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#1
12-29-2009, 03:24 PM
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danjor I know Jordan would talk about this site alot. He said that you helped him with dealing with his epilepsy and even when he wouldn't post, he was always reading. It is, however, with a heavy heart, that I must inform that last week Jordan went to be with the Lord. He went into status epilepticus on thursday night while trying to go to sleep and passed away from what they said is Sudden Unexplained Death in Epilepsy that night at the hospital. It hurts me so much that this thing he had to deal with for a year, has taken his life. I'm sure he would want me to let you all know. You were all an inspiration to him to walk with his head high even when things didn't turn out the way he planned. Thank you..     |
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#2
12-29-2009, 03:33 PM
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Awwwwwww, **** Jen, I am sooooooo VERY sorry to hear of Jordan's passing. As a matter of fact, I was just scrolling through a posting that had something with one of his posts in it!! Please accept my deepest condolences. Jordan was, by all that anyone could tell here, such a sweet young man. We will miss him dearly.  Many hugs to you and your family. Meetz  Please see post below for addresses for cards. Last edited by Meetz1064; 12-29-2009 at 11:58 PM. |
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#3
12-29-2009, 03:42 PM
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| I noticed on my post I wasn't able to share pictures, so I was able to sign in under his name to share these.. And thank you meetz. We appreciate it very much. These are him and his girlfriend  His favorite pasttime, going to football games.  And this is his first time ever seeing snow.  Last edited by Meetz1064; 12-30-2009 at 10:58 AM. |
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#4
12-29-2009, 03:45 PM
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| I'm fairly new here, and I'm very sorry to hear about this. Billy.
__________________ Dreams are sewed together by sleepy stitches. DX with Myoclonic Jerks, Schizophrenia, and Partial Seizures. Had childhood seizures, but they still linger. |
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#5
12-29-2009, 03:49 PM
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| OH MY! Me and jordan would have some great talks! especially how he wanted to be a better boyfriend for his girl! I'm in a bit of shock. He was so young! and such a bright star to this site. He will be missed. I will light a candle for him tonight  <--- He would have liked this.  
__________________ FALL SEVEN TIMES, STAND UP EIGHT- JAPANESE PROVERB  THEY SAY YOU CAN'T DIVIDE ANYTHING BY ZERO. IF YOU DIVIDE SOMETHING BY ZERO, YOU GET INFINITY. AND THE ONLY THING THAT IS INFINITE IS LOVE. NEVER LOOK DOWN ON SOMEONE UNLESS YOU ARE HELPING THEM UP. Last edited by Rae1889; 12-29-2009 at 04:17 PM. |
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#7
12-29-2009, 04:22 PM
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| Jen, my heart goes out to you and your family. Jordan was a great part of the CWE community, full of compassion and generosity. He shared insights that were amazing coming from anyone, but especially so in a guy so young. I will miss him. |
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#8
12-29-2009, 04:32 PM
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| I am sorry for your family's loss. He always seemed full of hope, always yearning to move forward and beyond what he was going through. He will be missed.
__________________ "Complacency is a state of mind that exists only in retrospective: it has to be shattered before being ascertained." - Vladimir Nabokov |
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#10
12-29-2009, 05:29 PM
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| Nooooo! I'm so sorry to hear this news Jen. Condolences to you and your family. He was a such a bright spirit. Thank you for letting us know.
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. Would you like to help support this forum? We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners. |
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#11
12-29-2009, 06:38 PM
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| I agree with Bernard, Jordan was a bright spirit here at CWE. He came with his struggles, but he always worked at being supportive to others. I was beginning to wonder where Jordan had been, figuring that his studies had taken much of his time. I have a heavy heart hearing this news. May your family be blessed, and supported during the coming difficult days. Rest in Peace, Jordan
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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#12
12-29-2009, 06:54 PM
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| I am so sorry for your loss. I really felt an amazing connection to your brother. My own 16 year old son has a brain tumor and Jordan and I spoke of it. He was a lovely boy. One of his last posts seemed so hopeful and I'd heard such good things about vimpat. Is there anything he'd like us to do in his memory?
__________________ God Bless and Take Care Last edited by flinnigan; 12-29-2009 at 11:31 PM. |
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#13
12-29-2009, 07:29 PM
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| Jen and family... please accept my sincerest condolences on the tragic and sudden loss of such a wonderful young man. Even though I never got the privilege to converse with him on the forums, I do remember reading his posts and the support he gave to others. He will be sadly missed but never forgotten Thinking of you all xxx |
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#15
12-29-2009, 09:42 PM
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| Wow. I remember reading his posts and thinking what an amazing kid he was. My condolences to you and your family and may he RIP. |
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#16
12-29-2009, 09:58 PM
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| Jen, I am so so sorry to hear of the loss of Jordan. He was such an inspiration and always full of hope. My condolences to you and your family.
__________________ "The Golden Rule is that there are no golden rules." ~George Bernard Shaw |
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#17
12-29-2009, 10:52 PM
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15 It's sad when a young person dies. I knew form his posts that he wanted to drive, and be an average kid. He wound up being above average.
__________________ "The more I see the less I know for sure." - John Lennon |
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#18
12-29-2009, 11:14 PM
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You're so very right, Shelley. He was an above average kid. *sigh* This sucks. |
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#19
12-29-2009, 11:36 PM
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#20
12-29-2009, 11:55 PM
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Important note: I have the address for the family, if any of you wish to send a condolence card. However, to protect their privacy, I will not post the address out on the forum.....PLEASE PM ME, and I will send it to you. Many thanks, Meetz |
