i just want to scream!!

[bluemcgoo]

i'm just about at the end of my rope with doctors! i've been told that i'm having seizures but not what kind. the meds they have me on (tegretol and gabapentin) are not contoling my seizures at all, they won't change or increase them at this time. i'm having break thru about every 5 to 7 days, but there are times that i have 2 to 3 a day.
the docs still haven't even told me what kind of seizures that i'm having, so i cannot do any research to see what meds would control my symptoms the best. from the research i have done on seizures it looks like i'm having simple partial and complex seizures, but some of my symptoms are different than what is listed and it is all so much to take in.
now, my doc is sending me to another neurologist and i have to wait until july 10th to see him. i've been dealing with this since the end of feb. and i'm ready to get my life back!
the docs took my drivers license (which i understand) and will not give me a work release to at least work part time until my disability payments kick in. i have no income coming in and i've just about run thru my savings...what is a person to do?
ok, i think i'm done ranting. sorry to have bent ur ear for so long, but i appreciate the oppertunity to get all this off my chest.
take care all!
bluemcgoo

[Nakamova]

You've got a lot of justification for ranting! Do your doctors know what your financial situation is? Can they refer you to a social services organization for help? More importantly, can they find a neurologist to see you on an emergency basis?

[epileric]

I honestly believe if you can't figure out what type(s) of seizures you're having then it's likely they can't figure it out either. I've yet to meet a neurologist that has the words "I dont' know" in their vocabulary.

[RobinN]

So sorry to hear about your struggles. I think we have all experienced waiting for an appointment. So frustrating. It is going to get worse though, IMO. We need to take more responsibility for our health. I am not sure though how knowing the name of your seizures is going to help? Wouldn't it be a better idea to keep a really careful journal of seizure activity, and lifestyle choices that might be triggering them?

Have you considered reading Epilepsy: A New Approach?

[skillefer]

I'm sorry bluemcgoo....I'd check to see what social services are available...and let your doc know that by not allowing you to work at least part time, he's basically making it so that you won't be able to afford to stay on the meds he wants you to take....

[AmyMelissa]

That must be really frustrating. my neurologist never even clarified with me i even had epilepsy. he said..ye its defo seizures you are having.........it was only when i went to the doctor tht she said oh so i see you got the diagnosis of epilepsy,,,and what did he prescribe you..............i was like sorry WHAT????

[epileric]

It does sound like bluemcgoo and AmyMelissa might either want to start looking for a new neurologist. Here's a site that rates doctors by clients opinions. Just remember that people have more incentive to rate someone when angry than when they're happy. Also remember that what someone doesn't like about someone might be what you like about them. A good example is that someone said my new doctor was "snotty" yet I found her friendly but very professional.

Just click your state (or country) then click "specialty" at the top of the specialty column then click "N" for neurology.

http://www.ratemds.com/social/

[AmyMelissa]

i tried that site,,cant even find my neurologist on there maybe hes a fraud! lol x x

[snowman]

I just went to the Dr rate site and my neurologist wasn't there either. However, there is an answer to that under FAQ. Hope this helps.

P.S. I'm so disappointed w/mine that I'm looking elsewhere.