epilepsy meds

[RobinN]

I told my neurologist the other day i wanted my life back before my meds.... She said she wanted to be taller!! Quaility of life...... I hate having to stop and think about words i want to say or just forgetting all together!! I walk around like a zombie and my husband ask me a million times if i am all right... I know he loves me and it's hard for him to see me like this. The question is how long can i do this? By the way my boss came back with a reply for my Dr. - "Buy Heels!"

I just reread this post and realized we didn't answer your question.

The question is how long can i do this?

You see... I couldn't with Rebecca. We both decided that the quality of life wasn't good enough on the meds.

I continue to refine the nutritional changes, researching the supplements she takes, and now the alternative treatment of neurofeedback, is turning her life back towards the bright side. I can't say enough good about what I witness.

I have written about the first half of the therapy here:
http://www.coping-with-epilepsy.com/...-s-story-2733/

[alivenwell]

It's so incredibly supportive to read everybody's fight, both physically and emotionally, against epilepsy.

Some people are so supportive, nice and accepting of E.
Some people are bigots.
Some people are not bigots but afraid of what bigots could do as recourse if they befriend somebody with E.
Is it better to move on to a fresher environment to temporarily get away from bigots? If not, what do we do differently to deal with their ignorance?

Then we have to add extra a few layers of complexity like:
1. Do we have the right medication
2. What time did we take the last dosage today
3. Are we on the right diet with foods that do not cause szs
4. Can we afford the meds in retirement
5. How many pills do we have for the month.
6. If we don't drive, how do we get to the drugstore

What quality of life do we ultimately have in spite of all of this complexity?

I've had a rough week. My ability to cope with all this is usually kept in line when I try to keep busy thinking of more positive activities. I set alarms to take meds. I precount meds. I hang out with my dog. She doesn't give a crap (only during a walk) about the E.

Isn't this incredibly frustrating? I have to remind myself that if I don't set a good example for a person with a handicap, then I am crumbling and falling into a trap. A deep trap. It satisfies the bigots if I cave in. It empowers those who are supportive when they see my strength.

I usually am a fighter. There's power in numbers. I hope this site grows. I'll research and continue to read everybody's knowledge. Knowledge is power. We have to group together to overcome the ignorant attitudes, outdated thoughts and bigots. We have to find a better quality of life.

I'm just venting. It was a rough week....

[RobinN]

I have learned that neurofeedback can improve function, even in damaged brains. It can improve memory, organizational skills, speech and verbal expression.

I think most people simply do not have to live with some of these side effects that are caused by seizures.

Sorry that you had such a bad week. Positive thinking has always benefited me too. My week had some c***py moments as well, but a few deep breaths and realizing that road was simply one that I don't care to be on. I turned it around to be rather interesting instead. I love it when those moments will teach me something rather than just kick me you know where.