I Was Held Down While Having TC Seizure

[walksalot]

Last Thursday night, I had several tonic clonic in a row about 8 or 9 minutes apart and was taken to the hospital. I even had one in the ambulance. Also had one going into the ER on the guerney and another while they took me into the examining room. Then, as I was there in the ER hospital bed I even had another, and I remember going into all of these. The clincher, though, is that the nurse in the ER tried to hold me down during my last seizure and as I began to seize she tried to hold my right arm and leg still, and I remember saying to her "Don't hold me down, bitch". She said, "Honey, we have to hold you during a seizure". What in the world was she taught during nurse's training?????? It's really uncommon for me to swear and I don't know where it came from. Does that happen to any of you?

I have had many weird problems over the last year or so, including dizziness and weakness and lots of myoclonus and almost stroke-like events. During the above caused hospital stay (3 days) the neurologist that saw me determined that I was way over-medicated and cut my seizure medications in half.

Here's the good news out of all this: I discovered that there is a new neurologist opening an office here in my town and I am now going to be one of his first patients. I have an appointment 6-17-09. If it works out for me, I will leave Ohio State University for good this time. I had seen only the CNP for the last several years and she was the one writing my RX that actually over-medicated me. Sure, a Doctor had to OK it, too, but what would any doctor there know about me if he didn't actually treat me himself? My own doctor had not seen me in person for at least 3 years.

I've been on the reduced medication 6 days now and maybe that's not long enough to make a difference yet, but I haven't had another seizure so far and I feel good for that.

[Nakamova]

Hi walksalot --

How frustrating that you had an uninformed nurse! Maybe you can write a letter to the hospital letting them know what happened...
I hope you hit it off your new neurologist. It can be so frustrating when you and your doctor are not on the same page. My neurologist wanted me on a higher dose of meds than I felt comfortable with, so I stopped tapering up, and then eventually tapered down a bit. My neurologist was so unsupportive, it was ridiculous. She kept warning me, saying "WHEN you have seizure on this low dose" and I kept correcting her saying "IF I have seizure..." I've been fine on my current dose for 8 months, and I feel very confident that it's correct for me.

[walksalot]

I should have told the neurologist that saw me in the ER what had happened, but I didn't. She was so supportive to me when she visited me and examined me better than my own doctor ever did.

Thanks for the encouragement. I'm really excited about this. Even if nothing better comes of it than routine office visits, it's going to save me a 200 mile round trip to the doctor. This doctor will be 4 miles from me. I could walk if I had to!