UNDER REPORTER - my new title!

[JanieNut]

Just thought I would share this to see if anyone else has had this experience ---

I am well trained by all the doctors I've seen over the years to diminish my symptoms -

I mean they all acted like the more symptoms I listed the CRAZIER I looked in the reflection I was seeing in their eyes. OR worse - they would starting talking over me to move on the to writing the Rx part of the appointment and get me out the door - I am sure many here know what I am trying to express. Anyway - when I got the dx of E - my Family PA - who is recently aquired and I really like - told me she was going to put UNDER REPORTER on my chart because I had not mentioned many of my symptoms to her. I told her that no one had ever wanted to hear about them before I met her - so I had learned to be quiet and then ignored them --- for so long that I didn't really know how to see many of my symptoms anymore. I am really trying to pay attention and see them now. Any one else feel this way?

[Georgiagirl88]

Hi There!
I totally understand how you feel. I have been to SOOOO many Drs., specialists etc.spent so much money and after yrs. of being told panic attacks, anxiety etc. the last Dr. finally made me snap. He said to just go to a psychatrist. I had gone to a Psychatrist and he said that was not the case! He was actually the one Dr. listening and was extremely helpful to me and supportive.I was so mad and always knew it wasn't correct. To finally hear what I already knew..that something WAS wrong..I felt validated after all those yrs. I thought about going back to the last Dr. to just throw it in his face, but I guess I am not going to stoop to his level of being an a**! I am still trying to figure out my chronic pain and possible autimmune stuff, but I figure it will all fall into place eventually and if it is that, then so be it..maybe it will not be. Maybe it is just Fibro. At some point I almost started to believe what they were saying and maybe it was all anxiety and panic attacks??..yet in my gut I still felt it with all of my being that I was right. That is my best advice to anyone..listen to your inner voice. It will never fail you.
Hope you are doing well!!

Michelle

[Georgiagirl88]

Janie,
P.S.
I am finally able to track some of my seizures now. Before, I was so used to ignoring how I was feeling and was so confused about everything. SO many symptoms and weird feelings.."but it's nothing" Now I can pinpoint some afternoons when I get an aura and later that night I end up having a big nocturnal seizure that wakes me up. Nice to know we were correct!!!

Michelle

[JanieNut]

Yes, when I was dx - I started reading and studying and joined communities like this and I now realise that I am having seizures every day (complex Partial) and I am aware of them in a totally different way - I thought I was just dizzy or crazy or who knew what! I love this part- I AM NOT CRAZY - I really do feel those weird things and smells and Wal-Mart really does make me sick- (lights) It is not just the stress of the teenagers adding 100 extra dollars of stuff in the basket...