Got another hurdle to jump

[asalomonsterx]

Well, things seem to get worse as time goes on. I just got back from my neurologist. She does her typical exam and talks to me. Then she drops the bomb on me. She tells me that back in May when I had a MRA, MRI, CT and a CT with contrast, that I had an abnormality in my neck right by the lymphnode. She proceeds to tell me that after several consults with ENT dr. and Oncologist they think I might have lymphnoma.. So now I am going to go and have a specialist check me to see if I truely have cancer of the lymphnodes.
My Eptologist said that stress could be a factor in my seizures. How am I suppose to deal with that news. I mean, come on I have dealt with cancer for a while. My mom, grandmother, great aunt, aunt all are breast cancer survivors. I just found out on friday that my great Aunt also had lymphnoma.

I am sorry for raving. I just needed to vent a little. Since I have joined here, I have found out a great deal of info on seizures. Thank you to everyone who has been greatful.

[Meetz1064]

What took her so long? I'd be throwing a fit if I were you about took her so long to tell you, and delayed treatment, and.......oh boy, I could really get started, so I will shut up now.

I wish you luck........Feel free to rant and rave all you need to...

[asalomonsterx]

That is what I asked her. I said to her " If this was done back in May then why are you just now telling me now. It is October and 5 months later which I could have been diagnosed and being treated if it is". I was so mad that I had to walk out to the waiting room so I would not scream at her. I am currently trying to get SSI or else I would have fired her and got a new doctor. Oh and you will like this one I also just found out she is in that office 1 day a week. She has 2 other offices. That just made me even madder. I totally agree with you I to could get started and say some nasty stuff about her. But I am a better person then that.

[Nancy]

Whew .................................................. .........................................
That is rotten.

Wanna' hear that I had my "scary" MRI in a commercial place that sends their films off by mail to the place that reads them ?

The guy that took mine saw the tumor so instead sent the film BY CARRIER to the doctor that afternoon. The doctor telephoned my neurologist that afternoon and then sent my films to the hospital. Then my neurologist called me. None of this took 5 hours !

Speed CAN be done. There is no speed limit on scary things.

I hope and pray things go faster for you NOW.

[RobinN]

Here's hoping she is making another mistake and reading someone else's films. Can you go get another opinion?

Now is the time for positive thinking. There is research that it helps in the outcome.
I will be thinking good thoughts here in CA for you.

[skillefer]

Oh wow.....talk about an incompetent doctor. I don't care how many offices she has.....you are her patient, and you deserve the best care. I doubt she would be happy if a doctor had treated one of her relatives the way she has treated you. I'll keep you in my prayers. And honestly..if it is cancer...I'd get a lawyer.

[tinasmom]

I would be looking for a doctor that is competent. What an idiot. I wonder if she would like to be told something was wrong 5 months after the tests were done? I will keep you in my prayers.

[drarvindr]

I'm really sorry for what you've had to go thru. the same thing happened to my dad ( NHL survivor) . he had a node in his neck and the pathologist cut it out and biopsied it. He called it negatve when it was actually early cancer. we went home happy t wasn't anything serious. 3 years later the same nodes appear near his elbow and in his abdomen. This time we go to a different doctor and he says lymphoma. I hope you get well soon. prayers and hugs.

[asalomonsterx]

I would like to thank everyone for all the encouraging thoughts and prayers. I have some good news. I do not have lymphnoma. The E.N.T. doctor said that it is just an inflammed lymph node in the cheek. I also go tomorrow to see the eptologist tomorrow. Can anyone give some questions to ask. I have a couple. Again thank you all for all the encouraging notes.

[brain]

Other than "What the *(bleep)* took you so long?"
(kidding) ...

I would be concerned about why the prolonged delay
of care and response, and would bring up a (in a nice
way) of a "better communication" and "rapport" between
you and the Doctor - so you wouldn't be left "hanging
out there"? And if there's anything on your part that
you can do?

This should get the Doctor's attention and by your
observation, you should then know if this Doctor cares
about their work and patients or not. If not, then it's
time to then seek another Doctor who's more caring
and willing to work with them ... there's no excuse
for being left hung out there on the clothesline all this
time ...

Just my humble opinion and there.

PS: Does this Doctor have any rapport with your Primary
at all?

[asalomonsterx]

I have spoken to her about why it took so long to let me know about the abnormal ct scan. Her reply was I wanted to wait until your next visit. Well the visit she had the reports from the ct where back in May. My next visit wasn't until the 29 of September. I am currently unemployed and have no medical or prescription drug plan. I lost all that when I lost my job to e. I use to be a truck driver. My primary doctor is a LPN at the county health dept. I go to. As far as a rapport goes - NONE. The LPN used to work for my neurologist so that is why I was refered there. I have been looking for a new neurologist but w/o insurance no one will see me. And my current worthless neurolgist is charging me 250 bucks a vist. Ha I told her that if she continues to be unprofessional I may have to seek out another doctor. She told me goog luck. Nice lady. Since then I have contacted the patient rep at the hospital that she represents or uses at their facilaty. And today I called her office for the 9th day straight to get a prescription called in for depakote because I am out, her nurse told me that the next time that I call they will not treat me no more. So now I understand ALL the frustrations that go along with E. Not only do you have to readjust to life but have to put up with county doctors who abuse you also. I have contacted the county health department to let them know about the doctors they are using. I feel it is a useless point. So Now I take it one day at a time.

[brain]

If you are unemployed without insurance, you
may be eligible for Medicaid or other type of
State Medical Insurance Program for those who
are Disabled.

And by the way - check out this:
When You Can't Afford Medication
And check out post #16

Some of them have websites, so if you
have anti-epileptic drug or anti-epileptic drugs ...
and if you would PM me - I can
give you the WEBSITE where you can
go directly there and some of them now
have Emergencies ... and I will give you
their direct link - if it is available.

Hope this assists you big time!

[Bernard]

Good things come to those who wait?

Seriously - great news about the lymph nodes asalomonsterx.

[asalomonsterx]

Thank you brain for the informatin on the Patient assistant programs. I had printed up the forms I needed to fill out. And like a dummy I left them at the Dr. office thinking she would fill out her section and fax it to Abbott lab. for my depakote. lol. As my father use to say "There you go assuming again". I go today to see the epitologist. And with pap forms in hand I will try again only this time sitting there while he fills out the portion he needs to fill out. Then I will fax them myself. As far as medicad goes- TN has done away with it and has their own version called TennCare. Which I do not qualify for. In order to qualify you have to be either a preganant(spelling) woman or a child. I already been down that road without any satisfaction. I even appealled it. But I will not stop at nothing to keep my seizures under control. Last night I had my worst seizure since having them. I quit breathing for several short minutes and my family panicked because we are all new to this. Nothing more scarier than waking up and not knowing how or where you are. But since joining here I have had more support than anywhere else. I can never express my appreciation to all of you. Thank you so very much.