Giving Up!

[Zoe]

Yea,
Especially living with the frustrations from having seizures, anyone can get overwhelmed and want to give up. I've gone that route a number of times. Keep letting yourself know that these phases pass and do whatever you can to manage. Take some walks, get some funny videos, take yourself out to eat. Low levels of some vitamins can be linked to getting the blues, too. Some of these are B12 and folic acid. Some of the anti-epileptic drugs lower folic acid levels. You may want to take some supplements for a while and see if this helps.
Most important though, is what you tell yourself. If you find yourself having negative thoughts, you can tell yourself to stop and do something to distract yourself. And keep in mind these states don't last forever and you can get through it.

[tinasmom]

I feel bad that my 24 year old son has to live with me to help with my medical problems...but he has told me that he would rather do that than to live without me in his life.

Remember, you may only be one person to the world, but you are the world to at least one person!

What a wonderful son you have.

[hawke86]

Thanks for the advice. Zoe

[Molly97]

Well, I'll try this again.
My answer is to be responsible to someone or something for their well-being. I have an herb garden (who will water the plants and harvest them if I don't?) and I have bird feeders and a bird bath (again, if I don't keep the feeders filled and the birdbath full of fresh water, who will?).

[shawn33]

Well, I'll try this again.
My answer is to be responsible to someone or something for their well-being. I have an herb garden (who will water the plants and harvest them if I don't?) and I have bird feeders and a bird bath (again, if I don't keep the feeders filled and the birdbath full of fresh water, who will?).

Well Molly what type of property do you live on, apartment building, in a condo, a town house, or is it your own house on private property?
Sincerely
Shawn

[Molly97]

Shawn,
I live in a small house(1200 sq ft) on a regular size lot just outside a downtown area. Small enough to be manageable and large enough to do these two things for my own sense of enjoyment of nature.

[Wally]

The absolute best thing that you can do is to go see a professional. A Social Worker. It does not mean you are a whack job nut case. Since my adventures with E started I have been unable to work in my usual profession, so my wife has been working extra. The whole scenario has been quite exhaustive for both of us. Throw in the Keppra side effects, and it's been a hellish past year. Only the people that read this forum can truly appreciate those words. So I didn't want to load up my wife with more stress from me while I tried to figure things out. So I saw a Social Worker a few times. She was very helpful! I can't put into words how energizing it was, you just have to experience it for yourself. It's totally confidential, you can talk about anything at all, you can cuss, laugh, cry, whatever.

[shawn33]

Hi there,
I know exactly what your wife is going through. I have seizures too and I was on keppra in the past. Just when my seizures started up, my last employer (country wide home loans) laid me off and refuses to hire me back. They're worried that If I have a seizure on company property, that I'll fall to the ground. Then try to sue them. So they got rid of me. So I'm stuck at home once again with my mom for the past 15 years. So I feel for what you guys are going through.
Sincerely
Shawn

[Tralee A]

Has anyone had thoughts of giving up on life? Has anyone felt this way? If you don't saying.

I've gotten to that point. to the point of "I WANT IT TO STOP!!!" (but not as far as saying...farewell cruel world)
i was down today. my loving boyfriend rang me and talked me through it. i'm having a video EEG done...starting tomorrow but i just felt very alone. even with family around. i have that feeling occasionally. we talked it out and, as much as i hate it, i cried over the phone. i'm not comfy with talking with my parents as mum freaks out a bit or acts really calm/detached and dad wants to molly-coddle me and both sides drive me crazy so instead i end up turning to my boyfriend. he has epilepsy too so he understands that part of what i'm going thru. In all this its putting my blood sugar levels all over the place...which doesnt play nicely with my seizures.
"there are some things in life that CAN'T be fixed with a small package of explosives"
Take care and chill out

[shawn33]

I've gotten to that point. to the point of "I WANT IT TO STOP!!!" (but not as far as saying...farewell cruel world)
i was down today. my loving boyfriend rang me and talked me through it. i'm having a video EEG done...starting tomorrow but i just felt very alone. even with family around. i have that feeling occasionally. we talked it out and, as much as i hate it, i cried over the phone. i'm not comfy with talking with my parents as mum freaks out a bit or acts really calm/detached and dad wants to molly-coddle me and both sides drive me crazy so instead i end up turning to my boyfriend. he has epilepsy too so he understands that part of what i'm going thru. In all this its putting my blood sugar levels all over the place...which doesnt play nicely with my seizures.
"there are some things in life that CAN'T be fixed with a small package of explosives"
Take care and chill out

Hi there Tralee A,

I have severe epilepsy, so I know what it all feels like to you. If you ever need to talk about the video EEG or the current treatments, just let me know. So far I've had the right temporal lobectomy, the VNS, and now I'm in the RNS research study. If you ever want another website where it's for seizures, the majority of the members have them. Buth then a bunch of people joined for support because their loved ones or good close friends have them. If you'd ever like to know about that live chat, just let me know.

Sincerely
shawn33

[shawn33]

Shawn,
I live in a small house(1200 sq ft) on a regular size lot just outside a downtown area. Small enough to be manageable and large enough to do these two things for my own sense of enjoyment of nature.

Dear Molly,
Oh OK I was just going to say that if you lived on a property that you rented, it's not your problem to deal with. I was just going to say call your land lord and tell him or her what was wrong, and to get on it.
now you take care
Shawn33

[shawn33]

I've gotten to that point. to the point of "I WANT IT TO STOP!!!" (but not as far as saying...farewell cruel world)
i was down today. my loving boyfriend rang me and talked me through it. i'm having a video EEG done...starting tomorrow but i just felt very alone. even with family around. i have that feeling occasionally. we talked it out and, as much as i hate it, i cried over the phone. i'm not comfy with talking with my parents as mum freaks out a bit or acts really calm/detached and dad wants to molly-coddle me and both sides drive me crazy so instead i end up turning to my boyfriend. he has epilepsy too so he understands that part of what i'm going thru. In all this its putting my blood sugar levels all over the place...which doesnt play nicely with my seizures.
"there are some things in life that CAN'T be fixed with a small package of explosives"
Take care and chill out

Dear Molly,
I have chilled out. I'm no longer in Desert Storm.

Shawn

[haird18]

Hawke, and shawn
Just being stressed out makes me go to that edge just as my sister did 12yrs. ago but, she went one step too far and now she's gone! So I try to look at what she has done and stop myself before going there because I miss her still. So now when I'm down I focus on her beauty and smile and everything she gave back to me in life. Now here I am worrying about what is going in life and it is stressful right now. But, I know I can overcome if remember to put my faith inthe right place. I will survive this ordeal!
David

[RobinN]

I like your quote David. You are special, and I am inspired by your posts.

[stilldancing_98]

You are so inspiring David. I shared that quote with my bipolar friend. She loved it. I need it to . I had a grand mal tonight while making dinner. I barely have any strength. I keep crying and these are the times I wish I were dead . I'm sorry guys.I am not normally this negative. I was making brats. If this can make anyone laugh. My 10 year old was the only one here. He was mad at me for having the seizures. I need hugs. I'm sorry.

[kris1230]

Going for a walk helps me out when I feel depressed. I also like to listen to music, scrap book(looking at pictures of all the fun times I've had reminding me to hold on), and just relaxing.

[Georgiagirl88]

Hi Stilldancing!

Sorry about your seizure! I hope you are feeling better! I' am sending you a big ,big hug today!! David is right..we will all make it through. I hope the Brats were o.k. too!!!! ) Feel better !!!

Michelle

[stilldancing_98]

Thank you Michelle. I soaked those hugs up. The brats burned up. oops. My head hurts today. Fell on the kitchen floor and my body is a bit bruised up. Ohhh, I love fireworks but are they going to hurt my head tonight.
Teresa

[hawke86]

Teresa,
How did fall on the kitchen floor? Did you have a seizure or just slip? Do have any seizures very often? Maybe you should get one of those helmets to protect your head when you fall. A lot of people wear them or use them for their seizures to protect their head. I use one sometimes when I have a lot of seizures or feel extremely dizzy. Their a little hot sometimes, it just depends on the weather. Maybe you should consider it or give it some thought.
Hawke

[stilldancing_98]

I had a seizure. It was a bad one. I don't have them that often. menopause. It is starting to take affect. Talking and working with the Dr.s now.But I got some pretty good bruises this time.I am ok. Thank you though. I was still post ictal when I posted. I love you all.