How long have you had Epilepsy?

Ruth · #**161** 11-05-2009, 09:56 AM

Originally Posted by C0urt

:

i was reffered to a new neurologist here in cali, but they seem to have a two month wait

It will be worth the wait.

C0urt · #**162** 12-27-2009, 07:37 PM

Originally Posted by Ruth

:

It will be worth the wait.

I hope.
and i never posted it, it is has been a little over 2 years at this point.

Ruth · #**163** 12-27-2009, 10:10 PM

Hi COurt, I am surpised since I live in California, as well.

Have you called UCLA, UCSF (University of California in San Francisco)? I got into UCSF for free. They do research. AsK them?

C0urt · #**164** 12-28-2009, 03:29 AM

going to uv davis in sacramento, I was going there free. but my insurance got rescinded a few days ago. I am working on that

Katarn112 · #**165** 01-05-2010, 02:59 AM

6 months now. It seemed to have been getting better, but my seizures are just starting to get more frequent now. Wow, I can't believe it's been that long. I tripped and fell and my head slammed with force into a metal desk support beam. Shortly after is when the seizures began.

C0urt · #**166** 01-12-2010, 05:39 PM

Originally Posted by Katarn112

:

6 months now. It seemed to have been getting better, but my seizures are just starting to get more frequent now. Wow, I can't believe it's been that long. I tripped and fell and my head slammed with force into a metal desk support beam. Shortly after is when the seizures began.

wait till it gets to be a year, they sneak up on you.

Ruth · #**167** 01-13-2010, 02:10 AM

Hi Katarn,

I am very sorry that you had such a bad seizure. Whether it is six months or 66 years, it seems like a lifetime, each time you have a seizure. Some people have warnings, others do not. Sometimes I have auras and sometimes I do not.

I hope your doctor can get your seizures under control. There are alternatives to medicines here at CWE. Maybe you can check into those. When I was first diagnosed in 1949, medicines were just starting to come out (Dilantin). I had no alternatives to check into. Nutrition plays a big role, so does Neurofeedback. You can just press on Bernard's
blue alternative medicines and Neurofeedback. You will learn a lot.

Around the end of December, I had a seizure and fell down and hit the floor right on my head. For several days, I felt like my brain had broken in pieces. It was one of the most painful seizures that I have had.

My doctor had put me on pain pills for my back. I hardly ever take them. I did this time though.

lureswinger · #**168** 02-14-2010, 03:55 PM

Let me see how long have i had epilepsy ??????
Oh yes i remember its TOOOOOOOOOOOOO long lol

seriously its about 31 yrs

stilldancing_98 · #**169** 02-14-2010, 04:07 PM

Hey Lureswinger! me to! Welcome! I'm 44 now and I have had epilepsy since I was 10.I am glad you are here!

Ruth · #**170** 02-14-2010, 09:34 PM

Hi Lureswinger, welcome to our friendly forum. It was made by Bernard out of love for his wife Stacy. That love permeates throughout the whole forum.

I think I have repeated myself several times on when I have had epilepsy. Stilldancing, I did not know you are so young. I am ancient, 66 years old, have had epilepsy since I was 6.

crazychick10793 · #**171** 02-23-2010, 09:05 PM

they told me i was probably having absence seizures all my life, i started having grand mals at age 12, and just got diagnosed officially earlier this month. i'm 16 now

momof3boys · #**172** 01-20-2011, 06:08 PM

Drs think its been since the birth. I started having seizures when I was just months old, but my mom didnt know they were seizures at the time. It wasnt til I was around 18 months of age that I was offically diagnosted with Epilepsy. Since then, Ive been on medication, and one day hope to not have to take it!

Andrew · #**173** 01-22-2011, 06:47 AM

I had my first seizure at two weeks old. That's just over 40 years ago. I have been using vitamin B6 to control my seizures for almost 40 years. My medication now consists of B vitamins only.

Here is a thread that I started over at BrainTalk Communities: http://braintalkcommunities.org/foru...ad.php?t=36549

**DO NOT ALTER ANY MEDICATION WITHOUT YOUR DOCTOR'S CONSENT**

Elsie · #**174** 01-28-2011, 12:37 AM

48 Years...that I know of... is it in remission? Who knows. Not gonna test it. Been there done that, didn't work.

stilldancing_98 · #**175** 01-30-2011, 05:59 PM

Wow , I am almost 46 now. So do I get kudo's for this? lol

Screamy · #**176** 01-30-2011, 10:04 PM

17 years now

Alisonx · #**177** 01-31-2011, 06:17 AM

Was diagnosed at 15 so that's 6 years now. I'm on 200mg lamictal twice a day. It's better than at first as haven't had a clonic or tonic-clonic seizure in over a year but it's still not controlled as I still have absence and simple partial seizures

**Endless** · #**178** 02-01-2011, 06:40 PM

It feels like I've had it forever.

**epileric** · #**179** 02-01-2011, 06:48 PM

Originally Posted by Endless

:

It feels like I've had it forever.

LOL, gotcha beat...... I have had it forever (at least as long as I've existed).

lureswinger · #**180** 02-02-2011, 03:24 AM

beat all of u cos it feels like ive had it forever and a day lol

View Poll Results: How long have you had Epilepsy?
Since Birth	16	5.19%
Less than 1 year	29	9.42%
1-5 years	62	20.13%
6-10 years	30	9.74%
11-20 years	57	18.51%
21-30 years	46	14.94%
31-49 years	59	19.16%
50+ years	9	2.92%
Voters: 308. You may not vote on this poll

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