Boy, I'm tired of it now....

[TeeTees]

Well, I've gone from someone who haves seizure's only on the night-time to someone who haves seizure's at random !

I dunno what's going on lately, but I seem to feel as though I'm being dragged by the hair by the seizure problems I have at the moment.

Went down the gym last night as I hadn't had a seizure since last Thursday.....done a leg & tricep workout, and then jumped on the bike to do some light cardio work. As soon as I'd finished about 20 mins of cycling (easy cycling I'd like to add), bam !....I get an aura that I can only explain as "uh oh, here it comes". I make my way back to the changing room, and I can sense that there is a "man" trying to 'harm' me in the seizure, but my mind is telling me to get out of here and make my way to the toilet to get away.....which I did, and then it went.

Got home last night, and kinda relaxed although when I went to bed at 10:30 I had a problem getting to sleep. I then woke up early too !!...that doesn't help.

Went to work today, and completely blanked out any thoughts / feelings towards last night. What was done then, happened then - time to move on.

Had a real good day until about 4ish....I started to feel real tired. 4:30 I had to make my way to the toilet again, as I could feel an aura again. Off I went, and had a seizure ! Felt tired after, went back to my desk and just 'relaxed' until I left at 5:00.

Felt real depressed / p'd off to put it blunt, and explained to my parents what had happened. They're just as confused as to where my 'routine' seizure's have gone too.

Got on the computer to have a look around the internet as normal, and bam !.....I had another. I had pretty much full control over it as I knew what was gonna be required, ie. go to the toilet, which I didn't do - I kinda thought 'stuff it, I'm staying'.

But, there you go - two damn seizure's in one day.

This just doesn't happen, but I simply can't seem to find a way to get rid off it, or put my finger on what seems to be causing the problem. I just don't wanna go down the Doc's as all they'll tend to do is tell me to increase my medication - the last thing I wanna end up as is a zombie.

Sorry for the loooong post, I just needed to get it off my chest.

Hope you're all doing better than me right now.

[speber]

...that really bites. I hope that's the end of them!
Go see your doc when you can.

[BuckeyeFan]

I know that this sucks big time for you. However, you sure are tough! I probably wouldn't have been able to get to work this morning if I had one last night, let alone stay at work after another one.

Try to get some rest to stop this cycle. See the neurologist because this many in a row may have screwed up your medication levels.

Hang in there Tees

[RobinN]

I hope you are feeling better TT.
Can you see any connections in your journal as to why you are seeing changes in your patterns?

[Bernard]

Sorry to hear it TTs. Stacy went through a period like that too. It was tough "putting the genie back in the bottle".

[brain]

TT -

E suxs! When things are going so well
it's like ...




Then all of a sudden ... we get slammed,
and we're like "#(&#^#%$!!!!!!!!!!????"

I mean we were on a roll and my gosh,
who put the freaking breaks on it?



You have every right to unleash your
fury, frustrations, and weariness! It all
becomes 'old stuff'. It gives you more
and more reasons why to hate "E"!

((((( a lot of HUGS )))))

[TeeTees]

Well, thanks for the uplifting comments guys......I really could/and still can at times, do with it. Feeling on quite a low at the moment - can't pinpoint whether it's down the seizure's or the shear tiredness....woke up at a stoopid time this morning, AGAIN ! This tends to happen after every occurence...talk about a vicious circle huh.

Touch wood, so far Today I've been okay <hovering hand>.....still feeling shattered at the moment, so I'm currently spending most of my 'working' day in screensaver mode (it looks like I'm working when I'm actually just existing, if you know what I mean).

It's supposed to be gym night again tonight, and I'm feeling pretty peed about it as this is gonna be the second Thursday in a row that I'm not gonna be able to attend, as I've had a seizure the day before (which knocks me for six and tires me out). I think it's gonna be a bad decision if I go down the gym, and use up the little bit of energy that I feel I have....and boy, would I rather have the seizure's gone at the moment, than a healthy/fit body.

Anyway, I'm waffling on again, just wanted to say thanks to everyone for being a huge shoulder for me to cry on.

Love you all

xxx

[skillefer]

I know that screensaver mode oh so well.....I had a seizure last week that ended up with paramedics called, my sister in law freaking out, and me trying to get the paramedics to understand that no I did not want to be transported to the hospital. (I sometimes wonder if anyone ever actually reads the medic alert bracelets....*sigh*) Since then, my hubby has been my driver too. I think what actually triggered it was 4 nights in a row of lousy sleep due to coughing. Personally, I think you need to just stay home and relax tonight.

[TeeTees]

I know that screensaver mode oh so well.....I had a seizure last week that ended up with paramedics called, my sister in law freaking out, and me trying to get the paramedics to understand that no I did not want to be transported to the hospital. (I sometimes wonder if anyone ever actually reads the medic alert bracelets....*sigh*) Since then, my hubby has been my driver too. I think what actually triggered it was 4 nights in a row of lousy sleep due to coughing. Personally, I think you need to just stay home and relax tonight.

Hi skillefer,

Well, I've took your advise....as I type this, I'm sitting in my room at home, instead of working out down the gym.

I feel pretty gnarked about NOT going down the gym, but I'm pretty darn sure that if I went, the seizure monster would rear it's ugly head as my energy levels are at an all-time low tonight. So, feet up for me, and please Lord - give me a good night's sleep.

Your seizure experience sounds real dramatic compared to mine. We don't (or not that I'm aware of) have medic alert bracelets this side of the pond - I presume each different color relates to the 'state of emergency' to the paramedics ?....therefore they should've let you 'ride it out' ?

[alivenwell]

Hi skillefer,

Well, I've took your advise....as I type this, I'm sitting in my room at home, instead of working out down the gym.

I feel pretty gnarked about NOT going down the gym, but I'm pretty darn sure that if I went, the seizure monster would rear it's ugly head as my energy levels are at an all-time low tonight. So, feet up for me, and please Lord - give me a good night's sleep.

Your seizure experience sounds real dramatic compared to mine. We don't (or not that I'm aware of) have medic alert bracelets this side of the pond - I presume each different color relates to the 'state of emergency' to the paramedics ?....therefore they should've let you 'ride it out' ?

Sorry to hear about the streak of bad luck.

It sounds like a temporary break through seizure. It will take some time for it to all settle down. You're smart to take it easy for a while.

Could it be caused by a low level of meds? I experienced that after doing a really vigorous working (raising my metabolism too fast) and drinking too much water (washed meds out of my system).

The stress alone will take its toll. I love your terminology. Gnarked is such a unique word. It's an excellent description!

Maybe a blood level check is something to do now to see if anything has changed?

Good Luck! Keep us all posted!

[stilldancing_98]

I will tell you it does suck to have those seizures when you are working out. I used to work out all the time. Really tough workouts to. It was the oxygen. What I want to say is that I slowly worked up from walking hard into hard workouts again and kept ativan with me in case I got that feeling. Or just took one before I worked out . Now I am able to do it again. I know you can do it. What ever you decide to do. teresa

[Meetz1064]

TT---

Sweetie, I'm soooo sorry you're havin' such a rough time of it with your seizures! That just sucks! Take it easy for a few days, then slowly work back in the workout routine so that you don't make things worse, OK?

Lotsa luck, Meetz

[BuckeyeFan]

so I'm currently spending most of my 'working' day in screensaver mode (it looks like I'm working when I'm actually just existing, if you know what I mean).

Boy, I know that feeling far too well. It SUCKS!!! Been over four years since a tonic clonic, but the foggy feeling is just too much some days. I call it rebooting when I just shut down for awhile.

I have been feeling better lately - I hope the same follows for you SOON.

[TeeTees]

Thanks for all the sweet, supportive comments. Being on here is like being on a 'different series of Heroes'....undiscovered diamonds, simply full of light.

Dare I say it ?....<whispering>....I've been okay since Wednesday night.

Fingers crossed things are on the 'up' again. It just soooo drains me, and very much confused me last week as my 1st seizure of the week was completely unexpected. I've been having a real good time in work with my promo that I'm now used to, what with the 'penny dropping' about how I do my job.....but then, BAM, out of nowhere the dreaded one-eyed-seizure-monster rears it's ugly head. It wasn't as if I was stressed or anything <confused look>

Ho Hum....I guess we just pick ourselves up and fight another day.

[paradise survivor]

THAT'S THE SPIRIT!! I feel your pain though. I enjoyed a decent dry spell only to have a full on event on Monday. Woke up with the dog crying at me. It sucks but fortunately my hubby stuck me in bed with the 2 dogs on either side and I slept it off. Fortunately no injuries just dog hair. As for the gym, I admire you! I walk in the early morning (with the dogs so I am not totally alone). Mornings have always been a safe time for me but not now- Monday's event happened early. Ya think you figure out a pattern and wham!Ya think it's so we don't get bored?