for everyone.

Every time I have a tonic clonic my mother apologizes to me, thinking it's her fault, over and over.. How can I convince her that it's not her fault?
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #17  
Old 03-02-2011, 03:35 PM
Endless's Avatar
Super Moderator / Even Keel
 
Join Date: Feb 2010
Location: U.S.
Posts: 4,485
Thanks: 821
Thanked 1,224 Times in 949 Posts
Send a message via AIM to Endless
I don't think you can convince her. She has to understand it in her own heart, in her own time. In the meantime, just telling her it isn't her fault - it's the doctor's - and telling her you love her and giving her a big hug will do wonders.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #18  
Old 03-02-2011, 04:36 PM
Chel's Avatar
Weaving the Community Fabric
 
Join Date: Sep 2010
Location: Australia
Posts: 407
Thanks: 99
Thanked 131 Times in 107 Posts
Originally Posted by Chris515 View Post:
they did see some scarring on my MRI though. But that may not be the case for everyone.
It might be scarring that's missing from my MRI & CTs. I don't remember it being mentioned, and I've had a thorough read of the reports. My neurologist said there was some aspect missing that indicated the atrophy was not caused by the forceps delivery. I was a tough baby to deliver, as I was two weeks overdue, and a 48 hour labour.

Mum's gynae went from hero to zero, when the neurologist said the forceps delivery may have caused all this LOL She's always thought of him as a god (all these years!).
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #19  
Old 03-04-2011, 03:26 AM
Meetz1064's Avatar
Super Moderator / Fantastico
Recent Blog: Kindness is

 
Join Date: Oct 2007
Posts: 3,771
Thanks: 101
Thanked 299 Times in 248 Posts

Well, mine


has been considered idiopathic, and I would LOVE to know the reasons for it. However..........there have been several family members on my mother's side that have had it over the past several (EXTENDED as in 5 or so) generations. Add to that, both sides of her family are notorious for migraines.

And, my seizures are nocturnal. But there are days that I wake up exhausted, which means one of them has been at work (except the t/c because I wake up in a different mental state altogether). I've noticed that since I've been diagnosed as a celiac, and stayed on the celiac diet, that my problems with waking up exhausted from any nocturnal seizure are pretty well gone. I think it's only happened once, or twice since then.
__________________
"Twenty years from now you will be more disappointed by the things that you did not do than by the things that you did do. So throw off the bowlines. Sail away from the safe harbor. Catch the trade winds in your sail. Explore. Dream. Discover." Mark Twain
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
The Following User Says Thank You to Meetz1064 For This Useful Post:
stilldancing_98 (03-22-2011)
  #20  
Old 03-22-2011, 07:18 PM
stilldancing_98's Avatar
Venerable Voice of CWE
 
Join Date: Jan 2008
Location: Lakewood, Washington
Posts: 1,870
Thanks: 418
Thanked 219 Times in 155 Posts
Chicken Pox when I was ten high fever but the docs think I probably had it before. It just took 103 temp to bring it out. My son was born with it. This week he got sick. He had just myoclonic seizures. Now he has had 2 uncousious seizures. Please pray.
__________________
Climb out on a limb, that is where the future is!
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
Eye Dr found something foreverdark The Kitchen 1 02-06-2010 10:40 AM
Pen-pal found me Crystal11 The Foyer 2 09-11-2009 06:43 AM


All times are GMT -5. The time now is 09:24 PM.


Powered by vBulletin® - Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.