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View Poll Results: My epileptologist / neurologist is ...
one of the thousand points of light 54 46.15%
not a good listener, but cares 24 20.51%
very career oriented and busy 39 33.33%
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  #81  
Old 06-12-2011, 03:46 PM
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Ya when it's hot I have seizures I have T/c s when its hot. I am not on topamax any more. It did make me stop sweating. But I still would stink. How's that?lol it's good to get massage therapy during that time. It moves the toxins.My doctor did for me.
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  #82  
Old 07-23-2011, 03:29 PM
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Originally Posted by gr33nr0se View Post:
topamax made it ALOT worse for me. it stopped me from sweating and i had a small heat stroke during a big winter storm. i am still finding things that help me, but so far, i haven't found much. if you stay on topamax, DRINK A LOT OF WATER!!!! it may help because it will make you get rid of toxins that are being stocked up in your body
Thanks. The Topamax is not stopping me from sweating even though I have excessive sweating so could do with a decrease in sweating.
I already drank a lot of water before Topamax as I have excessive thirst (been tested for diabetes and thyroid problems, not got either).
Not got much choice but to stay on the Topamax at the moment till I see a decent neurologist or somebody that will actually prescribe something for the seizures so I don't have to stay on headache doses that aren't enough.
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  #83  
Old 07-23-2011, 03:51 PM
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welll i didnt see moron on the choices , so there you have it
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  #84  
Old 07-27-2011, 03:02 PM
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I have concerns about a neurologist of mine. She claims to be a specialist registrar in neurology in her letters to my GP, but I checked the GMC website and she is not on the specialist registrar!

Not quite sure what her qualifications are as they were not in English, I tried various translting websites without success. Does anyone know what "Lekarz 2006 Akademia Medyczna im Piastow Slaskich we Wroclawiu" means? Whatever that means that is her qualification. I searched her name (it is a unique uncommon name) and it was coming up with dentistry. ???!!!
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  #85  
Old 07-27-2011, 03:17 PM
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That looks like the school she went to http://translate.google.ca/translate...%26prmd%3Divns I haven't looked too hard but I saw no neurology course there.
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  #86  
Old 07-27-2011, 03:55 PM
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Originally Posted by epileric View Post:
That looks like the school she went to http://translate.google.ca/translate...%26prmd%3Divns I haven't looked too hard but I saw no neurology course there.
Thanks. The website is confusing my stupid brain but the fact that she says she is on the specialist registrar when she isn't is enough for concern, that is fraud in my eyes, and serious fraud at that.
I tried the Google translate thing and all I'm getting for her is doctor, the translation isn't great though. Just had a thought. I typed neurologist and neurology into the translator and translated it into Polish and it's none of those words. So she shouldn't be practising as a neurologist!
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  #87  
Old 07-27-2011, 04:01 PM
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I would double check everything, even ask whoever recommended her then bring her to the attention of the regulating body (college of physicians or neurologists)
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  #88  
Old 07-27-2011, 04:25 PM
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Originally Posted by epileric View Post:
I would double check everything, even ask whoever recommended her then bring her to the attention of the regulating body (college of physicians or neurologists)
I emailed her secretary but got an auto reply saying she is on holiday until tomorrow. I also contacted the GMC (General Medical Council).
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  #89  
Old 07-28-2011, 12:53 AM
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I ask every Dr. what personnally what school they went to, and why. They usually love to talk about it unless they are in a bit of a hurry. questions, questions, questions. Take care of yourself.
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  #90  
Old 07-28-2011, 03:47 AM
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Originally Posted by stilldancing_98 View Post:
I ask every Dr. what personnally what school they went to, and why. They usually love to talk about it unless they are in a bit of a hurry. questions, questions, questions. Take care of yourself.
There's no way my neurologists would tell me that information unfortunately.
Mine never want to even talk about medical problems, I thought a medical history was an important part of diagnosis, especially as I had a lump that in most cases causes seizures in later life (after age 15 and above), so it's no like it's not relevent, but I get comments like "It was superficial." because they can't be bothered to read it. I even hand them a sheet of paper with a one page paragraph detailing the lump and operation but still they can't be bothered to read it.
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  #91  
Old 07-28-2011, 06:32 PM
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Maybe, just try it. If he or she won't talk to the head nurse or the director of the clinic they are a part of.
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  #92  
Old 11-01-2011, 12:51 AM
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I'm with my 5th neurologist right now, my 2nd epileptologist. She has always been wonderful and we invited her to my wedding. I can tell you everything wrong with all of my other doctors.
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  #93  
Old 11-01-2011, 11:46 PM
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That's awsome.
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