Coping With Epilepsy Neurofeedback & Counseling Associates
10% off neurofeedback training for CWE members - Las Vegas, NV and Denver, CO
Neurofeedback Partner - Free Advertisement
 

Go Back   Epilepsy Forum > Our House > Riva's Memorial


Reply
 
LinkBack Thread Tools
  #1  
Old 11-23-2011, 10:50 AM
Shelley's Avatar
Sh3b3rts
 
Join Date: Sep 2007
Location: Austin, Tx
Posts: 1,132
Thanks: 56
Thanked 37 Times in 33 Posts

RIP Speber


I just got the news that Speber has passed.
Still shaking.
More news to come when I get word from another friend of ours.
__________________
"The more I see the less I know for sure." - John Lennon
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #2  
Old 11-23-2011, 11:01 AM
Dutch mom's Avatar
Super Moderator / Ketogenic Smile
 
Join Date: Dec 2007
Location: The Netherlands
Posts: 550
Thanks: 4
Thanked 87 Times in 69 Posts
Oh no, I am so shocked to read this. What happened? Was it a seizure that killed him?
Oh my what a loss, Speber was such a wonderful person. I will miss him.
Let's honour his auditorium. May he rock in peace. I won't forget him.
My deepest sympathy to his family, his friends and all of us here on CWE.



__________________
Mom to an 12-year old boy with Lennox Gastaut Syndrome; on the ketogenic diet since June 2004 and AED free

Being happy doesn't mean everything is perfect, it means you have decided to look beyond imperfection.

Last edited by Dutch mom; 11-23-2011 at 01:01 PM.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #3  
Old 11-23-2011, 11:17 AM
Rae1889's Avatar
Venerable Voice of CWE
Recent Blog: Update

 
Join Date: Sep 2009
Location: Winnipeg, Manitoba, Canada (a.k.a The Land Of Endless Snow!)
Posts: 2,488
Thanks: 594
Thanked 339 Times in 250 Posts
Send a message via MSN to Rae1889 Send a message via Yahoo to Rae1889 Send a message via Skype™ to Rae1889
Omg! That's so sad to hear! My thoughts are with his family!
__________________
FALL SEVEN TIMES, STAND UP EIGHT- JAPANESE PROVERB
THEY SAY YOU CAN'T DIVIDE ANYTHING BY ZERO. IF YOU DIVIDE SOMETHING BY ZERO, YOU GET INFINITY. AND THE ONLY THING THAT IS INFINITE IS LOVE.
NEVER LOOK DOWN ON SOMEONE UNLESS YOU ARE HELPING THEM UP.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #4  
Old 11-23-2011, 11:48 AM
epileric's Avatar
Super Moderator / Spaminator
 
Join Date: Dec 2007
Location: Ottawa, Ontario, Canada
Posts: 3,852
Thanks: 159
Thanked 720 Times in 606 Posts
I'm totally stunned. That's just so Awful!!

He was a great guy & contributed so much in a positive way.
__________________
"It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #5  
Old 11-23-2011, 11:52 AM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 7,590
Thanks: 206
Thanked 1,914 Times in 1,639 Posts
So sad. Please pass on my condolences to his family and friends..
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #6  
Old 11-23-2011, 11:54 AM
epileric's Avatar
Super Moderator / Spaminator
 
Join Date: Dec 2007
Location: Ottawa, Ontario, Canada
Posts: 3,852
Thanks: 159
Thanked 720 Times in 606 Posts
Likewise, please give my condolences as well to his family.
__________________
"It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #7  
Old 11-23-2011, 04:28 PM
Shelley's Avatar
Sh3b3rts
 
Join Date: Sep 2007
Location: Austin, Tx
Posts: 1,132
Thanks: 56
Thanked 37 Times in 33 Posts

Renee


His wife wanted to post, but she didn't know Speber's password. I will be the relay until she posts something.

His kids are hurting right now. I won't post their names, but if you know them, please contact them and say your condolences.
__________________
"The more I see the less I know for sure." - John Lennon
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #8  
Old 11-23-2011, 05:55 PM
Bernard's Avatar
Your Host
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 5,794
Thanks: 189
Thanked 705 Times in 309 Posts
Oh no!

Speber had not been very active as of late and I know the last time he was around, he had indicated that he was having difficulty with his seizures. I will try to contact Renee.

Newer members may not be familiar with him, but he was a great guy with a huge heart (gentle soul) and a fantastic sense of humor. The Auditorium will forever be his legacy here at CWE.

Very sad news.
__________________
New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads.

Would you like to help support this forum?
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #9  
Old 11-23-2011, 06:52 PM
tinasmom's Avatar
Esteemed Pillar of the Community
 
Join Date: Nov 2007
Location: Janesville, WI
Posts: 636
Thanks: 5
Thanked 1 Time in 1 Post
My condolences to his family. I will pray for them as they go through this time of loss. He will be greatly missed.
__________________
Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal

"I put my hand in your hand so you know that you are not alone."
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #10  
Old 11-23-2011, 11:16 PM
travel bug's Avatar
Weaving the Community Fabric
 
Join Date: Jul 2010
Posts: 304
Thanks: 78
Thanked 82 Times in 69 Posts
Speber was one of the first people I met on this site. He seemed like such a nice person, he patiently answered some pretty dumb questions I had brought up concerning music and seizures. His love and knowledge of music was amazing and inspiring.

My condolences to his family and friends as well as to those on this site who had the opportunity to know him better.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #11  
Old 11-24-2011, 12:15 AM
CQ:)'s Avatar
Venerable Voice of CWE
 
Join Date: Aug 2007
Location: Australia
Posts: 1,523
Thanks: 149
Thanked 138 Times in 104 Posts
Oh no that's sad .

I was only thinking the other day how I hadn't seen much from Speber for a while.

My condolences to his family
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #12  
Old 11-24-2011, 01:13 AM
TempusFugit's Avatar
CWE Supporter
 
Join Date: Jun 2009
Location: Kent, UK
Posts: 241
Thanks: 120
Thanked 62 Times in 42 Posts
Send a message via MSN to TempusFugit
Oh no My condolences are also passed to his family. He was such a lovely guy and I enjoyed reading his posts and threads he created. He will be sorely missed
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #13  
Old 11-24-2011, 07:50 AM
Shelley's Avatar
Sh3b3rts
 
Join Date: Sep 2007
Location: Austin, Tx
Posts: 1,132
Thanks: 56
Thanked 37 Times in 33 Posts

Speber


his seizures kept getting worse. I do know that he was hospitalized at least once for dehydration.

We are holding a memorial service for him at our (the band, friends and family) at our favorite restaurant. He didn't want anything sad.

It was like he knew,somehow. It was an odd topic, talking about having a farewell party, and not a sad, long drawn out funeral.

A video that I had posted for his band made the paper.

http://www.austinchronicle.com/blogs...er-berry-dies/


Went to bed crying. woke up crying. Still crying.
__________________
"The more I see the less I know for sure." - John Lennon
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #14  
Old 11-24-2011, 07:55 AM
Shelley's Avatar
Sh3b3rts
 
Join Date: Sep 2007
Location: Austin, Tx
Posts: 1,132
Thanks: 56
Thanked 37 Times in 33 Posts
__________________
"The more I see the less I know for sure." - John Lennon
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #15  
Old 11-24-2011, 08:04 AM
Shelley's Avatar
Sh3b3rts
 
Join Date: Sep 2007
Location: Austin, Tx
Posts: 1,132
Thanks: 56
Thanked 37 Times in 33 Posts
__________________
"The more I see the less I know for sure." - John Lennon
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #16  
Old 11-24-2011, 08:11 AM
BuckeyeFan's Avatar
Super Moderator / Grandpa
 
Join Date: Feb 2008
Location: Ohio - Buckeye country
Posts: 1,885
Thanks: 12
Thanked 99 Times in 60 Posts
This is so wrong. Speber is so full of life and love for his family. This is not fair. We had a lot of fun talking here at CWE.

For those of you who came here after Speber got back to his band and visiting here less, please go visit the Speber's Auditorium here. It will show you how kind, loving, and yes funny he could be.

I totally agreed with his theory that music can impact our epilepsy or at least help us deal with it.

Rest in Peace my Friend
__________________
Character is doing the right thing when no one is looking.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #17  
Old 11-24-2011, 08:14 AM
Shelley's Avatar
Sh3b3rts
 
Join Date: Sep 2007
Location: Austin, Tx
Posts: 1,132
Thanks: 56
Thanked 37 Times in 33 Posts

Best bass player ever


This song is called 20 days of rain.

__________________
"The more I see the less I know for sure." - John Lennon
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #18  
Old 11-24-2011, 08:20 AM
Shelley's Avatar
Sh3b3rts
 
Join Date: Sep 2007
Location: Austin, Tx
Posts: 1,132
Thanks: 56
Thanked 37 Times in 33 Posts

his song


This is one he wrote. Very laid back, Just like Speber.

__________________
"The more I see the less I know for sure." - John Lennon
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #19  
Old 11-24-2011, 10:26 AM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,643
Thanks: 86
Thanked 504 Times in 403 Posts
Send a message via Yahoo to RobinN
He may have not wanted "sad".... but I am extremely sad.
I use to find supportive PMs in my mail box from him. They brightened my day.
The funny little creature on his avatar, the great wit he shared.
There is definitely a cloud over my world today.
My prayers are with his family, and friends.
__________________
Robin
Neurofeedback - Rebecca's Story
Feedback Matters- blog
Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #20  
Old 11-24-2011, 06:21 PM
Meetz1064's Avatar
Super Moderator / Fantastico
Recent Blog: Kindness is

 
Join Date: Oct 2007
Posts: 3,678
Thanks: 87
Thanked 226 Times in 204 Posts
Send a message via Yahoo to Meetz1064

Ooooh, how sad


I loved hearing Speber's thoughts on music and how it impacted E. He was truly funny yet his ideas were provoking, too.

Condolences to his family--it will be hard for them, I'm sure. We here at CWE will miss him terribly, too.

Shelley, please let Renee and his kids know just how much we thought of him, and send our condolences on to them.
__________________
"Twenty years from now you will be more disappointed by the things that you did not do than by the things that you did do. So throw off the bowlines. Sail away from the safe harbor. Catch the trade winds in your sail. Explore. Dream. Discover." Mark Twain
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
Speber!!!!! Speber!!!!! Speber!!!!! Meetz1064 The Lounge 8 04-29-2008 11:20 PM


All times are GMT -5. The time now is 01:02 AM.


Powered by vBulletin® - Copyright ©2000 - 2012, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 © Measuring Up. ALL rights reserved.