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#1
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3 Years gone
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." |
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#2
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We will be thinking of you, and Tina, on the 3d of August, Laura......... ![]() |
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#3
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| I was thinking about you and Tina just yesterday. I knew this date was coming up and was planning on getting a ballon to release. I will make sure to get three of them. This will be for Tina and all the others lost to E.
__________________ Character is doing the right thing when no one is looking. |
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#4
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| Thank you
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." |
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#5
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__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. Would you like to help support this forum? We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners. |
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#6
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| Laura -- My thoughts and prayers will be with you and your family. |
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#7
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| Sending prayers and thoughts your way. |
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#8
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| Thank you everyone for thinking of us on Tina's death anniversary. The neatest thing happened when we released the three ballons at the cemetary. As the ballons started rising, they stopped and then started circling together for a while. We just stood in awe and then they broke up and flew away.
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." |
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#9
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| Dear Laura, I've missed your post because I was on vacation July 30th. But I would like to let you know that your beautiful girl is in my thoughts. On our Dutch parental forum supportgroup we do remember each of our butterfly kids on the date we've lost them with a special poem and a picture. That's what I'd like to do for you too. The Butterfly You had her there, resting on the palm of your hand for a while. She was all you ever wanted. Sometimes her wings were closed. Motionless. At other times, she spread her wings open in the bright sunshine, displaying her colourful patterns. You truly loved her. She knew that. You told her she was special and wonderful, you saw her beauty. You appreciated her true colours. But you couldn't keep her. You knew that. She was born to fly. She had been beautiful in your hand, but in flight she soared. In the garden amongst the colourful, sweet-fragranced flowers. Her habitat. Free. In letting her go, you made her happy. But she will always remember your warmth and your love. Always and forever. For all of eternity.
__________________ Mom to an 12-year old boy with Lennox Gastaut Syndrome; on the ketogenic diet since June 2004 and AED free Being happy doesn't mean everything is perfect, it means you have decided to look beyond imperfection. |
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#10
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| Thank you Dutchmom for the beautiful poem. I would like to print this off and frame it if that is ok with you.
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." |
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#11
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| I just realized that this is the same day my nephew left us. We have had 5 yrs without him. I am going to send this poem to my sister. Hugs
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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#12
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Sure you can. I posted it for you, her dear mom, so you don't need my permission. It was not written by me but found by me, author unknown.
__________________ Mom to an 12-year old boy with Lennox Gastaut Syndrome; on the ketogenic diet since June 2004 and AED free Being happy doesn't mean everything is perfect, it means you have decided to look beyond imperfection. |
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