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  #21  
Old 01-08-2008, 12:38 AM
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Thank you so much for the info. I will suggest that to Arielle. May God Bless you, s-j
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  #22  
Old 08-01-2008, 07:29 PM
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2 Candles for Tina




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Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal

"I put my hand in your hand so you know that you are not alone."

Last edited by tinasmom; 08-01-2008 at 07:38 PM.
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  #23  
Old 08-01-2008, 08:15 PM
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Thinking of you and your family
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And dance like no one's watching.
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  #24  
Old 08-01-2008, 09:05 PM
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{{{Laura}}}
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Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback

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  #25  
Old 08-01-2008, 10:25 PM
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I difficult time I am sure. My thoughts are with you. Take care of yourself.
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Neurofeedback - Rebecca's Story
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  #26  
Old 08-01-2008, 10:38 PM
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Thank you all so very much. She may be gone, but she will never be forgotten. I love you all!!!!!
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Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal

"I put my hand in your hand so you know that you are not alone."
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  #27  
Old 08-02-2008, 12:06 AM
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I just watched your video and now my monitor is all blurry.
It makes my heart ache for all the on-line friends I have lost to this insidious disorder.

May God bless you and your family.
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  #28  
Old 08-02-2008, 12:06 AM
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no matter the greif it may cause never let time allow you to forget all the joy and sunshine the special person brought into your life. with memories around the person is never really gone
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  #29  
Old 08-02-2008, 02:54 AM
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I wanted to say sorry for your loss. That made me cry that I can barely see the screen. It really touched my heart that song that I have never hear and also the poems. Just remember all the special memories. My heart goes out to you. God Bless!

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  #30  
Old 08-02-2008, 10:36 AM
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Tomorrow we will be celebrating Tina's life. We plan a day with Nicole that helps her to remember things she did with her mom. Last year we had a picnic at a park that Nicole and Tina used to go to and have picnics. Then we take balloons and flowers to the cemetary. We ask Nicole if she wants to let the balloons go or tie them there. Nicole has a pinwheel that she wants to take there this year.

With Nicole in our lives, we can never forget all the memories of Tina. I get to tell her about all the things that her mom did.

As for the song on the video, I heard this song shortly after Tina's funeral and knew it was God's way of saying it was all ok.

If you would like to help us celebrate Tina's life, you could simply let a balloon go tomorrow. We always tell Nicole that these balloons go up to Heaven.

Thank you again for your kind words.
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Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal

"I put my hand in your hand so you know that you are not alone."
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  #31  
Old 08-02-2008, 01:05 PM
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God bless you and your family! You will be in my thoughts and prayers. I can barely see the screen through all the tears. Take comfort in the fact that she is truly free fom this blasted disorder! ((((((HUGS))))))
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  #32  
Old 08-03-2008, 12:19 AM
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You have my sympathy and compassion for this difficult time. Tina is watching over you and Nicole.

I will release balloons in Tina's honor and contribute to the EFA. Hopefully they will find a cure for epilepsy once and for all.
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  #33  
Old 08-03-2008, 12:36 AM
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Alivenwell -

Thank you so very much. All of you have touched my heart and life so very much. I'm sure that you know, if there is anything I can ever help with just let me know. We're all here for the same reason.
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Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal

"I put my hand in your hand so you know that you are not alone."
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  #34  
Old 08-03-2008, 01:21 AM
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I, too, will be


thinking of Tina tomorrow.....and I'll also be releasing a balloon tomorrow, too.

Give Nicole a hug for me, please.

Hugs,

Meetz
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  #35  
Old 08-03-2008, 06:55 AM
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Thinking of you..


Laura,
I'll keep you in my thoughts and prayers today!

Michelle
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  #36  
Old 08-03-2008, 08:01 AM
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For Tina.



So, it may never happen again.
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  #37  
Old 08-03-2008, 10:20 PM
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My brother came from Washington so we were able to take him to the cemetary with us. He couldn't make it to Tina's funeral, but it was nice to have him here to help celebrate her life today. My two step-daughters and Nicole each released a balloon today at the cemetary. At first they all got caught in a tree and then one by one they got free. It amazed me that the one that said "I Love You" was the first one to free itself and take off.

Thank you everyone for remembering Tina today.
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Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal

"I put my hand in your hand so you know that you are not alone."
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  #38  
Old 08-04-2008, 01:43 AM
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Sorry I didnt have my camera at the time but went I to the beach and bought one by there at a gift shop and let it out for your family. I was so excited and touched that I did that. I hope everything goes well for your family. This touches my heart and I want you to know you are in my prayers. Take care and God Bless.
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  #39  
Old 08-04-2008, 06:11 PM
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Thank you ashmstng.
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Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal

"I put my hand in your hand so you know that you are not alone."
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  #40  
Old 08-05-2008, 12:02 AM
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Dear Tina...


Thinking of you and yours today.

Hope all your sadness fades away.
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Music\auditory Stimulus and the Epileptic Brain...List of music/epilepsy related links...CWE Members can also visit Speber's Auditorium where they can vote on how different music affects them in simple polls.
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