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View Poll Results: What factors have helped you attain (at least some) seizure control?
AED Monotherapy (just one drug) 25 32.47%
AED Polytherapy (more than one drug) 36 46.75%
Diet (Ketogenic, MAD, LGIT, GARD/GFCF, MCT, etc.) 21 27.27%
Sleep regimen (and/or CPAP for sleep apnea) 27 35.06%
Neurofeedback 6 7.79%
Neurobehavioral Therapy (or techniques) 4 5.19%
Medical device (VNS, RNS, etc.) 5 6.49%
Brain surgery (Lobectomy, etc.) 6 7.79%
Other (explain below) 13 16.88%
Multiple Choice Poll. Voters: 77. You may not vote on this poll

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  #41  
Old 06-23-2010, 02:39 PM
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I know these things help keep my seizures under control:
  • Regular and ample sleep hours and naps when I need them
  • Eat on time
  • Take my medication exactly on time
  • Reduce stress
  • No alcohol

Who knows if the following helps because they don't seem to make a difference in my seizure frequency, but they are good & very healthy things to do so they can't hurt:
  • Take B, D, multiple vitamins, plus 5-HTP and magnesium
  • Eat a healthy organic vegan diet without additives and chemicals
  • Exercise my body a little every day, even if I'm dead tired and it's just a walk around the block
  • Exercise my mind a little every day, even if it's just a video game online because I can't remember where I am in my book and what it's about anyway
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  #42  
Old 06-23-2010, 11:48 PM
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  #43  
Old 06-24-2010, 06:52 AM
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I can't do 5-htp. It makes me very cranky, and it started to give me messed up skin on my back. I looked it up, and one of the possible side effects is sclerederma.
I drink lots and lots of water. Minimum of 64 ounces.
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Old 06-24-2010, 07:10 AM
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I did not notice 5-HTP. I should have read more carefully. I have never heard of it.

Shelley, are you still having problems with your skin from it?

I have to relax and avoid stress or I have seizures.
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Old 06-25-2010, 06:46 AM
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Originally Posted by Ruth View Post:
I did not notice 5-HTP. I should have read more carefully. I have never heard of it.

Shelley, are you still having problems with your skin from it?

I have to relax and avoid stress or I have seizures.
No, I quit taking it. My skin cleared up.
And, of course, avoiding stress at work when there are ding-a-lings who enjoy being stressors is tough.
I come home and exercise to relieve tenseness and stress.
I try to get restful sleep during my 7-8 hours of sleep a night.
I also drink lots of water.
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  #46  
Old 06-25-2010, 12:26 PM
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It sounds like you have a good plan to relax. That is great!!
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  #47  
Old 06-26-2010, 07:57 AM
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Yeah, but the ding-a-lings are (for whatever stupid, selfish reason) are stepping up their attacks. Unfortunately, the boss is one of the ding-a-lings.
Shelley
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Old 06-26-2010, 10:22 PM
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I am sick of drugs. I go into the Dr. on Tuesday. He wants to put men on Banzel. lol That's a joke. I am not take that drug.
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  #49  
Old 02-03-2011, 04:05 AM
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I've been


doing the meds, diet and sleep. I also work to de-stress as much as possible--though that has been a rough process as of late. But I'm getting there.
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  #50  
Old 02-03-2011, 10:19 AM
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prevention


one seizure med., diet, exercise, trying to contain the boogie man called depression that likes to force it's way into my brain and drops me into a dark hole. Also, being with family, friends, as I have a tendency to be reclusive.
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  #51  
Old 02-03-2011, 03:51 PM
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fatty foods, keep my blood sugar up.
certain things have homes like my glasses and my phone so i dont stress out look for them in the morning.

Last edited by C0urt; 02-03-2011 at 03:54 PM.
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