Has a cause been found for your seizures?

[Superman1988]

No clue...I'm actually okay with not knowing.

[MuayThaiFighter]

So far the neurologist cannot find the seizure activity on the EEG but they seem to think a variety of problems led to my convulsions. Possible physical trauma to my head at a young age, because of frequent pain in neck. Possibly an old infection/fever. Doctors are still currently trying to find a physical reason. I have been instructed several times to get a lumbar puncture, yikes. Also still seeing a psychologist who stays in communication with the neurologist that prescribed my Keppra. Trying to rule of the psychological, which makes things even more complicated. So some answers but nothing concrete. God bless.

[Shelley]

possibly. My MRi showed that I am missing part of my cerebellum, and have a pineal cyst.
At least I don't have alzheimers. Just CRS.

[SQUIRT]

Its really crazy that 12 years ago I was 21 started the BC PILL and had my very 1st seizure. It was a horriable one flip floppin everywhere took off my clothes wandering around the house. They took me to the ER and when I came out of it I was confused as hell had no idea if I graduated HS I said I felt like I was dying cuz I had no memory and was so confused they took that as a threat to myself and stuck me in a 3rd floor for people that wanted to kill themselves. Now that I know a lot more on eplilepsy it was a seizure. So years went by never had anything again got off the pill cuz wanted to have kids and started have seizures. And for the last 3 years I have been a guinea pig with these meds. Praying that this new stuff works. I asked the neurologist if I should go back on the pill they said no. Any thoughts...

[epileric]

I asked the neurologist if I should go back on the pill they said no. Any thoughts...

Did you ask why not?

[SQUIRT]

No I didn't ...I guess that was really dumb on my part. Go back in a couple of weeks will jot that down as a new question to ask. It just seems really weird that all this stuff began with the pill...so for I am on carbortrol and vim pay and no seizures for a couple of weeks. I hope this new med works. I feel a lot calmer...but it could b me telling myself to let things go and it's no big deal if I don't get it done .

[Bhayes61]

Mine is tuberous sclerosis.

[Aaleayha]

"Maybe. We have some suspicions, but it's hard to know."

Degenerative Disc Disease. Has caused two bone spurs to grown in between my C3 and C4 vertebrae and are now trying to fuse together. Also my IV foramina is growing smaller. Those are the holes which the cervical nerves pass through the spine. Surgery might be able to fix the spurs but we don't think it will help the narrowing of the foramina. We also can't conclude that these are "the cause of my seizures" but they are causing a lot of other problems. ( numbness, weakness, tingling, pain etc in my entire left side. starting to affect my right as well.)

[davidmc]

Well it's funny reading one of my old posts in this thread where I was wondering about the possibility of a genetic abnormality causing my seizures - long since then I saw a genetics counseller much to my doctors annoyance - he didn't think I had one, a microarray test was arranged and we found I do have one.

I'm missing part of chromosome 18, bands 31 and 32 which is probably what is causing the seizures. So the genetics counseller is writing to the neurologists to tell them it wouldn't always show up on an EEG test.

Although I'm not even sure they know how to read them right, as first I get told it was completely normal, then non-specific abnormality, which I searched and maybe I shouldn't have, but they have got information wrong here before on many occasions even though it's meant to be the best neurology hospital in the North West, but it came up with partial seizures. Make your minds up.