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#2
03-21-2008, 10:04 AM
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| I dont want to lose my dl though.... so i keep trying... ha! hmmmm this is what i think about everyday non stop... should i quit my meds and could i deal with having no dl. Or should i keep taking.  my seizures are easy controled ... but still i hate the side effects of these stupid meds.
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#3
03-21-2008, 10:06 AM
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| I think we all contemplate quitting meds at one time or another. The thing is, do the benefits outweigh the risks or side effects?
__________________ "Watch your words, for they become actions. Watch your actions, for they become habits. Watch your habits, for they become character. Watch your character, for it will become your destiny." |
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#4
03-21-2008, 10:19 AM
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| "do the benefits outweigh the risks or side effects" the problem is "I dont know" if benefits outweigh the risks! GOD I made the mistake of reading the risks of taking what im taking and well, it scares the crap outta me. Ive been cooped up in this house for ever with no real way to do anything unless i go to the post office with my husband fun huh.... and my family parents husband are treating me like im disabled I DONT like that!!! they are treating me like i cant think for myself.... which to me is extreamly annoying..... when my husband and i go to pick up my meds he talks for me OR tells me he has to because my medacation causes me to react slowly and i pause before i speak so what! that doesnt mean i need him to speak for me..... SORRY every one im really getting flustrated.. with the ignorance of others ... Im 38 years old. Ive talked to him and my parents about the way they are treating me. they arnt listening..... I guess i need to calm down and try to explain how they are making me feel. they keep saying you didnt have these problems when you were not on meds like speach and memory or pausing before i speak or being tired not being able to drive..... well duh! ANGEL RANTING! Im sorry, I guess im having a bad week! things i know will get better.... THANK GOD FOR THE PADDED ROOM!!! 
__________________ Last edited by angel; 03-21-2008 at 10:30 AM. |
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#5
03-21-2008, 10:35 AM
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| It's okay Angel. We all need to yell sometimes. Every once in a while, my hubby will talk to me like I'm 5 years old, when he's trying to explain something....or he occasionally gets frustrated and says "never mind". It doesn't happen very often...but it can really tick me off when it does. He hasn't talked to me like I'm five ever since I did the same thing to him in public....and then we he got angry, explained that how he felt at that moment was how I felt every time he had done that to me.
__________________ "Watch your words, for they become actions. Watch your actions, for they become habits. Watch your habits, for they become character. Watch your character, for it will become your destiny." |
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#6
03-21-2008, 11:05 AM
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| "ever since I did the same thing to him in public" haha good idea, Ill try that. thank you skillefer for listening to my ranting It really helps to have people to talk to who understand what's going on and who have had similar situations! 
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#7
03-21-2008, 11:12 AM
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| *chuckle* Any time.....
__________________ "Watch your words, for they become actions. Watch your actions, for they become habits. Watch your habits, for they become character. Watch your character, for it will become your destiny." |
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#8
03-21-2008, 11:35 AM
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| Hi Angel, I understand how you feel on all accounts. I am cooped up in this house and going nuts!! I do not even think my 6 months without driving has technically started..I have not been on my meds long enough. My husband is great, but has to work..and I hate having to drag him for all of my errands on his day off..no choice though. I am not sure family really gets it at all...my sisters that live closest to me are strange...the one acts like she really could care less and has offered me zero assistance. (Otherwise she is a great sister.. we were always really close..I think there is no excuse for her actions) Weird huh? A little compassion or hey can I help or do you need to get to the store would be nice. It really hurts..but I also know it is her problem and selfishness, not mine!! I am glad I am not like that! My other sister tries to understand but really can't get it at all. She is a 13 yrs. older than me and acts like I'm a little girl..She did pick me up once this week for lunch which was nice, but she works and is busy I guess. I have chronic pain and something that is most likely an autoimmune thing undiagnosed as of yet. The whole medicine thing really sucks!!! I hate it too. I have always had trouble with meds since I had a Dr. give me 4 times the dosage of a Bl. pressure pill when I was holding our infant. I had eclampsia. I collapsed and ever since have trouble with meds. major anxiety taking them.But..I have done much better out of medical necessity. I know I must get these seizures under control. I want my life back..even if it wasn't perfect with the chronic pain, at least I could get out and be more independant. The way I see it..If I win the Lottery I will immediately hire a driver!! I guess I should actually play so I have a shot! HA!! You are not alone!! I guess we all have our days or weeks as the case might be right now. It'll get better..We have to believe that!! Nothing lasts forever..and a new day will bring something better! Hugs! Michelle |
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#10
03-21-2008, 01:36 PM
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| Hey Robin, No I haven't. I actually have been checked for celiacs and did not have any issue with gluten I guess. All was o.k. Is it supposed to help with seizures also? Thanks Robin! M |
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#11
03-21-2008, 02:23 PM
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| YUP that test for one isn't all that reliable from what I am told, and you can be extremely sensitive to the four main allergens without having celiacs disease. Have you read Dogtor J's site? A great place to begin the subject. Way too much to take in , in one visit. However, I return quite often and continue to learn. www.dogtorj.com What I am learning it is the fundamentals of the diets being used for Autistic Spectrum Disorder, with complete recovery by many recently. I have eliminated soy and corn from Rebecca's diet too, which follows DogtorJ's research. I would like to get more of the starches out of her diet, but for now it has been a major accomplishment to eliminate the HFCS (high fructose corn syrup) drinks. Last edited by RobinN; 03-21-2008 at 02:27 PM. |
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#12
03-21-2008, 02:29 PM
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| Thank you so much! I will look at it. I am always trying to learn more..anything that may help,right! |
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#14
04-02-2008, 12:55 AM
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| I really, really need everybody's help. I take brand name mysoline 250mg. I have not taken generics for this at all. All drug stores in my area have generics for this level. I also am aware of a 50mg dosage which is brand name. The manufacturer said they are temporarily not making the drug until new machinery is up and running for this brand name again in the 250mg dosage. So, my debate is whether I take a whole bunch of brand 50mgs or bite the bullet, try not to worry and take (ugh!) the generic. My doctor has approved of generics. My thoughts, which may parallel my doctor's, are that it may take a while until the manufacturer is up and running and creating an accurate high quality pill to meet the demand. Errors may happen until they get this process right. Maybe generics would be the safest route? What's everybody's opinion? And, to reply to Robin, I cut my diet coke intake in half for the past several days. I had one 20 oz bottle of diet coke today- that's it! A major major effort here. I may take in hot decaf tea for a while as I cut down on caffeine. I've only had 2 pieces of chocolate which is a major major effort here. And, I made high protein lean meatloaf over the weekend. It's a start... Last edited by alivenwell; 04-02-2008 at 01:02 AM. |
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#15
04-16-2008, 10:38 PM
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A good pair of Heels! I told my neurologist the other day i wanted my life back before my meds.... She said she wanted to be taller!! Quaility of life...... I hate having to stop and think about words i want to say or just forgetting all together!! I walk around like a zombie and my husband ask me a million times if i am all right... I know he loves me and it's hard for him to see me like this. The question is how long can i do this? By the way my boss came back with a reply for my Dr. - "Buy Heels!" |
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#16
04-18-2008, 08:50 AM
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| Ive stopped taking my tegretol i was taking 600mg and have been slowly lowering off of it today ive not taken any at all.... " I would not advise anyone trying this with out speaking to your doctor" the seizures I have are not that bad just simple partial & very rarely complex partual maybe once twice a year. the simple partials just around my time of month.... Im no longer going to be driving by choice and after I start feeling better and have the money im going to change my diet.... i feel for myself this is best as the meds make me depressed or so sick i dont want to get out of bed.... " I cant stand the side effects" chest pain itchy rashes... for now im going to try something other than meds IF i have to for some reason or another with a fight ill go back on them..... love angel
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#17
04-18-2008, 09:08 PM
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| Originally Posted by angel  :
Or, could it be a seasonal allergy? With spring here, my dog gets red eyes and itchy skin. We have to give her meds to control it. Fall is equally as bad. Maybe a different med? I'd be concerned about the status E. I almost saw somebody go into that state. It's a good thing I knew about her E. I was able to tell a doctor about it who contacted a neurologist and gave her necessary meds. |
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#19
04-18-2008, 10:33 PM
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| Thank you Robin Im sure ill be fine... my family " moms dads sisters etc are backing me up so I have a few people taking care of me to make sure im doing oki have felt kinda crappy today had a really weird headache I took some ibuprofen and started feeling better love angel
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#20
04-19-2008, 08:43 AM
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| Best of Luck with your med changes. I haven't let loose my emotions in awhile. I guess partly because I am focusing on caring for My Mom right now, but when I do fire off, it isn't pretty. This padded room is here for exactly that reason. No need to say your sorry.  |
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