Very annoying!

[googly389]

Well, aside from all my other symptoms, one that is just a constant annoyance that makes me wanna rip my scalp out is this constant pulse I can feel deep inside my cranium! Aggrevates the **** out of me! I'll be laying there at night and I'll feel the constant "thud, thud, thud" like my brain is a clock! This is sometimes accompanied by a ringing/filling up sensation in one ear and on a rare day my vision will "pulsate" in sync with the pulse in my head. It sucks.

[RobinN]

This should keep you busy for a while:

EEG Neurofeedback for tinnitus?

There is a cure for epilepsy...

Nutritional Depletion as a Side Effect of Anticonvulsant Medications

[Bernard]

Have you ever been checked by an ENT specialist?

[googly389]

Have you ever been checked by an ENT specialist?

Ear, nose and throat spec? Well I did when I was like 10. I had a lot of sinus and ear infections as a child but I didn't know if this was related to seizure activity or not.

[Bernard]

Well, I'm not a doctor, but I would guess that the thudding sound you hear is related to circulation of blood in a vessel near the ear canal/drum. There might be an issue there that an ENT (yes - an Ear, Nose and Throat specialist) could diagnose/treat.

[RobinN]

I read somewhere about a growth/cyst causing seizures. Can't remember where that was though....An ENT can check this out.
Rebecca has a cyst that is why I researched it. I guess I should follow up now that her seizures are more controlled.
I do know that when I have a migraine, the circulation sound is much more pronounced.

[googly389]

I read somewhere about a growth/cyst causing seizures. Can't remember where that was though....An ENT can check this out.
Rebecca has a cyst that is why I researched it. I guess I should follow up now that her seizures are more controlled.
I do know that when I have a migraine, the circulation sound is much more pronounced.

Interesting. I've noticed this "thud" in my head/ear for a good 6 years (more so before my grand mal). I remember in the fall of 04' (grand mal was the following spring) I was awoken one night to the sound of a clicking in the back of my head. Now, I'm a hypochondriac at times and I immediately thought "I've got an F'ing brain tumor!!"

I also failed to mention that I use to get a low roar in my ear when I was like 7. My dad said it was normal and he use to get it too since inner ear and vertigo runs on my dad's side. But, if it was a cyst in my ear, that would make since because that's next to the temporal lobe. Wow, maybe I should get it looked into. You said Rebbecca was helped? How so?

[skillefer]

Go see an ENT. He'll prolly order an MRI, and then share the results with your neurologist. I have constant tinnitus. But mine only happened recently....well, if you count 5 months as recent. If the cyst that was mentioned grows, it can pinch off the nerves that do to your ear, effectively causing you to lose your hearing. So go to the ENT.

[RobinN]

We found the cyst on a visit to an ENT. He put the camera thing-a-ma-bobber up her nose. Didn't think too much about it, until her CAT scan report after her Tonic Clonic made reference to it. I then did a Google search and found the connection between cyst and seizure. Could have been a one time diagnosis...not really sure.

Rebecca has been helped quite a bit by diet, neurofeedback, and vitamin & mineral support for the brain. She has gone from 6 seizures a month down to 1. I am working very hard to get rid of that one fiesty "1".

I wanted to add... she is med free.

[googly389]

We found the cyst on a visit to an ENT. He put the camera thing-a-ma-bobber up her nose. Didn't think too much about it, until her CAT scan report after her Tonic Clonic made reference to it. I then did a Google search and found the connection between cyst and seizure. Could have been a one time diagnosis...not really sure.

Rebecca has been helped quite a bit by diet, neurofeedback, and vitamin & mineral support for the brain. She has gone from 6 seizures a month down to 1. I am working very hard to get rid of that one fiesty "1".

I wanted to add... she is med free.

Wow, I should do this I think. You don't think it would have shown up on the CT scan of my sinuses and my brain on that seizure day? And if I have it removed is it possible to completely eliminate my partials? You have me getting excited here!

A few years ago when I first started high school I would have terrible vertigo out of no where that would last for a few days but I shrugged it off thinking it hereditary like I mentioned. Wow, this is very interesting. Dizziness has always been an issue with me, except lately. Now it's just pressure in my ears a lot.

Edit: I failed to mention that along with my chronic ear infections and thousands of antibiotic treatments as a child, I also had tubes put in my ears because of excess fluid. Could this be a factor for temporal lobe epilepsy or similar spells of that nature?

[RobinN]

You said they began when you were 10. When did you get the tubes?
Guess that would be a question for your doctor. Just do some research on it first, because there are some doctors that are clueless about E, and others that think the only remedy is a pill.

Are you aware of all the different names for MSG?

[googly389]

You said they began when you were 10. When did you get the tubes?
Guess that would be a question for your doctor. Just do some research on it first, because there are some doctors that are clueless about E, and others that think the only remedy is a pill.

Are you aware of all the different names for MSG?

I had tubes when I was like 3 or 4. Yea, I've read up on all the hidden sources of glutamate but haven't truly enforced it I have stayed clear of MSG since that contains 70% glutamate.

[RobinN]

Common Foods Are Attacking Your Brain with Toxins

Monosodium Glutamate (MSG)
· Hydrolyzed Protein: (plant, vegetable, any kind)
· Sodium or Calcium Caseinate
· Autolyzed Yeast, Yeast Extract
· Yeast Food, Yeast Nutrient
· Textured Protein
· Glutamic Acid
· Monopotassium Glutamate
· Gelatin

These OFTEN contain MSG or create MSG during processing:

· NATURAL FLAVORS, flavoring, flavors, Natural "anything" flavor.
· Bouillon or Stock
· Broth (chicken, beef, any kind)
· Carrageenan
· Whey protein, whey protein concentrate, whey protein isolate.
· Soy sauce, soy protein isolate, soy protein concentrate.
· Malt Extract or Flavoring, Malted Barley
· Maltodextrin
· anything Protein fortified
· anything Fermented
· anything Ultra Pasteurized
· anything Enzyme-modified

http://www.coping-with-epilepsy.com/...ns-coping-670/

aspartame is another nasty product

[stilldancing_98]

This is out of the realm but my left ear thumps when I am having a myoclonic seizure. Sometimes. It's kind of a warning. And sometimes before a grand mal. It happenned to while I was being monitored.