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| View Poll Results: Have you seen any media that reflects epilepsy? | |||
| Yes | | 13 | 52.00% |
| No | | 11 | 44.00% |
| I avoid media | | 1 | 4.00% |
| Voters: 25. You may not vote on this poll | |||
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#1
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Media Coverage reflecting epilepsyHave you seen the latest issue of Mad Magazine? The fake advertisement in its August issue reflects a person with epilepsy and a sarcastic, potentially harmful way to treat a seizure. Circuit City retracted the issue from its shelves.
__________________ __________________________________________ WARNING: Humor may be hazardous to your illness. -Ellie Katz |
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#2
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| Yes it was in very poor taste. But then Mad magazine hasn't been funny for a very long time. Maybe it's just funny when you are in grade school. I hope someone goes after them for it. |
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#3
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I'm torn between commending Circuit City for retracting that issue and writing to Mad Magazine for reflecting their poor taste of a difficult medical condition.
__________________ __________________________________________ WARNING: Humor may be hazardous to your illness. -Ellie Katz |
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#4
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| You can do both.
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback |
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#5
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| I just checked for the issue online and see the print magazine costs $5 now. Wow. Anyway, there is a preview of the magazine available that includes the parody ad (1.8MB .PDF file): http://www.dccomics.com/media/excerpts/10304_x.pdf Here's a screenshot: ![]()
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback |
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#6
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#7
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#8
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#9
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| After looking at the fake ad, I'm not sure there is anything to commend Circuit City on. The ad makes fun of them and if they even have this magazine for sale in their store (do they sell print magazines? I didn't think so), they likely pulled it because of that and not any concern for the way epilepsy was portrayed.
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback |
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#10
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| Apparently, the Epilespy Foundation has sent a letter to MAD magazine. This was reported in the EFA forums. No details on what the letter said.
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback |
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#11
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| This bad taste 'joke' reminds me of a Dutch campaign, 2 years ago, run by the National Epilepsy Fund Foundation in Holland. They do a new campaign for epilepsy awareness each year along with the annual fundraising week each official fundraising charity in Holland has. The media advertisments and tv spots were build around the slogan "There are scarier things than epilepsy", wich COULD have been a good slogan for spreading a particular educational message to the public: don't be afraid when someone has a seizure. COULD have been, because the campaign was illustrated with a sense of humor our particular group of parents could not appreciate at all. Epilepsy was compared in the media with "scarier things' like: men in leggings, a construction worker from the back with his pants showing his ass, false teeth in a glass of water, cigarette stubs on a dinner plate... Humor CAN be a good way to get attention, but is this the type of attention you want? Lauging about... one example: ![]() Parents of our group have kids with very, very scary types of epilepsy syndroms and see their kids suffer 10 to 100 seizures a day, we have to watch our kids retarding in development or become multiple handicapped, 14 parents of our group have lost their child. For us there are NO scarier things than epilepsy... And catching attention with tasteless humor is not the way to get attention for our problems. Many parents wrote to the foundation about their feelings for this campaign and some of us ended our memberships. The foundation realized we, parents to kids with devestating types of epilepsy, were a 'forgotten group', a group that felt offended by this campaign; they opened a special forum part to explain and discuss the campaign. Last year there was explicid attention for children and epilepsy syndromes... So they've learned from feedback
__________________ Mom of a 9-year old boy with ceberal palsy and the Lennox Gastaut Syndrome; succesfully on the ketogenic diet since juni 2004 and AED free Last edited by Dutch mom; 08-05-2008 at 06:03 PM. |
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#12
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| That ad is just bizarre. It's trying to lighten the stigma, but at the same time, it reduces the seriousness of epilepsy. It loses the entire point that there are so many types of seizures.
__________________ __________________________________________ WARNING: Humor may be hazardous to your illness. -Ellie Katz |
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#13
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| Has anyone tried click on to www.epilepsie.nl in the add or whatever it is with the man wearing the leggings? don't it sent me into a seizure because of flashing lights saying epilepsy. when I came out of it I rebooted my computer to get off the site. Belinda
__________________ (A)abort (B)fail (C)retry (D)throw computer against wall southern and proud of it. I've had a VNS since 2000 Last edited by Belinda5000; 08-06-2008 at 01:26 PM. Reason: correcting |
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#14
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| I just opened the site because of your post, but I don't see any flashing graphics except for one small 88x31 button. The frame rate on it is very slow.
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback |
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#15
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| go up to the ad where the man is wearing the leggings next to the car and below him in black is where u have to go to click on www.epilepsie.nl click on that not what I posted . message 11 Belinda
__________________ (A)abort (B)fail (C)retry (D)throw computer against wall southern and proud of it. I've had a VNS since 2000 Last edited by Belinda5000; 08-06-2008 at 02:06 PM. Reason: corected |
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#16
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| Got it. I've removed the link to the flashing site. Dutch Mom, why did you include a link to that site?
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback |
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#17
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#18
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#19
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| I'm sorry Bernard, didn't realized at all that I included a link, I just copied the add and did'nt know the link was working. I usually try every link I post to see if it works. The image is the same as the posters etc. that were used in Holland for the campaign and I googled it up to show an example (this campaign was 2 years ago.) Anyway, when I open the official website myself, I see nothing flashing, just like Bernard didn't when he tried the link Belinda posted. So I've tried the original poster again and I did see what you mean... Sorry, sorry, sorry Belinda!!!!! I really didn't realize because the link is just the same as the one I use very often to visit the foundations website. I don't understand how the same link can open in different ways.
__________________ Mom of a 9-year old boy with ceberal palsy and the Lennox Gastaut Syndrome; succesfully on the ketogenic diet since juni 2004 and AED free Last edited by Dutch mom; 08-06-2008 at 06:03 PM. |
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#20
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| I've send an e-mail about the flashing site on the poster to the website I copied it from and a CC to the Epilepsy Fund, with a request to disable the flashing link.
__________________ Mom of a 9-year old boy with ceberal palsy and the Lennox Gastaut Syndrome; succesfully on the ketogenic diet since juni 2004 and AED free Last edited by Dutch mom; 08-07-2008 at 04:36 AM. |
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