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#41
01-02-2010, 11:43 AM
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 I think those pictures speak thousands of words for his fight against epilepsy. It did not hold him back. He lived his life to the fullest. Again, I send a great deal of sympathy to all who knew him personally.
__________________ __________________________________________ WARNING: Humor may be hazardous to your illness. -Ellie Katz Last edited by alivenwell; 01-02-2010 at 10:24 PM.     |
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#42
01-03-2010, 08:00 PM
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| Yes, his pictures spoke a thousand words. And then the words in his poem reached a thousand nerve endings. "You better slow down. Don't dance so fast. Time is short. The music won't last." Let this be our mantra in life...
__________________ Talent is helpful in writing, but guts are absolutely necessary Jessamyn West The Creative Writing Page http://www.coping-with-epilepsy.com/forums/f44/ Temporal Lobe Video http://www.youtube.com/watch?v=xpLZ3Cf2I_s Last edited by Cinnabar; 01-03-2010 at 08:04 PM. |
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#43
01-04-2010, 12:43 PM
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My condolences... Dear Jen, I don't know how to express my feelings of sincere loss. Jordan was such a fine young man. I'm a teacher as well, and remember reading his posts about dealing with E and being a teen. It brought back such memories. My heart goes out to you and your family. You and your family will be in my prayers. Susan
__________________ "Watch your words, for they become actions. Watch your actions, for they become habits. Watch your habits, for they become character. Watch your character, for it will become your destiny." Epilepsy 101 |
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#44
01-04-2010, 01:59 PM
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| Jen, I am so sorry! I don't have the words to truly convey my heartfelt sympathy to you and your family. I know that I am thankful for the time that Jordan spent here at CWE and he will be greatly missed! Cat |
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#45
01-07-2010, 08:39 PM
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| Well, here's an update on how things are going. His school held a HUGE fair for him/the epilepsy foundation tues-today. About 4000+ attended and in total we raised almost 15000 for the epilepsy foundation of LA. Everyone had loads of fun. His funeral was yesterday, our sanctuary was FULL and our sanctuary is rather big. He always told us he wanted his funeral to be a party, so after the funeral we went to the Oak Lodge and held a reception with good food, his favorite music, and loads of dancing. We thought this was how he wanted it. Instead of focusing on the death, to celebrate the amazing life he lived. I learned just the impact he made on people. Showing kindness to others. Whether they deserve it or not. Be a friend to lean on. Showing people that there is more to life than suffering and that there's a reason for everything. Thanks for everything you guys! |
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#47
01-07-2010, 08:59 PM
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| I am so very sorry for your loss.
__________________  Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone."  |
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#48
01-07-2010, 10:10 PM
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| Thats so beautiful Jen. I gave myself a "Hippo" party the week before my surgery - just in case. Bless you all.
__________________ God Bless and Take Care |
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#49
01-07-2010, 11:06 PM
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Wow Jen that is just too cool! I'm happy for you, and for everyone that's benefitting from the fund-raiser. It IS amazing how someone can touch lives the way Jordan has...especially at such a young age. He will be remembered here.. |
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#50
01-08-2010, 12:03 AM
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| Wish we could have been there for you Jen. Jordan has been on my mind and in my prayers every day. Watching the snow fall here today, I couldn't help smiling a little thinking about his picture with the snow. May God comfort your family. I am glad you could 'party' for him.
__________________ Character is doing the right thing when no one is looking. |
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#53
01-08-2010, 03:36 PM
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| hello, I don't know how many of you sent cards or things, but the family has moved to a new home. We just got dutch-mom's card. If you would like the new address please send me a message. Also for those of you who have already sent one, please let me know so we can be sure to get it. Thank you! |
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#55
01-19-2011, 10:55 AM
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| Just wanted to say that we havent forgotten about you buddy. Its been over a year since you taken. We all still miss you so much. Hope your having a good time up there kiddo!
__________________ FALL SEVEN TIMES, STAND UP EIGHT- JAPANESE PROVERB THEY SAY YOU CAN'T DIVIDE ANYTHING BY ZERO. IF YOU DIVIDE SOMETHING BY ZERO, YOU GET INFINITY. AND THE ONLY THING THAT IS INFINITE IS LOVE. NEVER LOOK DOWN ON SOMEONE UNLESS YOU ARE HELPING THEM UP. |
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#58
01-23-2011, 05:57 AM
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Matchu Send his sister, Jen, who's also a member here, a PM, and ask for a current address to send the painting to. I have an old address.......
__________________ "Twenty years from now you will be more disappointed by the things that you did not do than by the things that you did do. So throw off the bowlines. Sail away from the safe harbor. Catch the trade winds in your sail. Explore. Dream. Discover." Mark Twain |
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#59
11-30-2011, 05:44 AM
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| Still thinking of you buddy. Its been almost 2 years. You've probably got quite the set up in heaven. Just wanted to ask you to make sure that Speber settles in. We miss you both, and you were both very courageous. Hugs and Love, and always thinking of you!
__________________ FALL SEVEN TIMES, STAND UP EIGHT- JAPANESE PROVERB THEY SAY YOU CAN'T DIVIDE ANYTHING BY ZERO. IF YOU DIVIDE SOMETHING BY ZERO, YOU GET INFINITY. AND THE ONLY THING THAT IS INFINITE IS LOVE. NEVER LOOK DOWN ON SOMEONE UNLESS YOU ARE HELPING THEM UP. |
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#60
12-05-2011, 07:39 PM
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| Jen, thank you for supporting your brother. It's very rare that you have somebody who loves and supports you like that. It makes it a little bit easier. God Bless you and your family. And a big hug from me.
__________________ Climb out on a limb, that is where the future is! |
