Disappointment

[Molly97]

I've been doing really well with my seizures lately. I'm very strict with myself concerning the GARD and it's definitely paying off.

Then yesterday afternoon, I had one of those "I feel awful; I've got to use the bathroom RIGHT NOW!; I've got to lay down on the bathroom floor NOW" seizures. I don't know how long I was on the bathroom floor. I got up and went to bed to sleep it off. The good thing was, when I got up finally, I didn't have one of those yucky post-seizure headaches.

Yesterday evening I had a case of the "slows." Normally, watching a science program on tv makes me focus enough to recover more quickly. Not last night.

This morning, I have a case of the "wobblies" and "not quite with its." I don't take any medication except 75mg of Trazadone to help me sleep. My routine has not varied that I can identify.

It is just really a disappointment to me that after so many good days, with light seizures if any, this had to happen. I frequently ride with my husband on Sunday; it's his "go home" day so at the end of the day, I'm not stuck out in the middle of nowhere with nowhere to sleep. His sleeper sleeps exactly one. He wasn't coming up this way today so there was no way to hook up with him. It's probably a good thing with the way I'm feeling.

I'll get to feeling better and I know better days are ahead. In the past, this kind of setback with throw me into a downward spin of depression. Not any more, thank God.

I'm glad I've got a place to talk about these feelings. All my husband could say this morning when we talked about it(I'm in northeastern Ok and he's in southwestern Ks today)was to remember I've had a lot of good days, and at least I didn't get that infernal headache. He gets frustrated with my ups and downs while he's on the road if he isn't careful. He needs to focus on the road and not on my seizure activity. Still.

[alivenwell]

That is a setback. How is the GARD with regards to digestion? I'm wondering if medication is staying in your system.

[Molly97]

The GARD is heavy on vegetation(and I use organic when I can)so plenty of roughage. I also make my own goat's milk yogurt using an everything free starter. Like I said, nothing has changed nutritionally, med-wise, stress-wise, all the usual suspects.

[RobinN]

Quality of life Molly for the good days, is definitely worth it for the occasional bad day.
You know that you are only doing good things for your body, by being careful about what you put in it. Perhaps this is just a small bump in the road. The brain learned ways (kindling) to release and I am told can accumulate over time. Perhaps it just needed to twitch for a while and now can settle back into a more relaxed state.

Just to be safe, double check all your products. Especially anything that is processed. Consider also Lotions, sunscreens, swimming pools, vitamins (some ingredients). It is amazing what I still find is in my cupboards.

[Belinda5000]

My seizures are still increasing more.
I had another today.
As I was trying to get away from the trigger I didn't make it and down I went on my back and also hit my head.:
I know compared to others my 5 this month is nothing.


Belinda

[Molly97]

Robin,
I hadn't thought about checking non-food items. Don't you ever feel like it's "just one more thing?"
I was thinking that as I draw away from the things that were a bad influence in my diet, I am becoming possibly more intolerant of even minute amounts that I encounter now.
Vigilance is the key. And the fact that there are bound to be the occasional bad day in the mix of good days. It's so very different from this time last year. And I am thankful for that.

Belinda,
Sorry to hear about the increase in your seizures. Have you looked thoroughly at your list of usual suspects?

[RobinN]

When I read on the GFCF yahoo list, that some children are so intolerant to a chemical or food product, it makes me stop and try to understand this issue. Your body might still be in clean out mode, or you might be sensitive to some other type of food. They recommend rotating foods, not eating the same thing day after day.

Here is another suggestion that I saved from a detox group:

Here's some tried and true practices:
1. Make sure your bowels are moving every day, twice a day is best.
2. Stay hydrated, 3 - 6 ounces of clean water every 1/2 hour to hour. More is not neccessarily better as it puts more burden on the kidneys and can flush good minerals, etc. away.
3. Keep the exposure to more toxins as minimal as you can without stressing yourself out.
4. Eat a diet of primarily whole organic foods. Chew your food to a liquid (and it's some of the cleanest water you can get, filtered by the plant)
5. Implement good proteolytic enzymes and probiotics as keeping inflammation down and restoring healthy gut function is essential.
6. Move every day. Dance, walk, yoga, swim, or whatever keeps you engaged.
7. Be positive and happy, be around positive and happy people. Dr. Ray did a study in Switzerland on 26 people with EEG and heavy metal detox. When all people had their brain patterns in balance, ONE PERSON with a negative conversation or attitude could take the other 25 people into brain dysbiosis (out of synch). How interesting is that?
8. Make sure your first morning urine pH is in range and that your phase I and II detox pathways are supported.

[Molly97]

Oh Robin,
What a naughty person you are. One of my favorite strategies while my husband is gone each week is to make a salad, soup, or casserole that I can eat from each day while he's gone.
Oh bother. I've known for some time that this is not a good strategy, particularly for someone who has food sensitivities or allergies.
I know you're right. Here's yet another change to make, and something new to adjust to!
All kidding aside, thank you.